Recent content by Spookygal

Right. Also- From what I’ve read, a bigger incision (normal sized incision) is easier for the surgeon to get a good vantage point of what he’s looking at and it’s easier for him to do what he’s gotta do in there. I’d probably just let him do his thing.

Yeah it’s crazy on Reddit haha.

So sorry to hear but glad everyone seems on top of it!

That’s where I’m at. I’m an OCD anxious person and having info both makes me crazy and also puts my mind at ease. Lol. But I’m now very worried about the results- albeit it’s seemingly impossible to find info to get it done. I saw Invitae - but also see they’re now filing for chapter 11 -...

I’m 100% positively not having kids either

Good info here! Thats what I’m worried about, a specific Ehler-Danlos. The vascular one. Which is pretty significant and deadly apparent. I guess with my age (34) and having BAV and a TAA - that could point in the direction of a connective tissue disorder - even though my cardiologist said “I’m...

Okay I’m coming clean here 😂 so basically I went down a very intense Reddit/Google rabbit hole last night and maybe cheated on you guys A LITTLE and asked a TAA Reddit group and since I’m 34 with these issues (youngish) I got a lot of “omg you should do genetic testing” especially for the risk...

Hi guys - I’m sure most of you got generic testing after learning about your BAV/TAA/whatever else - Can anyone tell me the steps in doing that? I’m feeling … pellicle cover your ears 😂 … *anxious* about not knowing if I have a connective tissue disorder and feel like I need to know that ASAP...

Thanks for this! I’m 5’9 so it seems I’m in the low risk section for now which makes me happy :) I do feel like I have a competent cardiologis:) I’m for sure glad this was found- VERY grateful even though it’s given me some grief. I don’t think I’m going to drop dead as much anymore though...

Shaken!!

Hi all!- Hope everyone’s doing well. Last time I was here I mentioned I was getting put on a new med cocktail of losartan & metoprolol - all good on that front! Happy for a little extra protection 😊 Some other updates: Today I got my repeats scans, a CTA. My cardiologist just called me and...

It’s been a few weeks and I’m happy to report aside from some headaches in the beginning (which I am prone to anyway, migraines etc) I’ve been feeling good with no side effects from my new med cocktail! :) Thank you so very much

Thank you!

Thanks so much chuck!

I just read your posts and couldn’t put them down! Lol. Thank you for this play by play, it put me as ease and I look forward to hearing more from you. Hope you’re still doing well!