Hello everyone,
Thank you all for your kind responses and well wises! I appreciate it so much!
The hospital gave me an extension until this week Friday to decide which surgeon to chose. I have an appointment to see surgeon #2 again to ask a few more questions. I will also be seeing a...
Hi Heart of Sunrise,
thank you for your advice. You are very lucky indeed! My gut is not to clear unfortunately. What do you think I should look for when choosing a surgeon?
Hello everyone,
my surgery is scheduled for the 23rd of this month (April) and I'm sill not 100% sure with which surgeon and hospital to chose. I've posted before on valve selection and shared my story with all of you. I really appreciated all the advice I recieved from everyone in the forum...
Hello everyone,
I apologize for my absence from this forum. You have all been such great help and I appreciate everyone opening up to me and sharing their stories with me. The past few months have been filled with doctors appointments and lots and lots of tests and mixed reports so it's been...
I just read that your other response so I'm sorry he has to go through more surgeries!. That's really tough both for him and your family! I'm going to keep him and your family in my prayers. Sending you and your family lots of love and healing energy! :) Thank you again for pointing me in the...
Hi bw00,
I am sooooo happy to meet someone your age on this forum!!!!!!!! I had my first OHS at age 18 and I've never met a young person that had valve issues and needed surgery at 18 like you before so this is exciting! With that being said, I am so sorry to hear that you have to go through...
Hi Lyn,
I didn't get to read this message before I responded to you earlier. Wow, your son is really tough!!! More than your son, you and your husband must be really strong individuals because it is not easy to have a child as sick at that age! My parents spent so much time in the hospital...
Hi Lyn,
your message was extremely insightful for me! i wrote a really long message explaining my story and I'm not sure if you are going to read it but I know that a part of my heart issue is congenital and another part could have been rheumatic fever but I have no way to know unfortunately...
Hi N Jean,
Thank you so much for your welcome! I really appreciate your sensitivity and advice. It seems like we both have the same valves that are special! ;) Would you mind sharing with me why you had to have your valves replaced at age 24? Was it congenital? I don't know why I have 2 valves...
Hi Pellicle,
thank you so much for all the research information. I'm a nutrition educator so I too like to be well informed with current research but I don't have access to many data bases from home so I haven't been able to see many. I will carefully review them and add to my huge pro's and...
Hi Ski girl,
It seems like you've had some really rough years. I am sorry to hear that but I am happy to know that you are doing well now and that you are happy with your valve! It's great that the coumadin is not an issue for you. After reading many peoples experience, especially yours about...
my heart story!
my heart story!
I apologize in advance for the really long message.
Thank you all for your responses and advice!
First, I want you all to know how happy I am to meet so many others especially young people with valve problems. I have never met another person in my age range...
Hi Ski Girl,
Thank you so much for sharing your experience with me. I really appreciate your response. I am sorry to hear that you had an acute endocarditis and had to have an emergency AVR. I'm sure that was tough! I hope you are doing well now.
I completely agree with you on the other ways...
Hello fellow valvereplacement family,
I recently found this forum and I am so happy this forum exists! I've been looking for something like this for years but I never found it. I guess it wasn't the right time then. First I would like to share somethings about me. I am a 30 year old female and...