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  1. M

    Mitral valve repair, struggle to become active again

    Just another voice to add credence to the feeling that surgery, while necessary for severe stenosis and other conditions, is not an easy road and the recovery is difficult. My surgery for AVR and hemiarch replacement was last June (2013) and I'm back to riding, skiing and playing squash but my...
  2. M

    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    Cliff, Your LV doesn't appear dilated or hypertrophic which may be why your cardiologist is using 55 mm as the threshold for surgery, but I would push to have the docs track down the cause of your symptoms. For the 35 years they monitored my BAV before surgery they told me the thresholds were...
  3. M

    weird symptoms

    Interesting to hear so many people had the auras come back after surgery. I had pretty much written off migraines in my late 40s having had them since I was about 14. In my 40s I got them very infrequently and they were only ever auras without pain, but right after the surgery they came back...
  4. M

    weird symptoms

    I had several mystery symptoms - visual disturbances like a migraine aura, even one that felt like tightness in the chest (turns out to be a pinched nerve in my neck that's probably unrelated) - after surgery for a few months. When I asked my cardiologist about them, he said, "look, you've been...
  5. M

    OHS Scheduled for April

    Shannon, I went into surgery in good shape - riding 25 to 60 miles 4 or 5 times a week - and everyone told me I'd do great in recovery. I did do great, but great wasn't what I thought it was. I think it's important to be clear to yourself that this is a major surgery so a quick recovery is...
  6. M

    What activities / toys are good for the recovery period ?

    I watched the new season of Arrested Development and then House of Cards right after surgery, but I realized after watching them that I had very little recollection of them due to the anesthesia and my general fatigue. The great part about that was that I watched them a second time several...
  7. M

    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    Cliff, My case was very similar to yours except that I wasn't experiencing quite as clear symptoms. What I was experiencing was my times on bike races going steadily up over about 5 years. My aneurysm when they last measured it was around 5 cm and my left ventricle had started to...
  8. M

    Heart rate limitation

    That's similar to what happened with my heart, though I had some hypertrophy. Also, my lv was dilated at 6.8cm. It went down to 5.6cm a month and a half after surgery, but that caused my hypertrophy to worsen. It's like you have a balloon that's blown up to its limit. The walls of the...
  9. M

    Heart rate limitation

    An echo can tell to what extent your heart is remodeling. It shows how hypertrophic your ventricle is and can determine ejection fraction. It seems that there are no simple standards for use of BBs post operatively but it also seems that the decision of how long to stay on them depends on...
  10. M

    Heart rate limitation

    I think there can be a benefit to the heart by staying on BBs while it's reverse remodeling. My cardiologist explained to me that it's common to have high blood pressure just after valve replacement because the ventricle is still pumping hard as if the valve were still stenotic. I think part...
  11. M

    Heart rate limitation

    Otto, I was riding 4 or 5 times a week prior to my surgery last June. In August I rode 25 miles slowly and by October was up to about 40 miles in a single ride. I was on Metoprolol (100 mg) until early December and it took about a month or so for my heart rate to stabilize after I stopped...
  12. M

    Exercise tolerance after coming off Beta Blockers

    I'm now going on 2 months off the beta blocker and 8 months post surgery. My HR is back to a resting pulse around 60 and I can get it up to the high 160s during exercise. It took several weeks after I stopped the BB for my heart rate to settle into a more normal pattern. At first it would...
  13. M

    Exercise tolerance after coming off Beta Blockers

    Ive been off the beta blocker now for a few weeks and my exercise tolerance seems to be improving a little bit at a time. The remaining effect is that I'm very sensitive to cold. My extremities get ice cold easily when biking or skiing. I'm assuming this will go away over time. I'm only on...
  14. M

    Exercise tolerance after coming off Beta Blockers

    I'm 52 and had avr for a bicuspid aortic valve in early June. I got back on the bike two months after surgery. Before surgery I was very active and rode about 3 to 5 times a week. I was pretty religious about walking and doing as much as I could to stay active in the two months before I was...
  15. M

    Exercise and stress with Aortic Aneurysm

    My cardologist and my surgeon both said to continue being active before surgery. I decided on my own to scale back my four or five two or three hour rides a week. I didn't so much reduce the time as the intensity. Nevertheless when the surgeon got my chest cracked three months after the echo...
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