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    Hole in the Heart

    Tom, I see the surgeon tomorrow morning October 17th and will know more after that. Not sure I understand what you mean regarding putting a twist on things? My surgeon has always stated a mechanical valve for me and warfarin. Of course I'm not sure whether that is looked at differently now...
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    Hole in the Heart

    Duplicate message see below. Don't see where to delete one's own message ?
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    Hole in the Heart

    I have as ASD (Atrial Septal Defect) which is another form of a hole in the heart. Either one has an ASD or a PFO. The interesting thing is I suffered a stroke (TIA) 3 weeks ago and spent 5 days in the hospital. Although the stroke hasn't been able to be explained, one theory is a clot made its...
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    BAV w/ 5.1cm dilated aorta + new finding - Atrial Septal Defect ..anyone had similar?

    Hi everyone! Wondering if anyone may has come across this situation that has now presented itself in my case? I am particularly wondering if this new finding will prompt surgery to take place sooner than later? A bit of history: 2013 - Initial diagnosis of bicuspid aortic valve (BAV) and...
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    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    Been a while since I posted. I’ve been busy finding ways to move my process along. I managed to have a second echo done 2 weeks ago which wasn’t scheduled to be done until August 2014 as an annual follow up to last year’s echo which was my first. To refresh, I was diagnosed with BAV last...
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    BAV hereditary?

    I have it, diagnosed last August. My 8 yr old daughter had an echo back in January and she is clear. My grandfather, on my mother's side, died suddenly of a heart related condition at age 74 but no one seems to know exactly what the condition was he had, this was over 30 yrs ago. His two sons...
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    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    To add to my above "UPDATE" post, I found it interesting that the CT that was conducted was listed as a "slightly suboptimal study" meaning the scan wasn't as great a quality they were hoping for. Would that not prompt my cardiologist to want to push a follow up scan to take place sooner than...
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    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    UPDATE: First off thank you to all who have taken the time to chime in! Your feedback and knowledge have been both overwhelming and thought provoking (all in a positive way!). I definitely have heard the resounding message of searching for a new GP which is in the works currently which will lead...
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    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    Hi Owen, thanks for posting. so nice to know that this condition can be addressed locally where I live rather than travel. Just to be clear, the difference in numbers is because one is from the Echo results and the other from the CT scan. It is my understanding that the CT is more accurate when...
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    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    Tdot, I am in Victoria, BC. I am currently looking at options for a second opinion. Traveling is not out of the question, I would consider it given the right circumstances. Also am awaiting on a response from my Cardiologist, I requested follow up testing and scans be done now rather than...
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    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    workmonkey thank you so much for your reply to my post. the troubling thing is I trained for an entire year for the Ironman race I did in august 2012 and did not have any symptoms. I ran into heavy bouts of fatigue on 2 or 3 occasions throughout that year that required 2-3 days of inactivity to...
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    Seeking feedback-recently diagnosed w BAV and 51mm AoRoot

    Hi! This is my first post. I have found this forum to be such a great resource for information and support that I would like to share my current situation with you and am seeking feedback. I am a fit and active 44yr old male who completed Ironman Canada in August 2012. I have competing in...
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