Recent content by CindyBain

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  1. CindyBain

    Need to educate myself and decide

    Thank you, Howard!! I'm so glad you are doing well!!! My cardiologists told me that since I am 72, that they do not recommend a mechanical valve for older people. He did say if I had one, I likely wouldn't have the need for surgery now, so his thoughts don't quite add up. I will ask the surgeon...
  2. CindyBain

    Need to educate myself and decide

    I've recently had to ECHO-Stress test, the first 3 months ago showing my heart is declining, the second two weeks ago, and I had better results that the first. However, after asking my cardiologist numerous questions through the portal at Mayo Clinic, Jacksonville, she called me and said that my...
  3. CindyBain

    Potential replacement of mitral mechanical to tissue valve, age 40

    I read several of your posts and there is a condition that runs in my family that I learned about last year when Dr's thought my daughter may have MS or lupus. I reached out to family members who were second cousins on my mother's side as she came from a small family and learned of...
  4. CindyBain

    Tissue Valvers. How Old is Yours?

    I had Mitral Valve repair and am 71, will need to replace my valve soon as it is leaking and going on 16 years of age. I had the Moderna vaccine, both shots. No reaction to #1, reaction to 2nd with all but fever... aches, pains, chills, that started about 8 hours later, lasted about 12 hours or...
  5. CindyBain

    Dr called with TEE results

    Thank you pellicle. The more I have thought about this, this is my decision and I never have to worry about another surgery. I hope I am granted 20 more healthy years!!!
  6. CindyBain

    Dr called with TEE results

    Thank you MdaPA for these links. I will certainly ask my surgeon when I meet with them. It would be nice to have another repair, but if not I will go with with the tissue valve and I also have to consider that after this valve is put in, the next one can be done by catheter.
  7. CindyBain

    Dr called with TEE results

    This is the latest update: Yesterday, 2/11/21, I had a tele appointment with my cardiologist who went over my TEE results and showed me video of my valve. After reviewing she believes that I was born with Barlow's disease and that in the next 1-2 years I will need to replace my repaired valve...
  8. CindyBain

    9 years post op, bio AVR, now with mild deterioration - question for the other ladies here

    I have a cousin that has costochondrities, until then I had not heard of it. She also has more of the Ehlers Danlos Syndrome symptoms that I learned runs in our family from our maternal grandmothers side. I am meeting with a Mayo Clinic geneticist to see if it will affect me if and when I have...
  9. CindyBain

    Tobagotwo has died

    So very sorry, prayers for his family.
  10. CindyBain

    Staying the Course -- December 3, 2020

    My understanding, is that you can change, but you will have to fill out a forms for G and then your conditions are reviewed by an insurance underwriter and they have the right to turn you down. It may be worth sticking with plan F. I have plan G and every year must meet the deductible, which...
  11. CindyBain

    The End of an Era and a New Beginning

    Thank you, Hank!!! You were so helpful when I first joined this forum in 2005 and I stayed a member for a while. Now, I am back, perhaps facing more surgery, as my robotically repaired mitral valve is now leaking moderately-to severe after 15 years. I am forever grateful to you and this forum...
  12. CindyBain

    Tee results say no rerepair.

    Thank you so much. I got the call yesterday from Mayo Clinic in Jacksonville, my TEE is schedule for Dec 3. Once I get the report I will follow up with how my valve is doing and the recommendation. Thank you for posting this. I do want to live a healthy and long life with the best quality I...
  13. CindyBain

    Tee results say no rerepair.

  14. CindyBain

    Tee results say no rerepair.

    Thanks Pellicle!!! Thanks Vitdoc, I will ask about this, but fear it is not an option. I will do whatever it takes though and live my life as healthy as I can!!! As usual, it is the fear of not knowing. The TEE hasn't yet been scheduled. I believe Covid-19 is delaying non-emergency treatments.
  15. CindyBain

    Tee results say no rerepair.

    I too have a leaking mitral valve after 15 years. I was 55 at the time, I am now 70 years old, I am active, walk from 10-15 miles a week, can do aerobics, dance, etc. My repair was by Davinci robotic surgery, 4 years ago my valve began leaking moderately, it is now moderate to severe. I have...
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