Recent content by Cherie'

pellicle I agree that the obvious is the mismanagement by the medical team. It was a violation of medical standards of care to change something that had been working for over five years. Trust me I've learned a lot on this journey. Basically, often times you cannot rely on your medical team...

That is the way I feel. It is totally irresponsible of the manufacturer to recommend this and want to know how many other patients have had the experience I did. CHerie'

I now have a St Jude Valve and am perfectly fine with that. The warfarin does not scare me. Its more the doctors. I maintain my INR around 3 now. I do not want to risk that again. I pellicle I appreciate your very detailed and thoughtful replies. By the misleading range I meant that...

Thank you everyone for your detailed and thoughtful responses. I probably should have named the title something differently… Was not really a failure of the Onx valve, but a failure of the INR protocol with the Onx valve. There were so many things that came into play in this situation. First of...

Thank you my friend. It has been extremely challenging. Actually that is an understatement. Don't know why it is showing I am a guest. Have been member since 2010. Here is a blog I wrote if you are interested in reading...

Hoping you all see my post that I just made regarding failure of Onx. I almost died as a result of maintaining my INR at the recommended 1.5-2.0 range. I'm hoping that you all can point me to the big discussion there was on here regarding the on X valve and the big flaws with FDA study. Not...

Hey Lisa, This is what I had done 2 months ago. Dr. Tomas Martin at UF in Gainesville did my surgery. I highly recommend him. I was told by one of the valve companies that he is one of the best if not the best in the SE for aorta surgerys. I had the aorta, arch, aortic root, and valve repalced...

Still hoping that you all can help me as I have to make a decision whether or not to participate in the clinical trial and take Plavix.

Right now I am taking 81mg. I don't know if that will change if I end up just being on Plavix

Hey Country, Only 23! Wow! I know that is hard and I am sorry. I think one thing that is bothering me (besides not being able to sleep due to feeling the pounding from my back on the bed) is that everyday I get a headache/nausea from the vibration in my head. All the nurses say it is very hard...

Hey all, Got my On-x valve 6 weeks ago and just found out that I met the first test to be part of the low risk group in the FDA clinical trial investigating the use of Plavix and aspirin. So the next step is to take Plavix for a week in addition to the Coumadin and then they will conduct blood...

What a trooper!! He is doing way better than I did! Much luck to him and I will be praying for a speedy recovery!

Michelle, I have this same pain by my left and right armpits. Very sore and has been. Hope you are doing better other wise. :) I am still dealing with this insane pounding. Not sleeping at night. :(

Ambriz- My husband did go with me to appts. and did a lot of research and presented the information to me. I had a very short time between when I found out about my condition and when I had the surgery - basically about 1.5 months. The whole thing was very overwhelming - not only did I found...

As someone who just underwent OHS, along with the ascending aorta replaced, & the aortic root this is a surgery I would never want to submit myself or a family member to this surgery more than necessary. The surgery was far worse than anything I ever imagined. The pain was excruciating (I...