Echo in 2 weeks

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L

liam13

New to this wonderful forum. I have my next echo on 6/11. Had one 3 months ago and my cardio didn't like what he saw. To be honest I am ready for the surgery to happen NOW (would be an AVR, due to BAVD). I am chronically lightheaded, the sternum area hurts all day now. I've known about the heart problems since '88. I work in a hospital (not one that does OHS though) so have access to alot of information. I'm ready to get back on the healthy road of life. This site has been a wealth of information for me. Liam
 
Hi Liam,

Whoa and Welcome!

I have to commend you on your attitude.

It sounds like you're way ahead of the ball in terms of developing the right mental approach to proceed with this life-saving medical process.

Fyi, I can relate. I had aortic valve replacement.

Just checking... Have you thought about a second opinion just to be sure?

Cheers!

Adam
 
Hi Liam,

I read your post in the valve selection forum also. It is very understandable that you want to minimize the number of surgeries you will need to experience. But for someone with BAVD, more than the valve needs to be evaluated. An echo through the chest wall does not give an image of your entire aorta, which should be part of your work up. A CT or MRI with contrast will give pictures of the entire aorta.

You need to know the status of your aorta - root, ascending, arch, all of it! If you have an aneurysm, or any enlargement beyond what is normal for you as an individual, you need to know about it, and it needs to be part of the strategy both now and in the future.

There is no need to guess about where you are right now. It should be better today for those with BAVD than it was 17 years ago when my husband received a mechanical valve - meant to be the only surgery he would ever need. I know now that his aorta had already dilated at that time, but nothing was said. It took about 11 years for him to develop a large aneurysm. So giving him a mechanical valve, while well intentioned, did not prevent him from needing surgery again for the aneurysm. (Later, the mechanical also gave him a problem.)

How is your blood pressure? Does it spike with exercise and/or stress? This is called labile hypertension and often comes along with BAVD. It is an important thing to know and to get control over.

Perhaps this paper will be helpful regarding BAVD - it has some helpful pictures/diagrams.
http://circ.ahajournals.org/cgi/content/full/106/8/900

Best wishes,
Arlyss
 
Great article!

This explains why they want to do surgery earlier than would seem necessary from some of the guidelines. My aortic valve is right at 1cm, but the ascending aorta is at 5cm. Some guidelines say surgery at 5.5 cm, others at 5. I'm already scheduled for surgery on July 6, and this article reinforces that decision.
 
I had a CT scan probably a year or so ago of the upper thoracic area, and that was all normal. I assume an aneurysm would show up. Concerning the BP, it is for most part under control. I take 25mg toporol XL a day. Laying down the BP tends to be 120/65 with a pulse in the mid 50's. Once I stand up though, both numbers jump an average of 20 points each to 145/85. When I have the echo I'll ask my cardio about this. So the echo doesn't give a good picture if there is an aneurysm there or not? Is the angiogram required? thanks Liam :)
 
My understanding is that the ct scan is the best for evaluation of the aortic size. The echo, while good, can be somewhat technician dependant. The angle of the transducer transmission,ect. The echo (esp a TEE) is good for evaluation of the valve and ejection fraction (strenghth of the heart beat). During my intial evaluation of my aortic aneurysm, a CT scan was done of both the thoracic and abdominal aorta. Just had my aortic root aneurysm surgically addressed on May14th, so I know what your going through like many on this site. I found everyone here has been so helpful. Learn everything you can and on the way to a good recovery.
 
Now down to one week. Today the chest discomfort and fatigue were getting to me. This week is going to be a long one. I will ask about setting up the TEE and angiogram on the 11th as well, and get on with this. Liam:(
 

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