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Ross

Well-known member
Joined
Dec 15, 2001
Messages
25,981
Location
On The Hot Seat
This was sent to me not terribly long ago. Please read and make your own decisions on how it applies here at VR.

"Munchausen by Internet"
For decades, physicians have known about so-called factitious disorder, better known in its severe form as Munchausen syndrome (Feldman & Ford, 1995). Here, people willfully fake or produce illness to command attention, obtain lenience, act out anger, or control others. Though feeling well, they may bound into hospitals, crying out or clutching their chests with dramatic flair. Once admitted, they send the staff on one medical goose chase after another. If suspicions are raised or the ruse is uncovered, they quickly move on to a new hospital, town, state, or in the worst cases ? country. Like traveling performers, they simply play their role again. I coined the terms "virtual factitious disorder" (Feldman, Bibby, & Crites, 1998) and "Munchausen by Internet" (Feldman, 2000) to refer to people who simplify this "real-life" process by carrying out their deceptions online. Instead of seeking care at numerous hospitals, they gain new audiences merely by clicking from one support group to another. Under the guise of illness, they can also join multiple groups simultaneously. Using different names and accounts, they can even sign on to one group as a stricken patient, his frantic mother, and his distraught son all to make the ruse utterly convincing.

Clues to Detection of False Claims
Based on experience with two dozen cases of Munchausen by Internet, I [author Mark Feldman]have arrived at a list of clues to the detection of factititous Internet claims. The most important follow:

the posts consistently duplicate material in other posts, in books, or on health-related websites;
the characteristics of the supposed illness emerge as caricatures;
near-fatal bouts of illness alternate with miraculous recoveries;
claims are fantastic, contradicted by subsequent posts, or flatly disproved;
there are continual dramatic events in the person's life, especially when other group members have become the focus of attention;
there is feigned blitheness about crises (e.g., going into septic shock) that will predictably attract immediate attention;
others apparently posting on behalf of the individual (e.g., family members, friends) have identical patterns of writing.
Lessons
Perhaps the most important lesson is that, while most people visiting support groups are honest, all members must balance empathy with circumspection. Group members should be especially careful about basing their own health care decisions on uncorroborated information supplied in groups. When Munchausen by Internet seems likely, it is best to have a small number of established members gently, empathically, and privately question the author of the dubious posts. Even though the typical response is vehement denial regardless of the strength of the evidence, the author typically will eventually disappear from the group. Remaining members may need to enlist help in processing their feelings, ending any bickering or blaming, and refocusing the group on its original laudable goal.

References: Feldman, M.D. (2000): Munchausen by Internet: detecting factitious illness and crisis on the Internet. Southern Journal of Medicine, 93, 669-672
Feldman, M.D., Bibby, M., Crites, S.D. (1998): "Virtual" factitious disorders and Munchausen
by proxy. Western Journal of Medicine, 168, 537-539
Feldman, M.D., Ford, C.V. (1995): Patient or Pretender: Inside the Strange World of Factitious Disorders. New York, John Wiley & Sons"
 
WOW! What an interesting article. Gives one pause and lots to think about. Thanks for sharing, and you know, we DO appreciate your vigilance.
 
I certainly believe this would apply here and at any health related forum. There have been times when I just had a gut feeling that someone wasn't being real and sometimes it turned out to be the case. I do believe the balance of compassion and circumspection is prudent.
 
Gee Ross,
I think so many of us (mostly female from what I've read) have experienced doctors telling us that we were hysterical or faking/exagerating symptoms, that I would be hard pressed to try and determine the validity of another member's experiences.

But I've often wondered about the lady who was on the Support Forum when I joined. Her husband was the valver, but he was resistant to having the surgery. I believe the username was Two hearts as one. It was one crisis after another one, and I read some pretty hot posts among members.

Finally we have the sad case that transpired this past summer. Most of us got sucked into that one. But we came through it (even though I still expect to find ugly emails from him). :eek: :eek:

Anyway, thanks for mentioning it.
 
Yes, Ross

Yes, Ross

Been there and saw that..with 4,299 posts.:eek: Remember the member who posted so much, then faked his suicide?Claimed his brother..came on and told us..and we believed it..:eek: but, you found out the truth..Just awful for us.........thanks for watching out for us..:) Bonnie
 
Granbonny said:
Been there and saw that..with 4,299 posts.:eek: Remember the member who posted so much, then faked his suicide?Claimed his brother..came on and told us..and we believed it..:eek: but, you found out the truth..Just awful for us.........thanks for watching out for us..:) Bonnie
This is the problem, I remember all of the false incidents we've had and the strife that these people caused. I see the same signs again in a few different areas here. I fear it's happening all over again.
 
I think the internet is a scary place -

I think the internet is a scary place -

there is also something called "cyberchondria" which a friend pointed out to me when I was researching the internet lately regarding having to wear oxygen and desaturating at night, etc. I believe I developed a case of cyberchondria for sure.

I read pretty scary things on the web and convinced myself that I had this or that - and NO doctor could tell me otherwise. I STILL am having a hard time getting the things I read on the internet out of my head and believing what my doctors tell me.

The internet is a "friend" to a lot of lonely people out there and finding a support group and lying about an illness is maybe one of the only ways they can find someone to have a relationship with. Sad.

Christina L
 
It is so sad. Justin has a caringbridge cage and there is a huge community of caringbridge and carepage, mostly kids, w/ CHDs, Cancer ect. we support each other and pass on pages that need extra prayers, just about monthly we will find out that one of the pages are false. It makes me so mad, because you spend a lot of time and energy trying to help them thru rough times, that you could have been using on a child that really needs it. I never do, but since they are kids, alot of people will send them cards or small gifts,
Thanks for posting this the tips on spotting them are really helpful, Lyn
 
Christina L said:
there is also something called "cyberchondria" which a friend pointed out to me when I was researching the internet lately regarding having to wear oxygen and desaturating at night, etc. I believe I developed a case of cyberchondria for sure.

I read pretty scary things on the web and convinced myself that I had this or that - and NO doctor could tell me otherwise. I STILL am having a hard time getting the things I read on the internet out of my head and believing what my doctors tell me.

The internet is a "friend" to a lot of lonely people out there and finding a support group and lying about an illness is maybe one of the only ways they can find someone to have a relationship with. Sad.

Christina L
Your pretty! Now you heard that on the internet, convince yourself and let no one tell you otherwise. ;)
 
Thanks, Ross. It is very important for us to try and help you keep this site protected, honest, and used for its original intention - to help those who really need help.
 
Ross -

Ross -

You are too funny. However, that is not a BAD thing, to be told I am pretty. I have a tendency to latch onto the really, really bad things (per my husband) and I negate the good. I am trying to change my way of thinking...

Christina L
 
I'm sure this becomes a hard issue for support boards like this one because there are no really good ways to differentiate between posers and people who are just dingbats when under stress. When in fear for my loved ones, I have been known to come across as a total loon....also happens after a little too much wine. It's also important to note that we here deal with people who have other serious problems, including attention deficit disorder, bi-polar disorder, and other depressive diseases. When you combine that with heart problems, especially heart problems with loved ones, who can judge the accuracy of their posts. It's also human nature to embelish a little...

I am mindful of this past summer's episode, which caused me no end of tears. Many of my valvereplacement pals thought I was harrasing a fragile young women, who turned out to be a figment of a sick troll's imagination. Yet, I would still say that the very purpose of this board would dictate that we err on the side of generosity.

There are many people who live unstable, chaotic, dramatic lives. I would rather have my heart broken by someone who won my confidence and turned out to be a fake, that to refuse to help another who just might be an imposter looking for attention or trouble.

Kind regards,
Blanche
 
I deal with information security, including social engineering and all sorts of other fun stuff. This is the primary reason that I rarely use the internet at home, I get enough of it at work. I can tell you from experience it is very difficult, even knowing what to look for, to tell a fake story from a real story on a site like this one. You are dealing with people in very stressful situations and they may not always come across rationally. Ross does a tremendous job of keeping this site focused. I personally opt for the stay out of it approach on here when I see the questionable posts.

It's unfortunate that people feel the need to do these things.
 
Christina:
Being a dingbat is a coping strategy for excess stress, something I am happy to be..sometimes. One of my very best friends is the best dingbat I have ever seen. Perhaps we should start a club or association? *Smiles* I say, if it works for you, go with it. I like dingbats and flibertygibets too, and you!
Regards,
Blanche
"As one goes through life one learns that if you don't paddle your own canoe, you don't move." -Katherine Hepburn
 
oh yeah...


been there done that...


I have just recently dumped a "friend" who had been abusing my caring nature for the last 18 months...

I had typed out a great big long "vent" that got eaten by the cyber-monster GRRRR....

This madam did everything mentioned in Ross' article...

I hadnt believed her for well over a year but it didnt stop her til I "blocked" her...you would have been amazed at some of the dramas that she has suposedly endured....even "soap operas" arent that dramatic...LOL :rolleyes:

I had let this thing go-on for so long because I honestly felt sorry for her...
now I have a life again..
instead of wasting my time pandering to her vivid imagination...YAY!!!!
 
That is sick

That is sick

I am an adminsitrator of another website, not health related in any way, and some years ago we had a person who spun us a tale about her baby and a brain tumour - it turned out to be completely false. It didn't occur to me that people would actually pretend to have heart problems on this site, I just trust people too much.
 
Excellent research, Ross! Very impressive. Thank you for watching over all of this, I have also wondered myself about some of this, when you have been thru this yourself you get a sense of what is real and what is not.. Rose
 
This is not the only site beset with trolls. For some odd reason, the medical help boards are prime targets for them. I guess because there are many caring folks who populate those boards, and want to help, so they are an easy target.

On one other board I go to, a woman spun a very tragic story and conned several members into funding an across country trip for herself and a friend to see the only "specialist" in the country who could ever possibly help her. She never reported back with anything lucid as to what transpired during that appointment, and then disappeared from that board until just recently, when "she" thought that all had forgotten about her. She's been roundly trounced by many people, but others who do not know her history are very angry that members are being mean to her. So she's started up again, but has once again disappeared from that board.

On another board, there was a stalker who found out several member's address and phone numbers and then started stalking them causing much misery. It just about finished that website. Many members left and never came back.

We are so blessed to have Hank and Ross who really care about keeping this site under control. I know that some members have criticized them in the past, but they've been right on target, and there are things that probably go on that most of us will NEVER know about.

I've been here for many years, and there have been numerous things that have happened during that period of time, but most have been cut short before they got too far along. Some have slipped through, but not many.

There are such wonderful people here, that's what makes this a great site.
 

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