Open heart surgery for a patient with HHT

[Guest]

I will be having valve replacement surgery soon. I also have a genetic disorder called HHT (Hereditary Hemorrhagic Telangiectasia) A person with HHT may form blood vessels without the capillaries (tiny blood vessels that pass blood from arteries to veins) that are usually present between arteries and veins. The space between an artery and a vein is often fragile and can burst and bleed much more easily than other blood vessels.
I was wondering if anyone in this community has or had this combination of issues? (some of us are just lucky!)
Thanks [h=3][/h]

 

[pellicle]

sorry to read of your complications ... I can't add anything from experience or knowledge, but wanted to wish you well