musician2k
Beloved Member
Not sure how common this is, but am having trouble/getting mixed messages regarding my surgery. So far, only had a cath & a CT scan. Was told after the scan was in that I'd "be called with a surgery date." Well, no one called & so I called THEM. Was told my info had been looked at by another surgeon (at my request, the surgeon who was tagged to me the day of my cath is gone this week on vacation) and he didn't see an emergent need for me to be scheduled for surgery THIS week, and that the vacationing surgeon will look at it next week, upon his return. I went ahead & asked to be seen by a different surgeon (someone who was said to be more experienced with AVR & aneurysm repair) and have an appointment with him in his office next Wednesday. I couldn't find out the results of the CT scan, but was told from the echo my aorta's dilated 5cm. This may or may not be true, I don't know. Aortic valve is functioning "surprisingly well" considering it's pretty battered, LV is normal & heart function overall is normal. I'm somewhat symptomatic (migraines, some fatigue, much worse fatigue when I was working full time, which I'm not) but I'm not experiencing syncope or excessive SOB. Thoughts? Is my experience somewhat normal? Should I be doing anything else?