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Hi guys - I’m sure most of you got generic testing after learning about your BAV/TAA/whatever else - Can anyone tell me the steps in doing that? I’m feeling … pellicle cover your ears 😂 … *anxious* about not knowing if I have a connective tissue disorder and feel like I need to know that ASAP...

Hi all!- Hope everyone’s doing well. Last time I was here I mentioned I was getting put on a new med cocktail of losartan & metoprolol - all good on that front! Happy for a little extra protection 😊 Some other updates: Today I got my repeats scans, a CTA. My cardiologist just called me and...

Hi everyone- hope you had a great weekend/Monday! So last week my new cardiologist switched me to Losartan 25mg from Lisinopril 20mg and added metoprolol 25mg .. long story short I’m terrified of starting new meds! Last night I finally took my first does of losartan (felt a little weird this...

So today I had my new cardiologist appointment - it went pretty well! First of all, I instantly clicked with this doctor. He was really nice. He was really funny. He answered all my questions, and he just made me feel really safe and knowledgeable about everything that’s going on. The...

After a veryyyyyy long week (being a nurse on top of the weight of my recent news) I’m finally in bed, Game of Thrones on the flat screen, enjoying a seltzer in my comfies. I’ve been trying to relax and get a freaking grip. Lol. Very hard for me. Lots of tears, lots of googling. Sometimes I get...

Okay so, after a weekend of freaking out and calling everyone under the sun, I finally had my follow up with my cardiologist PA just now, who confirmed with my scans I have a leaky valve (my regurgitation went from mild to moderate) and my ascending aorta is a 4.1cm when it was 3.6cm in 2022. I...

So if you saw my first post yesterday you’d of seen I was going to get repeat scans after first getting diagnosed with BAV in April 2022.. My ascending aorta was 3.6cm then.. Today, it was 4.2 x 4.1 cm and with that I was referred to a thoracic surgeon. I am quite literally out of my mind...

Hi all, happy to find somewhere to vent/get some information about likely the rest of my life lol I’m a 34/F nurse from New Jersey and last year I was diagnosed with BAV. Here are some excerpts from my imaging: “The heart is normal in size. The ascending aorta is top normal in caliber and...