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  1. M

    Plugging peravalvular leak

    St. John's is in Santa Monica. But Dr.Raissi's office is in West Hollywood, California.
  2. M

    Plugging peravalvular leak

    Dodger fan we had a wonderful surgeon at Cedars Sinai replace my husband's aortic valve and then fix his aortic aneurysm. However, he is now at St. John's. I highly recommend him though. If nothing else but a consult. His name is Dr. Sharo Raissi. He is our angel.
  3. M

    Plugging peravalvular leak

    Heading to Cedars Sinai next week with my husband to fix his peravalvular leak. Wondering if anyone has been through this procedure and if is has been helpful? This is a temporary measure for us right now. Probably heading to his 5th open heart next year.
  4. M

    Just got the news: BAV (Age 40)

    My husband is a BAV. Very long health story. I would suggest you look at the website: Bicuspid Aortic Foundation. It is run by a friend of mine Arlys Velebir. My husband's surgeon is Dr. Sharo Raissi. He has been following BAV patients with earnest. We are currently having my son tested every 5...
  5. M

    Recommendations for surgeon for mital valve replacement or repair?

    No they are possibly thinking that it may give take some of "pressure" off if this leak is fixed first. I get the impression no one is wanting to rush back into a 5th open heart. However, hearing that my husband's is a severe leak on the mitral with no possibility of "clipping" and being a...
  6. M

    Recommendations for surgeon for mital valve replacement or repair?

    Looks like one recommendation from Cedars is to fix or plug the perivalvular leak first and see how my husband does. Then if the fixing of that leak doesn't help open mitral valve surgery. Still pending Cleveland which should or could be sometime next week. Anyone ever have a perivalvular leak...
  7. M

    Recommendations for surgeon for mital valve replacement or repair?

    Thank you for the responses. I was able to contact the Cleveland Clinic. We sent medical records there and Dr. Gillinov will be reviewing. We are also pending a risk assessment from a surgeon recommended at Cedars Sinai from our own surgeon. Now the waiting begins...
  8. M

    Recommendations for surgeon for mital valve replacement or repair?

    Thank you for the responses. I was able to contact the Cleveland Clinic. We sent medical records there and Dr. Gillinov will be reviewing. We are also pending a risk assessment from a surgeon recommended at Cedars Sinai from our own surgeon. Now the waiting begins...
  9. M

    Recommendations for surgeon for mital valve replacement or repair?

    Back from my husband's tee. His mitral valve is severe and there is also a peravalvular leak around the aortic valve. The leak with the mitral has progressed in 15 months. As I have mentioned in an earlier post this could be his 5th open heart. If we stayed in California our surgeon will not be...
  10. M

    Going in April 2nd

    Thinking of you as April 2nd approaches. How are you doing?
  11. M

    Going in April 2nd

    pellicle what is the ATS or On-X? I have never heard of those.
  12. M

    Going in April 2nd

    My husband had a medtronic mechanical first. Found out it developed valvular strands which may have broken off and caused a stroke. So second one was bovine. Unfortunately, because he developed a staph infection within a week of surgery in the sternum, the new valve didn't have a chance to heal...
  13. M

    Going in April 2nd

    Well we have had one at Sequoia in Redwood City, two at Cedars Sinai in LA, and now our surgeon has moved to St. Johns in Santa Monica. But thinking since possibly a 5th would like to send his records etc. back to Cleveland for review. I spoke with them a year ago and it's a fee to do a review...
  14. M

    Going in April 2nd

    Hi yes my husband has had 4 ohs. He had two aortic valve replacements. Yes, his is leaking again. He has a severe mitral valve regurg right now. We are possibly pending our 5th ohs depending on the results of the tee next week. Where are you having surgery?
  15. M

    5 open heart surgeries?e

    I finally am in officially. I was the "guest" that posted about my husband having 4 open heart surgeries and now pending ( depending on tee April 6th) a 5th. I can't believe we might be in that same boat again soon. It is so hard even thinking about doing it a 5th time. He has had...
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