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AndyChas

Well-known member
Joined
Dec 26, 2008
Messages
69
Location
Armidale, NSW, Australia
I think it?s time I introduced myself. I found this board a couple of months ago, soon after I was told I needed to have heart surgery, and you seem a very friendly, helpful and supportive bunch.

My story seems quite common here: an asymptomatic, fit and otherwise healthy person suddenly finding out they have heart disease which needs fixing soon. Life is turned upside down; mortality suddenly becomes very tangible. I?m 42 and have exercised virtually daily for many years (gym, swimming, cycling, walking etc). In August 2008 I fainted while swimming (at the end of a final lap, sprinting as fast as I could). The fainting episode must have been brief as I didn?t take in much water (or drown for that matter!).

While passed out as I was having a nice little dream (I can?t recall the details now but it was pleasant). It was thus something of a shock to come to underwater, out of breath and unable to breathe, rather than waking up warm in my bed. Even though I?d not fainted before I put off seeing a doctor for a month or so; he soon identified a murmur with the stethoscope and sent me off for an echocardiogram. I didn?t get the result until some weeks later, but the news relayed by the GP was grim: ?I?m sorry to tell you this on your birthday, but I?ve spoken to the cardiologist and we think that you?ll need mitral valve surgery; don?t do any strenuous exercise? (he knew that I went to the gym regularly).

That particular phone call, on that particular day, was a bit surreal ? it was as if I was watching it happen to somebody else. I live in a country town about 500 kilometres from Sydney and the local cardiologist said an operation would be required sometime over the next two years. However, as the operation would have to be done in Sydney I was referred to another cardiologist there who wanted it done sooner than later. I was sort of glad of this development as the anxiety engendered by the OHS process, and the choices you have to make in relation to it were taking their toll (sleeping problems, funny aches and light-headedness).

I was scheduled to have the pre-op tests and surgery at St Vincents, Sydney, in late November. The angiogram showed normal function and the TEE/TOE suggested that repair would be the more likely outcome. The surgeon had also mentioned the possibility of using minimally invasive keyhole surgery, but after the TEE he decided that repair would be better facilitated by traditional OHS. I had decided upon a mechanical valve if repair was not possible. Unfortunately, I had a brief and rather strange fever the night before the heart surgery (a bout of shaking while in the shower, a high temperature, and ringing in my ears; I felt quite sick). I didn?t get much sleep that night but the symptoms had all passed by the following morning.

I?d taken the precaution of ringing the surgeon?s registrar to get his advice; he said to come in prepared for the operation but they?d do another blood test as a precaution. This showed a high blood cell count of some sort compared to the same test taken the previous day, and the surgery had to be cancelled due to the potential complication of endocarditis.

I?d been coping well with the pre-operative anxiety (and I was only an hour away from the theatre by the time it was cancelled) but I?ve wondered since whether the stress of it all played some part in the brief fever (as it proved to be). My surgery has been classed as elective and I spent three weeks in Sydney waiting on a stand-by basis prior to the Christmas shut-down, but a spare spot didn't come up so I?m back home with a vague understanding that the operation will be re-scheduled from mid-January.

The cancellation hasn?t bothered me too much. The main reason is that it has given me more time to conduct my crash course in valve choices, potential complications, the recovery process, long-term Warfarin dependence and so forth. I?ve done the usual pre-op interviews with the various carers, and I?m familiar now with how the hospital works, but this forum has also proven to be a really helpful resource, so thanks to everyone for contributing. I?ve still got some specific questions/fears (some of which are probably pretty trivial in the wider scheme of things) but this post is getting rather long so I?ll save them for another day.

Andy.
 
Hello and welcome. I am very glad to hear it wasn't endocarditis, THAT,
you can do without. Also good news that it should be a repair over a
replacement. I had my VR 10 months ago and I am your age,however
I had known of my heart prob for several years and made the mistake
of putting it off-not a smart move.
This is a good place for info/support/complaining:D
Wishing you well-Dina
 
hello from the shakey isles

hello from the shakey isles

like you, many of us were floored by the sudden diagnosis of a serious heart defect needing prompt surgery. but your comparitive youth, good health, prompt diagnosis and surgery should result in a quick recovery with a completely normal life after that; regardless of wether you have mitral valve repair or replacement.

as for pre op stress, i suggest you have a good liquid lunch on the way to the hospital like i did at the occidental belgium bar in vulcan lane. now walking into that hospital still was not the happiest moment in my life but it sort of took the sharp edges off my fears. the nurses told me it was not at all uncommon for a heart surgery patients to have a few before they checked in.

suggest you check out inr self testing machines like the "coaguchek" in case you end up with an artifical valve; they make warfarin management a breeze!

good luck mate!
 
Hi Andy,

Welcome to the forum. Feel free to post any and all questions and fears you may have. We've heard (and experienced) most of all possible problems and fears. It's the most intense experience your body probably will ever experience, so it's natural to be worried about stuff. Rest assured, though, open heart surgery is remarkably reliable and survivable. I had emergency OHS to repair my mitral valve when two supporting tendons (chordae tendineae) snapped, leaving my valve flopping in my left atrium and ventricle like a sailboat's sail with its ropes undone in a gale. It took only two days to go from healthy (with only a diagnosis of mild mitral valve prolapse) to nearly dead from pulmonary edema. Aggressive diuresis got me stable enough for emergency flight to a city 120 miles away. The repair was done that day.

Recovery from the mitral valve repair itself is pretty easy for the heart. Since it's working better, pressures and shape return to normal. Medications that make your heart beat more slowly and gently are given for a time to help with healing, but they're tapered off when no longer needed.

It's the sternum split that takes time--I know--it happened to me. It's basically a broken bone, and like any broken bone, it takes time to knit properly. While the surgeon will wire the sternum halves back together, the actual halves will take at least six weeks before you are permitted to lift more than 5 kg, then a slow tapering up of maximum weight. Don't expect to be able to do pushups prior to 3 months out, and forget pulling on anything with both hands in opposite directions (e.g. holding onto a tree with one hand while pulling up a mate on a rope with the other) for a bit longer. However, after 3 months--longer if you abuse your chest--you can return to swimming, limited weight lifting (fewer limits after 6 months), and other upper body activity. Strenuous climbing and other stuff will of course take longer, but given prudent care, you should be able to do everything you did before within a year, except a bit better now that your heart is all fixed up. It's been a year since my surgery and aside from a slightly bulging scar, I otherwise feel perfectly normal again--except for some lingering depression.

Yes, you likely get to experience that, too. About 70% of OHS patients experience a clinical level depression at some point during recovery, though with most people the duration is short and fairly easily endured if you know it's coming and why. With family, friends, good counselors, clergy, and wisely prescribed antidepressants, the depression and other OHS trauma induced emotions can be dealt with.

If given a choice between repair and replacement, it's far better to get a repair as your longevity and risk of complications is the same as people who have never had OHS at all. Even if you get a replacement, with proper care and good control of blood thinners, your life can be as active and long as normal, too. A lady with a replaced aortic valve climbed Mt. Everest a few years ago and did perfectly fine.

Lower body fitness training can happen a lot sooner as soon as your doctor clears your heart and aerobic performance. Some people here (see the Active Lifestyles & Cardiac Rehabilitation forum on this website) resume long distance running very shortly after their surgeries, and long walks on arriving home from the hospital.

One last bit of advise. Please pay attention to your pain. After OHS, pain has suddenly become a very welcome ally. It will inform you when you've pushed too far. If you try something and it hurts, stop, ask yourself what caused the pain, then wait a little more time before trying it again. Stretch passively as much as possible, though, as contractures can occur if you baby your scar too much. My own posture is actually better now than before surgery because of my stretching efforts.

Just ask, and you'll get loads of answers from lots of people here--just no set in stone medical advise, as most of us aren't even doctors much less surgeons (my wife is M.D., but she's Family Practice--no OHS). Feel free to ask for spiritual support, too. Lots of people here believe strongly in the power of prayer, and gladly will do it for you--my wife and I included.

I hope that your insurance (or does Australia have universal health care?) covers your OHS. I also think that your surgery is not 'elective' as you have symptoms. Please ask that your physicians make sure that the powers that be see this as necessary, and not just some minor problem that isn't that bad.

I hope you get to go into the Outback on occasion to see the night skies. I envy your brilliant southern constellations. We can't see Carina, most of Centaurus, Crux, neither of the Magellanic Clouds, nor the splendid Omega Centauri (brightest globular cluster in the sky). We'd like to go there sometime (I also like opals--but we can discuss this at some other time).

Chris
 
Hello--thanks for sharing your story. I think you should post about whatever it is you want help with, even if you think it is trivial because the people on this forum are wonderful with answers, regardless of how big or small the questions are. I know because I have asked what I think are trivial things also but still got some good advice.

I just got my mitral valve repaired on December 5 and came home from the hospital ovre a week ago. I remember before the surgery feeling anxious about whether it would be a repair or a replacement and voraciously reading everything I could find on the topic. But it turns out that you are probably already very knowledgeable about the situation and have a fairly good idea of what to expect and will sail through it just fine.

I am 31 and had my repair done in New York City.

Good luck!
 
Thanks for the quick responses and welcomes (as a lurker I'm actually familiar with some of you).

Dina: you're right about endocarditis; I'm sure that was a particularly unpleasant experience. The risk of getting it was another reason why I was happy for the operation to be cancelled, although in hindsight nothing probably was amiss in that respect.

Westie: I'm a Westie too! (the Sydney version, although I haven't lived there for twenty years). I'm not sure what the doctors would condone your advice about calming the pre-op nerves and one of the annoying things about my few days at the hospital was that they kept demanding my presence at 6.30am. Having said that, St Vincents is smack in the middle of Sydney's red light district, so you can probably get a drink at any time...

Chris: thanks for filling me in on your story and for your advice. I had read about the possibility of depression after OHS, but I suppose I'll just have to wait and see what happens. I think that exercise is pretty important in this respect, but I also know that I have to be careful not to over-exercise (I certainly don't want to compromise the sternum healing process in any way). I haven't quite gotten round to the concept of pain as my friend yet, but I know there's simply no avoiding some degree of it. I have been doing some reading on mindfulness meditation, and it seemed to help when I had a sudden urge to get up and run during the angiogram!

We do have universal health care in Australia (the operation/hospital stay isn't going to cost anything, as far as I can tell). However, I wish I hadn't cancelled my income insurance about twelve months ago (it's actually not that bad as I'm single with no debts and don't have to earn much to make ends meet).

Sparklette: I read of your trying experiences in hospital and hope that doesn't happen to me. From what I've experienced so far nearly all the staff were helpful and friendly (including the occasional flash of unexpected kindness). However, I wasn't expecting to get kicked out each evening during the pre-op phase (I did spend a lot on taxis that week!). Hope everything gets better for you from now on.

Jim: thanks for your welcome. I was taken aback by the 'elective' classification as well, but no one at the hospital has suggested it should not be done as soon as possible.

This is becoming another long post so I'll just ask one question. I'm going to my parents' place in Sydney after the operation but I wonder if anyone could give me some idea as to how long it generally takes (complications aside) for someone to survive on their own. I'd like to get back to Armidale about a month after the operation, if possible, partly to start local rehab programmes. I don't need to drive in Armidale until I can do so safely and I could get groceries delivered easily enough. I wonder if there's any other potential problems?

Andy.
 
Hi Andy, just wanted to say welcome and good luck with your surgery in january. I can't help with your question, as my son is a child and he bounced back straight away. Everybody will be different in getting back to doing things for them self but i'm sure somebody can give you better answers. All the best.
 
Hi Andy and welcome to the forum - always good to have another Aussie on board :D

I'm 40 and also due to have mitral valve surgery next year although mine is nearly certain to be a replacement due to the complexity of the problem. As you've already discovered - the people here on VR.COM are incredibly helpful so make sure you ask any questions you may have. I've known I will need surgery for 3 years - can't imagine what a shock it must have been for you to find out like you did.....

All the best and make sure you let us know when you get a surgery date :)
 
Welcome, Andy. I'm glad you have posted. Please be sure to let us know your surgery date as we like to put you on the calendar and make it "official".
 
Hi Andy and Welcome. I passed out twice too. I can not imagine passing out while swimming. Hope you get your surgery soon. I too was surprised to see they used the term "elective". Best of luck to you. Hope you get your date soon.
 
Hi Andy, from another Aussie! :D Bugger about your surgery being delayed, but better safe than sorry.

Well, Wednesday will be 3 weeks since my surgery (which was also my birthday - speaking of stuff you can live without on such a day!!) and tomorrow my second week out of hospital - and I am feeling stronger and better every day.

Today is my first day pretty much by myself... my BF's parents were here for a week and (thankfully) left on Saturday, and my BF is back at work after having taken a week off after my surgery to look after me. At the moment I am still struggling with the weight restrictions which mean I can't lift anything heavier than 2-4kg, but I'm now able to bend down to get things off the floor and can reach things just above my head, which I couldn't do a week ago!

I've managed to make a couple of simple meals in the last couple of days and am able to shower and dress without any problems. It's going to be a while before I can vacuum/mop/hang laundry... but I have a local community health centre who can provide help with these things at a pretty minimal cost.

I reckon you'll do just fine a month after surgery on your own... and don't be scared to ask friends and neighbours for a hand if you need to. Trust me - people are more than happy to help you out (almost TOO helpful!!).

Meanwhile, I hope you get your date soon!

Cheers,

Anna : )
 
It depends on Australian rules about driving. Here in the USA, if you have power steering, good weather, an automatic transmission, and nothing that requires more than 5 kg effort, you probably can drive within two to three weeks of coming home. I waited until about 3 1/2 weeks post surgery since my mother (first two weeks), then my sister-in-law (third week) were able to take care of me while Laura worked. After that, I was responsible for driving my preschool daughter home from school, and both kids to after school programs. It was icy and winter in early January, but I managed to safely drive wherever I needed to go. I had to go 15 miles (25 km) my first day driving to get to my cardiologist appointment, and had no difficulty then or since.

Do you have a car? Also do you have a mobile? I assume that's what cell-phones are called in Australia? If so, you should be okay on your own as long as you regularly check in with people and have someone who has a key to your home if you have trouble and don't make contact. Take care and keep in touch.

Chris
 
kings cross

kings cross

hey westie

so st vincents must be slap bang in the middle of kings cross! well, you might be able to slip out for a quick beer, but i can assure you the area's other delights will be the very last thing on your mind post op!

my surgeon cleared me for driving just under 4 weeks weeks post op, the first days driving was a bit of an effort but after that i drove my manual ute all the time without any drama's.

but straight up, you will be driving in old man mode for a while.

westie (nz)
 
It's been great to get this advice so promptly.

Chris: Someone told me you can't legally drive here until 6 weeks after the operation. I don't think I'll need to drive at all until way down the track (unless I cut myself shaving and have to get to emergency department real quick). My car is manual but has power steering. To be honest, I rarely use it as I prefer to ride my bicycle (except when it's cold, wet and windy: I'm a bit of a wuss). I suppose I won't be riding for a while either, but I'll be flying to and from Sydney and can use buses or cabs to get around Armidale if I can't walk (it's a pretty compact town and I live near the CBD). The mobile needs a new battery so I'll get that before my date with destiny.

Abbanabba: thanks also for telling me how you are getting on; information on the mundane stuff is just what I need to find out about now. I hadn't thought about putting washing on the line, but I'm sure I'll figure something out. As for the vacuum - I fear it's in for a long rest.

I also had a look at your blog which was great as I'm sure hospital procedures vary from country to country, and it's nice to get an Australian perspective. It sounds like you also had a more trying experience than it should have been, but at least you can now rebuild your life without being exhausted all the time. I'm not looking forward to the ICU tubes and IV things and their extraction, and I only recently realised where the urinary one goes! However, I'm feeling less apprehensive now about the dreaded lung vent tube, as my TOE examination seemed a piece of cake.

Deb: I don't have any intention of fainting again in the water. On one hand I was embarrassed (wondering how I'd behaved while out, however briefly); one the other hand I was a bit miffed that no one seemed to notice!

Phyllis and Paula: thanks for the welcome. I'll definitely post the operation date when I find out.

Aussiemember: I'm not sure the long-term limbo would be much better than my short- term experience. I'm resigned to the need for surgery but I do feel a bit powerless in respect of the outcome. One of the main things I've found out from the forum is that Warfarin is probably nowhere near as bad as I thought it would be. I just hope that if I end up with a St Jude mechanical valve it doesn't tick too loudly!

Thanks again to all,
Andy
 
Westie

'Old man mode': that's all I probably needed to know about driving!

As for the delights of Kings Cross, I'm just an innocent boy from the suburbs/bush. I must say it seemed quite tame during the day, but I don't think my mum's keen on walking about at night during my stay.

Cheers
Andy
 
Andy want to welcome you and say hello

Alot of neat people and great advise given to you.

wishing you all the best with your surgery and for alot of

us,me anyway the wait is the worst,i am scheduled for 2nd surgery

the 8th of jan been off work since tests in sept and had one surgery

for aortic valve 16 years ago now 2nd will be mitral,or who knows

whats in store for me,till i get there,im a black cloud and things can

change fast for me,but ive been sick for a year and i want it over with.

glad your here with the best VR.Com you won't regret it,the people are

super.:)

zipper2 (DEB)
 
Hey Andy!

Welcome to the site! Always good to 'meet' some fellow Aussies!
Hope you have your date soon...it's the waiting part that can often be the hardest.

Keep us posted and feel free to ask questions, no matter how trivial they may seem,

Cheers,
Yolanda
 
Hi Andy,

Just wanted to wish you a warm welcome to this site. I will be sending positive thoughts your way as you get closer to the surgery date. :)
 
Hi Andy,
You have such a familiar and none the less shocking tale. I too am 42 and had little to no syptoms before my Aortic valve replacement on the 11th Dec, just a couple of weeks back. "that particular day, was a bit surreal – it was as if I was watching it happen to somebody else." I remamber writing pretty much those very words on here myself a few weeks back, that's a weird one isn't it but must be some kind of human coping mechanism ? As you see this is a wonderful place for support and understanding on a global scale.
My recovery is slow but each day I'm finding I can do a little more. The day after the op I couldn't even imagine walking around the ward but today I took my dog for a 35 min walk across some fields.
Good luck to you.
Justin
 

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