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Garyman42

Hi everyone just got the news couple weeks ago Need aortic repair/ replacement

I have had TEE and cardiac catherization done. cath revealed no blockage.

Does anyone or has anyone have a nagging cough? trouble sleeping??
when im able to sleep i wake up coughing as if lungs filled with fluid.

trying to take one day at a time and be positive.

Gary
 
Welcome, Gary. I'm glad you found us. You will find lots of good info here and lots of good folks willing to ease your way, so ask away. Let us know when you have a date and we will add you to the calendar.
 
Welcome to the forum Gary. Sorry I can't help you and the weekend can be a little slow.
But hang around, someone will be able to answer your question.
 
I had all the symptoms you are describing before my double valve replacement. I had to sleep in a sitting up position because if I laid down, I felt as though I was drowning. Very scary stuff! :eek: But once I had the surgery, I was good as new, even better & you will be too!

Wishing you all the best and welcome to VR by the way---glad you found us!!

Take care!:)
 
I had the cough thing two months before my surgery. With me, it was because I had A-Fib which prevented my left atrium to give that extra push to have the blood go in the right direction (I had severe MV regurgitation).
 
Gary,
Welcome to this site, I'm sure you will get some answers.
In the meantime try to stay calm and hang in there.
It's not near as bad as you may think, and will make a huge difference to your life.
Rich
 
Hello and welcome.
Before my OHS, I had some coughing, dizzy spells, sternum tightness, etc.
Try not to over exert yourself, and maybe you can prop up the head of your bed for sleeping.
 
Welcome to VR glad you found us. I don't have any insights to you questions as I was asymptomatic pre-op. I'm sure others will come along to share their experiences. Best wishes and good luck.
 
Hi Gary. Welcome to this wonderful community. We have many answers here, but please remember that the best answers will come to you from your surgeon and your cardiologist. What we can do here is help "newbies" formulate really good questions to take to your own doctors.

Sometimes when so much information comes at you at once, it can be very psychologically overwhelming. So please breathe deeply when you read all of our stories and opinions and confusing information. Ask as many questions here as you want/need. Work to digest the information so you will have some clarity about your situation going into surgery.

You're gonna be fine!

Best wishes.

Marguerite
 
Welcome to our World Gary !

I think just about everyone is overwhelmed when they first get the news.

Be sure to tell your Cardiologist (and PCP) about your cough and sleeping issues. They may want to put you on a diuretic to prevent excess fluid buildup which puts an extra strain on your (compromised) heart.

In the meantime, you might want to try sleeping on an incline (wedge pillow or extra pillows piled to form a wedge).

Be glad they discovered your condition in time to get it FIXed. Hopefully you will take some comfort in knowing that most of our members have been through it and survived. (The others, like you, are still in the "waiting room"). Oh yes, almost all agree, the WAITING is the Worst Part of the whole experience.

Browse around and ask any Questions that come to your mind. Someone should have the answer or be able to point you in the right direction.

'AL Capshaw'
 
first, welcome to the crazy family. Second, few of us are medical professionals, just people like yourself, but most have climbed the mountain. Third (and last) we all have had different experiences, some have been out of hospital in three days, some taken a long time to heal etc.; so, ask questions, and expect a full range of responses!

Stay positive, and believe us when we say that (after the shock :eek: of being told you need OHS ) the waiting is the worst
 
Garyman, Glad you found us and most have or are in the same boat.

I can sure identify with dizzy and cough,the edema in my legs

has attacked my chest and back and i can't breath im basically now

sleeping or try to in sitting position.

It is a shock to get the news of surgery and 2nd for me but i do echo

the others here the wait is terrible.

Had my cath and tee sone and home sept 22nd and now awaiting

the call for surgery,my first i pushed 16 years ago to an emergency

i refused to accept the news,this time i wait and most of us,the

wait times differ for everyone,some in afew days ,others have to wait

afew weeks.I'm in Canada and already had to wait 2 months.

maintaining my health as i wait has been a test as while waiting

is difficult it like being hospitalized at home and my Family dr has spoke

to my surgeon and together are doing some nesesary med changes

till i get my call ,you will feel so much better when your surgery is

completed and ask away any questions. you have come to the

right place and let me say welcome to the clan i do agree you

will fit right in :)


zipper2 (DEB)
 
Let me join everyone else in welcoming you to the forum. I am a "newbie" too, just had my AVR in August, but I have found this forum to be a great help.

ALCapshaw2 said:
They may want to put you on a diuretic to prevent excess fluid buildup which puts an extra strain on your (compromised) heart.

In the meantime, you might want to try sleeping on an incline (wedge pillow or extra pillows piled to form a wedge).

Oh yes, almost all agree, the WAITING is the Worst Part of the whole experience.
Click to expand...

I was on a diuretic, actually still am on it, if you aren't taking one now ask your doctor. I also found a wedge pillow helpful.

And yes, yes, yes, waiting was the worst part! Look foward to the "other side of the hill," it will be much easier then than you imagine.
 
Hello and welcome Gary

All of us were overwhelmed when we were first told. The reason were all here is to help alleviate a lot of the anxiety your having at this moment. Somehow, people think that valvereplacement is equal to death. Maybe true many years ago, but it's almost a perfected science today. Almost.

Read around the forums and use the search feature for answers and if you can't find what your after, just ask. I don't think there is anything we haven't covered a few times over and don't mind covering again.

Trouble sleeping is almost universal with us.
The cough....did they say anything to you about your aortic root being dialated or aneurysm?

It would be most important for you to get copies of your tests for your own records. You'd be surprised at what things are said on the reports that aren't said to you.
 
Thanks

Thanks

I want to thank everyone for thier support. I am glad I joined.



Gary
 
Hi Gary - welcome aboard.

I can really relate to that coughing thing at night. I'm a few weeks out from my PVR, but in the last few months I find once I've been in bed for a while I need to cough from time to time... it's like a tickling sensation for me, rather than feeling like I've got fluid in my lungs, but since it only ever happens when I've been lying down for a while, I figure it's probably another symptom (and when I cough it's not from my thoat - it definitely comes from deeper than that) .

Some great suggestions here though (as always) which I may have to try too.


A : )
 
you on any bp meds? Some of them can really make you cough. Altace is one of them. I was on that for some time and my cardio told me it will cause coughing. there are others, as well (bp meds)

Welcome to VR. We are glad you stopped in to join and be a part. We are here just for you. Blessins.............
 
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