My son Will was born 12/17/2005 in Rhode Island, and was diagnosed with WPW the next day, and severe Mitral Valve Regurg a week later. We spent just under a month at Boston Childrens Hospital where he underwent a successful ablation for the WPW (Dr. Triedman - he was super!!) We are now at home waiting for Will to get bigger so they can try to sugically repair the valve. He's 10 lbs, 7 oz (born at 9lbs 2oz), and they would like him to be 15 lbs before surgery. Anyway, we have been told that severe MR in infants is extremely rare, and we have been searching and searching for info (not much luck) and or others. Anyone have any info or know of anyone dealing with MR in a baby??