Eat the elephant one bite at a time
- Feb 10, 2007
- louisville, KY USA
I am so pleased that you are able to get some support for the psychological side of this. I guess it was a great shock to you and I can understand the feelings of grief you have at the thought of losing the ability to live life as you do now. Try to remember how far this kind of surgery has progressed. The vast majority of people do get back to a normal life after recovery. Please try not to Google as that will mostly be incorrect doom and gloom. I wish you well on your journey, and good health post op.I have an appointment with a health phychologist who treats people like me who show an intense grief response to these types of situations. He also suggested that a condition known as Tomophobia may be a real possibility with combined pre surgery PTSD as a reaction to the diagnosis. It does apparently cause some very irrational thoughts /actions that my head is full of. It isn't rational to have and deeply love three young children and yet refuse corrective surgery but that is where my head is. I appologise if my posts have offended any of you it was never my intention.
I think I'm going to set a goal of doing that after my surgery! Then again, that probably carries a higher risk of mortality than the surgery. Ok, so, I'll choose a little lesser peak to conquer, like 22,000 feet, lolWell ... you could climb Mt. Everest
My Turn: Climbing Everest with a 'Bionic' Heart (newsweek.com)
Points well taken. Then again, there is always the hope that we could just magically "get better"I have a good friend who was riding his bicycle home from work in the bicycle lane. He was hit from behind by a car (driver was fiddling with their phone and crossed the lane).
He woke up in hospital with the news he was quadriplegic and would never walk again, perhaps never use his arms.
He was a programmer, so typing was what he did.
Many would (and do) give up, but as he had 2 lovely young daughters and a wife who loved him he stuck with it.
That sheet takes bravery because you know its the rest of your life like that.
I take my hat off to him
So what is the point?
I think monty python clarifies this well
ecce homo, ergo elk
my point is clarified here:
Indeed. I've lost two friends and a grandfather to pancreatic cancer. As well as a cousin to brain cancer at age 44. I would take my BAV with severe aortic stenosis diagnosis any day. As you note, we have a surgery option which will extend our lives. Many are not so fortunate as we are.I know two people who are dying of pancreatic cancer. They would give anything to be in your shoes where a surgery would extend their lives.
Honeybunny's comments hit the bullseye. I remember when I was in my hotel room at the Cleveland Clinic before surgery. I was very confident, because everything I had read suggested the odds were overwhelmingly on my side. I looked out and saw the cancer center, and told my wife I would be considerably more concerned - even scared - if I was headed there. The difference is that cancer is a treatment that you hope results a cure (and thankfully, depending on the cancer, it usually is); heart surgery is a repair...kind of like fixing a car. Your feelings and fears are real, but doing nothing guarantees you that the car will wind up on the junk heap. Neither you nor your family want that. Just remember, odds of dying young, and probably with a sharp deterioration in your quality of life, are pretty much guaranteed if you do nothing. Odds of you living and thriving are high if you do something. And before you know it, this will all be in the rearview mirror....and you will get on with the rest of your life. Glad to hear you are getting some help. You have a full community of people cheering you on.I know two people who are dying of pancreatic cancer. They would give anything to be in your shoes where a surgery would extend their lives.
Have you ever read the information that comes with Prescription drugs? They list all kinds of hazards, most of which are very rare. You do a disservice to yourself and this community by listing all the things that you say you can't do after surgery, yet those of us who have had the surgery are doing all the time. Frankly your surgeon is wrong to tell you to ignore online groups. Has he ever had the surgery himself? We have and we know intimately what it's like to face OHS, to have OHS, and to recover from OHS. This group was a tremendous help to me though the process.The points I made admittedly in my state of despair are all factual possibilities experienced by many and in part articulated as possibilities by my surgeon.
Art, you have a great attitude. We can focus on the bad hand that we feel that we have been dealt and believe that life is terrible or we can focus on the joys of life. No one can deny that life is tragic. Ultimately, it is like watching a movie- we know that the ending will be a bad one. Something will get us all in the end. But, what do we make of our lives along the way? We can love one another and help other people and be thankful for each day that we have.I had the a rotten year. January my sisters husband died ( he was part of the 2% ). March my brother died from cancer on his brain. My mother-in-law also died in March. In April I got the virus which has left me with some long term problems. I had a TIA in September and later had a MRI to check for any damage to my brain and they found some scarring. I also had a wonderful year I survived the virus, my daughter got a "très bien" in her BAC and is now studying Law in Paris. We had 3 week vacation in France and Spain. My wife is working from home and loves it. Most days I play table tennis and cycle 20 or 30 kilometers. Our bank balance is very healthy with our lack of ways to spend with the curfew here in France. I am a the glass is half full guy and love my journey through life as I do not believe in life after death. Jannerjohn I had my first OHS in 1966 when I was 15 years young.