What have you been doing lately?

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ValveAdmin

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Apr 9, 2019
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163
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SE USA
I thought it would be fun to share what we've been doing lately. Things like taking a long drive in the country, or playing piano, or going to a play.
What have you been up to lately?

I admit, I'm the type to take drives in the country. What have you been doing?
 

Ryanvs

Well-known member
Joined
Jan 10, 2016
Messages
116
Location
Newcastle, New South Wales, Australia
Well, I got a notification today to share what I'd be up to lately and I thought why not, sounds like fun. I was originally a pretty active member of this forum for the first year or so post opp, and I found it was a great help to mentally work through quite a difficult time in my life. The support from the members here is fantastic, and although I haven't contributed in a while, I still get daily emails and every now and again read the posts out of interest. Anyway, I'll keep it brief.

* I turned 37 in April this year, and had my Aortic Valve replaced on April 12, 2016 at the age of 31.
* After advice from the group, I purchased a CoaguChek XS System and self monitor my INR, testing weekly. My surgeon suggested I aim for an INR of 2-2.5, I take 6.5mg of warfarin each day, and I generally sit around 2.2. If I go to 2.7 (for arguments sake) I don't stress, but monitoring weekly it allows me to see trends and adjust if needed.
* I've found paracetamol has a rather sizeable impact on my INR, however as I often take this when I'm unwell I wonder if having a virus can also increase INR :unsure: (I'm no doctor, I just wonder)
* I drink, in moderation, some weeks I may only have 1 or 2 after work on Friday or on a Saturday evening. Other weeks I might have more if its a social gathering. Nevertheless, I don't stress about it, and I make sure I'm in a safe environment.
* I had a paravalvular leak repaired in 2018, its not completely fixed however it is now considered 'minor'.
* I took the family to Disneyland (Anaheim) in 2019. Seeing the look on my kids faces was one of the greatest moments of my life, and made me thankful of the second chance I'd been given. 3rd chance even? I've had 2 OHS and the plug done.
* I exercise mostly everyday, running 3km in the morning plus soccer training in the evening once a week.
* Yes, I play soccer with the local all age team. We're a lower division team, so its not too fast paced, but can be competitive. My cardiologist was ok with me playing. His comments were "... the risk of bleeding is a concern, but I have no worries from a cardiovascular perspective. I have patients who surf and mountain bike ride, so I often feel the benefits in respect to fitness and mental health outweigh the negatives". I don't 'head' the ball, the team knows this, but we can play around it (fortunately I can run so I'm ok at getting out into open space on the wing). I of course can't control opposition players, but with that in mind I also won't get under any 'high' balls. I get the odd bruise and bump, I've strained muscles, but nothing I can't handle. I made sure to purchase the best shin guards I could find.

I think that's it, any questions from old or new members, let me know.
 

pellicle

Professional Dingbat
Joined
Nov 4, 2012
Messages
10,073
Location
Queensland, OzTrayLeeYa
What have you been up to lately?
Building a shed, fitting out the solar based electrical system.
Building a few small things
Making a solar floor heating system for my house
Riding my bicycle for fitness and transportation
Riding my electric scooter for fun and transportation
Being eccentric
Helping a few members here with INR management...

Such is the life of a professional dingbat
:)
 

Suckyvalvegurl

Well-known member
Joined
Jan 26, 2019
Messages
72
Location
Tx
Working, playing, exercising and enjoying life 3 1/2 years post AVR. Finally had an echo early spring (I was too afraid to do it sooner) and all normal.
 

KLS39

VR.org Supporter
Joined
Dec 21, 2021
Messages
67
Just over a year post op.
Working out 6 days a week.
Spending time with my kids and grandkids.
Will soon be spending time in the pool and going oversand to the beach with friends and family.
My husband just retired, and we have already booked a trip to Iceland in the fall and a cruise to Alaska to celebrate my 60th birthday next June.
My husband has Spinocerebellar Ataxia 3 so we plan on doing as much traveling while we can. :)
Feeling so lucky and blessed.
 

carolinemc

Well-known member
Joined
May 31, 2010
Messages
1,201
Location
kansas city, mo
I thought it would be fun to share what we've been doing lately. Things like taking a long drive in the country, or playing piano, or going to a play.
What have you been up to lately?

I admit, I'm the type to take drives in the country. What have you been doing?
Trying to enjoy this more happy summer than we have had for two years. Getting out more, walking a little bit. And happy to just sit outside and feel better.
 

pcannon

VR.org Supporter
Joined
Nov 28, 2020
Messages
12
Location
Outside Philadelphia, PA
I’m 2 years post op, mitral valve replaced, and doing a lot of camping. Spent the winter in my small trailer camping all over Florida and now spending a lot of my summer camping with my big trailer in Lancaster, PA (that’s a permanent spot.) I try to walk daily but is difficult with the blocked artery in my leg. That happened during surgery and is a story for another day. That’s about it, have a great summer (or winter) everyone.
 

ETC908

VR.org Supporter
Joined
Oct 15, 2021
Messages
42
7 months post AVR with mechanical valve, and aortic aneurysm repair. Am back to work full time and going full steam ahead. Working out daily, and am back to pre-op baseline (was asymptomatic before). Completed a Murph challenge last week. Busy with kids activities. Traveling to the Smoky Mountains later this month.
Still learning the ways of the INR, with the assistance of pellicle :)
Appreciating being on the other side!
 

MartinF

Well-known member
Joined
Jul 10, 2016
Messages
219
Location
Southern California USA
I haven't been here for a while. We moved from CA to FL. Still settling in. And unemployed/retired, part of the great resignation I guess.
I have new doctors. My new primary care physician (actually the Physician's Assistant) is going to manage my warfarin and other BP meds. In CA it was my cardiologist. And now getting blood tested at Dr. office monthly using the Coaguchek. So no more blood draws, just the finger prick. I had to tell them my range because they didn't have my records from other doctors yet and thought it was 2.5-3.5.
Went in for a dermatologist visit and found 2 things that needed to be removed. One (a-typical mole) was last week and the second (small basal cell carcinoma) is this week. Make sure you see a dermatologist regularly!
Weight is down to 155-6 lbs. the past 3 months. This was my weight 35 years ago when I was running 60 miles a week. So when I finally get back into running I hope this helps (along with getting off Metoprolol.) I've run a few times but not consistently but still walking. Heat and humidity are taking some time to get used to.
Coming up on my 10-year anniversary with no issues. My new cardiologist ordered an echo in July.
 

pellicle

Professional Dingbat
Joined
Nov 4, 2012
Messages
10,073
Location
Queensland, OzTrayLeeYa
So when I finally get back into running I hope this helps (along with getting off Metoprolol.) I've run a few times but not consistently but still walking.
metoprolol is certainly an inhibition for running, but we have to do what we have to do.

Best Wishes and keep up the right spirit (as you seem to be)
 

MartinF

Well-known member
Joined
Jul 10, 2016
Messages
219
Location
Southern California USA
Thanks Pellicle. Previous cardiologist took me off Metoprolol last November. My running felt better a couple days after that but too much going on lately to get back into running. Still have house in CA and making monthly trips back. Will finally go up for sale in a few weeks. Then we can buy our retirement home.
 
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