Update for -Now or Never Redo

Help Support ValveReplacement.org:

harrietW

Attitude of Gratitude
Joined
Oct 24, 2014
Messages
537
Location
Magrath, Alberta, Canada
Hello friends
Thank you for all the comments and messages on my last post and for the Thoughts and Prayers on the passing of my mom 2 mtg ago today ... I miss her terribly!

After my last post l checked into hospital where l spent 2 weeks before they transported me to Calgary whee l remain now for a week 9 days. First 2 weeks just stabilizing me flushing with lasix where I lost 11 lbs of fills in the first couple of days .. I had scopes on both ends yet again they didn't find much same old story. Got a transfusion was put on "Octreeotide" to hopefully shrink "Angiodispla s" and help to control internal bleeding. New and not known that it really works giving it a try .
In 3 wks they just cannot seem to get my INR and keep me at therapeutic levels. Was transported to Calgary had my Angiogram finally on Friday night after waiting and being dropped on the list for a week. Also had all blood work done for surgery although will need another cross match of course. Hoping to FINALLY see my surgeon tomorrow with a date and plan for triple Valve Replacement removing a mechanical aortic valve and a mitral repair and replacing with bovine -aortic, mitral, tricuspid.
I have been fit to be tied most days, ready to leave a number of times. Finally had a complete melt down yesterday for the first time grieving my mom.
Waiting for tomorrow .. . in anticipation for a date. I swear if it's more than a week or 10 days I'm going home.
Double edge l was in critical condition 3 wks ago but am optimized for surgery which now puts all acute care a priority which has it's benefits. Waiting in hospital 5 or 6 weeks pre surgery is just about 4 or 5 weeks too many for this girl. I am the worst patient ever hate hospitals more than anyone and litteraly walked out and closed the door on my business without notice to my loyals of 6 yrs. They found out on a social media post l was closed immediately for an undetermined time line. It's summer and l just want to go home sleep in my own bed at night and go back to what I love doing. They have officially taken away everything else taken away everything else l love most in life "Salt" .
I will update here after l speak to my surgeon tomorrow God Willing.
P.S. l am still having all the spasms electric shocks pinching burning migraines .. Neurological symptoms l have had since Nov when l got sick /attach on my immune system. Without consult Yet from a neurologist. Rib cage spasms & migraines being front runners.


(Quote from mechanical to bovine 4 wks ago !!! )

Hello Freinds
I'm kind of hit and miss around here.
But here's a recap ..

Jan 5 /16 OHS Valve Replacement Aortic Mech Valve and Mitral Valve Prosthetic Ring . . Immediately after surgery Internal bleeding started exasperated by Warfarin.
To date approx 140 blood transfusions. (Angiodispla) throughout GI Track
Scoped to death one end or the other.
Jan/19 redo schedule for bovine ..
Got extremely sick Nov-today. Surgery postponed.

Tuesday Echo done .. 06/06/2019
Findings ..
Aortic Valve mild regurgitation
Tricuspid Valve Sever regurgitation
Mitral Valve Sever regurgitation
Atrial Severly Dialated
Diastolic Dysfunction
LVEF 60% flattened septum RV overload
RV moderate Dialated
Estimates 85 - 90%
Sever pulmonary hypertension.
Notching pulmonary artery
LV hypertrophy EF 72% Flattened septum consistent with RV pressure/overload

About covers it !!
I will be admitted into my local Hospital on Monday .. Work up will begin.
Iv lasix biggest issue keep that pressure off my heart
Scopes tests more Transfusions ct xrays
They will then transport me to Calgary possibly a heartcath

Surgery is probably 2 weeks out
Praying for sooner than later.
Praying that bleeds stop or become minimal No Warfarin
After 3.5 yrs or more hoping some sort of normalcy to my life.

Through all of this l have just spent the last 3 mths with my very sick mother whom we lost a week ago this morning.
We had a service Wednesday and they broke the news to me Thursday that l was in heart failure .. But no surprise on this end.
Rest in peace mom ๐Ÿ’”
 
Last edited:

carolinemc

Well-known member
Joined
May 31, 2010
Messages
632
Location
kansas city, mo
Hello friends
Thank you for all the comments and messages on my last post and for the Thoughts and Prayers on the passing of my mom 2 mtg ago today ... I miss her terribly!

After my last post l checked into hospital where l spent 2 weeks before they transported me to Calgary whee l remain now for a week 9 days. First 2 weeks just stabilizing me flushing with lasix where I lost 11 lbs of fills in the first couple of days .. I had scopes on both ends yet again they didn't find much same old story. Got a transfusion was put on "Octreeotide" to hopefully shrink "Angiodispla s" and help to control internal bleeding. New and not known that it really works giving it a try .
In 3 wks they just cannot seem to get my INR and keep me at therapeutic levels. Was transported to Calgary had my Angiogram finally on Friday night after waiting and being dropped on the list for a week. Also had all blood work done for surgery although will need another cross match of course. Hoping to FINALLY see my surgeon tomorrow with a date and plan for triple Valve Replacement removing a mechanical aortic valve and a mitral repair and replacing with bovine -aortic, mitral, tricuspid.
I have been fit to be tied most days, ready to leave a number of times. Finally had a complete melt down yesterday for the first time grieving my mom.
Waiting for tomorrow .. . in anticipation for a date. I swear if it's more than a week or 10 days I'm going home.
Double edge l was in critical condition 3 wks ago but am optimized for surgery which now puts all acute care a priority which has it's benefits. Waiting in hospital 5 or 6 weeks pre surgery is just about 4 or 5 weeks too many for this girl. I am the worst patient ever hate hospitals more than anyone and litteraly walked out and closed the door on my business without notice to my loyals of 6 yrs. They found out on a social media post l was closed immediately for an undetermined time line. It's summer and l just want to go home sleep in my own bed at night and go back to what I love doing. They have officially taken away everything else taken away everything else l love most in life "Salt" .
I will update here after l speak to my surgeon tomorrow God Willing.
P.S. l am still having all the spasms electric shocks pinching burning migraines .. Neurological symptoms l have had since Nov when l got sick /attach on my immune system. Without consult Yet from a neurologist. Rib cage spasms & migraines being front runners.


(Quote from mechanical to bovine 4 wks ago !!! )

Hello Freinds
I'm kind of hit and miss around here.
But here's a recap ..

Jan 5 /16 OHS Valve Replacement Aortic Mech Valve and Mitral Valve Prosthetic Ring . . Immediately after surgery Internal bleeding started exasperated by Warfarin.
To date approx 140 blood transfusions. (Angiodispla) throughout GI Track
Scoped to death one end or the other.
Jan/19 redo schedule for bovine ..
Got extremely sick Nov-today. Surgery postponed.

Tuesday Echo done .. 06/06/2019
Findings ..
Aortic Valve mild regurgitation
Tricuspid Valve Sever regurgitation
Mitral Valve Sever regurgitation
Atrial Severly Dialated
Diastolic Dysfunction
LVEF 60% flattened septum RV overload
RV moderate Dialated
Estimates 85 - 90%
Sever pulmonary hypertension.
Notching pulmonary artery
LV hypertrophy EF 72% Flattened septum consistent with RV pressure/overload

About covers it !!
I will be admitted into my local Hospital on Monday .. Work up will begin.
Iv lasix biggest issue keep that pressure off my heart
Scopes tests more Transfusions ct xrays
They will then transport me to Calgary possibly a heartcath

Surgery is probably 2 weeks out
Praying for sooner than later.
Praying that bleeds stop or become minimal No Warfarin
After 3.5 yrs or more hoping some sort of normalcy to my life.

Through all of this l have just spent the last 3 mths with my very sick mother whom we lost a week ago this morning.
We had a service Wednesday and they broke the news to me Thursday that l was in heart failure .. But no surprise on this end.
Rest in peace mom ๐Ÿ’”
Was the social media FaceBook? They have a way to make those who have a real opinion look like we are on the rampage and gonna kill someone. So sad when you are blocked for a month there. I just got off a 30 day ban cause I called someone a crybaby after being attacked by the person and he got me blocked. Hope you be back with your media buds soon So sad that you have gone through a rough patch. it will be over soon, waiting is the worst part. Good luck and keep us posted. Hugs for today.
 

harrietW

Attitude of Gratitude
Joined
Oct 24, 2014
Messages
537
Location
Magrath, Alberta, Canada
Carolinemc how are you ?
You may have misread my post ?
I have no issue with social media at all ..
That is where l get most of my client base from advertise post my work and connect with my clients. What l did was post there to let my clients know l was officially away In hospital and facing OHS. I did this as l literally only had 2 days to pack up my life close the doors on my business and walk away from it all. .. My clients got no warning as to me being away and l was booked solid for weeks. That is not exactly good for business or rebuilding it once l return. I was never kicked off or blocked from my social media. I have a brick and mortar studio l run my business out of.

Hopefully this will be over soon ...
 

carolinemc

Well-known member
Joined
May 31, 2010
Messages
632
Location
kansas city, mo
Carolinemc how are you ?
You may have misread my post ?
I have no issue with social media at all ..
That is where l get most of my client base from advertise post my work and connect with my clients. What l did was post there to let my clients know l was officially away In hospital and facing OHS. I did this as l literally only had 2 days to pack up my life close the doors on my business and walk away from it all. .. My clients got no warning as to me being away and l was booked solid for weeks. That is not exactly good for business or rebuilding it once l return. I was never kicked off or blocked from my social media. I have a brick and mortar studio l run my business out of.

Hopefully this will be over soon ...
Just was saying that Facebook has a was of shutting things down for no reason unless you say something someone does not like and they take their side if you fight back. At least this was not the case, thanks for clearing that up. Are you doing better? Hope you are and back up and running your business. Social media has many weird sides to it and be careful on facebook. Good luck in getting back and running it normally again. Hugs for today.
 

harrietW

Attitude of Gratitude
Joined
Oct 24, 2014
Messages
537
Location
Magrath, Alberta, Canada
Heart Facts โค Surgery Date
While texting back and forth with a long time family friend .. tonight. I came to a realization it's crazy !!!
Coincidence l think not !
July 7th will be 46 years since my dad pasted of a massive heart attach ๐Ÿ’” at the age of 47. It devastated our family and change the course of Our Lives. My dad was scheduled for Open Heart Surgery July 9th 1973 he never made it. He died two days earlier.

My Open Heart Surgery is scheduled for July 9th 2019 .. . There are no Coincidence in God's World. ๐Ÿ™๐Ÿ™๐Ÿ™โค

Another sign that this surgery is meant to be Now not in Jan like earlier scheduled ..
Not until my mom was called home
And not until July 9th 46 yrs later.

#angels #AngelsAmongUs
#heavensent #Godsmacked
#nocoincidence #GodisGreat
 

ottagal

VR.org Supporter
Joined
Aug 8, 2008
Messages
2,472
Location
Can.
HarrietW....wow....this surgery date is a special day for so many reasons and we will be sending out our most positive thoughts for you....You will have many watching over you....
Look forward to your post surgery post.
Thinking of you....:)(y)
 
2

Latest posts

Top