rich01
Well-known member
Does anyone know of a forum for TAVR? I've looked in the past and never found one.
Just in way of an "Amen" to Dick's post, here is a link to new message from Mended Hearts about some sources of information about the heart and COVID-19:You might also look into Mended Hearts. It is a national organization that has been around for decades as a support group for all types of heart issues. They have an online forum as well as chapter meetings in many larger cities. It is designed primarily for Bypass and Valve Replacement/Repair, mechanical and tissue,.......either OHS or TAVR patients.
This appears to offer opportunity to share info and ask questions, Rich. Perhaps you have tried it and found it is not inclusive of TAVR. But thought I would pass along the link in case it is useful. https://connect.mendedhearts.org/homeI'm a member at Mended hearts and Heart Valve Surgery. I had TAVR 6 months ago, so I understand the procedure. What I am looking for is other people who have had TAVR to share info and asks questions.
There are no posts in their TAVR forum.This appears to offer opportunity to share info and ask questions, Rich. Perhaps you have tried it and found it is not inclusive of TAVR. But thought I would pass along the link in case it is useful. https://connect.mendedhearts.org/home
P.S.: If you just enter TAVR in the search engine for this connection, all sorts of discussion seems to pop up. I hadn't really signed up for this before and participated, but now I think I will.
Second that also. I am new and facing my TAVR. Would like to see a discussion of those who have had the surgery!!!I'm a member at Mended hearts and Heart Valve Surgery. I had TAVR 6 months ago, so I understand the procedure. What I am looking for is other people who have had TAVR to share info and asks questions.
Welcome, bzam54f. I don't think you will find a lot of TAVR patients on this forum. It is made up of folks who have had tissue, mechanical or repair valve surgery and primarily younger, under 65-75 at time of surgery.....although there are a few "old codgers" who are survivors of earlier open-heart surgeries. The two forums, Mended Hearts and Heart Valve Surgery are good sources for TAVR info. Mended Hears also has chapters in many cities and you might try to find a local chapter. I used to belong to Mended Hears and it is a good support group with good info and worth the small membership fee, about $20/yr.Second that also. I am new and facing my TAVR. Would like to see a discussion of those who have had the surgery!!!
If you have any questions, there are a couple of us here who had TAVR. Mine was 16 months ago.Second that also. I am new and facing my TAVR. Would like to see a discussion of those who have had the surgery!!!