rich01
Well-known member
Does anyone know of a forum for TAVR? I've looked in the past and never found one.
TAVR Forum
- Thread starter rich01
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Help Support ValveReplacement.org:
honeybunny
Well-known member
Have you tried Meetup? They have all types of groups. You can also start one there but there is a monthly fee to have one. You might also check local hospitals. Contact their social services officer. Let us know if you find one.
You might also look into Mended Hearts. It is a national organization that has been around for decades as a support group for all types of heart issues. They have an online forum as well as chapter meetings in many larger cities. It is designed primarily for Bypass and Valve Replacement/Repair, mechanical and tissue,.......either OHS or TAVR patients.
Hi @rich01 - perhaps you could ask the technical support person, Angie, (I think that's her name) if she could add a TAVR forum here ? I think the best way to contact Angie is via the Technical support forum: Technical Support Forum
Just in way of an "Amen" to Dick's post, here is a link to new message from Mended Hearts about some sources of information about the heart and COVID-19:
Gmail
Gmail is email that's intuitive, efficient, and useful. 15 GB of storage, less spam, and mobile access.
mail.google.com
Mended Hearts is a great organization for folks who deal with all kinds of heart issues, or take care of those who do. I was our local chapter president for a few years.You might want to see if there is a chapter operating in your locality, though meetings are mostly online right now during the battle against the virus.
Here also is a link on TAVR via Mended Hearts:
TAVR - Mended Hearts Topics
Mended Hearts Topics - TAVR Mended Hearts is the world’s largest peer-to-peer support network for cardiovascular disease patients. Mended Hearts supports all cardiovascular disease
mendedhearts.org
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rich01
Well-known member
I'm a member at Mended hearts and Heart Valve Surgery. I had TAVR 6 months ago, so I understand the procedure. What I am looking for is other people who have had TAVR to share info and asks questions.
This appears to offer opportunity to share info and ask questions, Rich. Perhaps you have tried it and found it is not inclusive of TAVR. But thought I would pass along the link in case it is useful. https://connect.mendedhearts.org/home
P.S.: If you just enter TAVR in the search engine for this connection, all sorts of discussion seems to pop up. I hadn't really signed up for this before and participated, but now I think I will.
rich01
Well-known member
There are no posts in their TAVR forum.
Second that also. I am new and facing my TAVR. Would like to see a discussion of those who have had the surgery!!!
Welcome, bzam54f. I don't think you will find a lot of TAVR patients on this forum. It is made up of folks who have had tissue, mechanical or repair valve surgery and primarily younger, under 65-75 at time of surgery.....although there are a few "old codgers" who are survivors of earlier open-heart surgeries. The two forums, Mended Hearts and Heart Valve Surgery are good sources for TAVR info. Mended Hears also has chapters in many cities and you might try to find a local chapter. I used to belong to Mended Hears and it is a good support group with good info and worth the small membership fee, about $20/yr.
Your profile doesn't show your age and you are certainly welcome to join in our discussions regarding valve choices and pre or post op questions.
rich01
Well-known member
If you have any questions, there are a couple of us here who had TAVR. Mine was 16 months ago.
My sister (in NC) had a TAVR 3 years ago at age 81. She’s been doing well.
