Really appreciate that. I may take you up on the offer when the time comes. I intend to record every dose and test from day one. From reading yours and many other posts I'm pretty comfortable about AC. No worriesHappy to answer direct questions as needed. PM me if I miss them (that way I get an email notification)
You'll be welcome to.Really appreciate that. I may take you up on the offer when the time comes.
Probably not needed, just record your daily dose once at the start of the week, stick to it. Record INR at weekly testing time, and make the decision of dose the for the week in advance. Work and think in daily doses. Fir instance mine at the moment is 7mg daily.I intend to record every dose and test from day one.
Hi PAN,We used to have a "virtual waiting room" here, and I used to welcome new folks to join, hang around in the waiting room, and ask all the questions they wanted. We are here to help, however we are able. I have been less active for a bit, not for heart-related reasons, though.
I can really understand the mind games we go through. I had over 11 years to torture myself. The folks here taught me a lot about the choices we need to make, the surgery, the recovery and even things about how to control my mind so as to not go crazy while I was, myself, in The Waiting Room. It is difficult, but manageable.
One way I kept track of my own deteriorating valve was to keep an exercise diary. I have been an active gym rat for decades.
Yes, these things usually get worse. The good thing is that the greatest majority of valve patients aren't surprised when it is time for surgery. They can usually feel it coming.
Excellent, that sounds like a good plan. better than chasing your tail with small adjustments through the week. I take a BP med for the valve right now and I'm very used to taking them daily. Take them every evening, recorded on one of the many med apps available. However doubling up with a pill box makes too much sense given the importance of AC. All in good time. TOE before the end of the month, who knows could be a long way offProbably not needed, just record your daily dose once at the start of the week, stick to it. Record INR at weekly testing time, and make the decision of dose the for the week in advance.
One point that Pellicle may not have made as clear as he could have -- do your best to take the SAME DOSE every day. In his 7 mg a week example, that's 1 mg daily - I'm now taking 8 mg daily - 56 mg a week, and it fluctuates.
Fortunately, warfarin is available in a LOT of different doses, and it's possible to be able to create a daily dosage that divides your weekly dose into seven even parts (although it may take a few pills each day to do it).
You may not be doing any damage if you don't take the same dose every day, but when you go to test your INR, the value will fluctuate, based on the dose that you took a few days earlier. (For example, before I knew better, I took 5 mg a day, except for Tuesday and Thursday - If I tested on a Sunday, the result would have been different from my Tuesday result. It's hard not to react to an INR that is near the top (or bottom) of a range, but these can be considered artifacts that were based on the staggering of doses.
that's my approach. By keeping data on a spreadsheet which can be made to automatically make a graph you can see immediately if you're trending one way or another and choose to do something or not. I often say that its best to keep a steady hand on the tiller, but I wonder if anyone now days understands what that means.So the take away is to treat each week as a block in time. Calculate daily dose required and stick to it to give best chance of consistent results. Adjust on a weekly basis for the same reason. Seems straight forward