I've had fatigue and memory loss since the last valve replacement . I was born with aortic stenosis and had my first valve surgery when I was 8. Three more valve surgeries after that for a total of 4. I have a 17 mm St Jude valve and my surgeon also told me that was the only one he could fit. I think it's the smallest one they make. Do you know how common this issue is?Here I am !
Yes, I’ve got moderate patient prosthesis mismatch. My main symptoms are that I never got back to the level of fitness and strength I had prior to aortic valve replacement. My pressure gradients were quite high immediately post surgery and have steadily risen - last year when the valve was four years old the peak gradient was 58mmHg and the mean gradient 31mmHg. The "indexed effective orifice area" of the valve is 0.75cm2/m2. I have annual echos, sometimes six monthlies too. My next echo is next week.The valve has been checked thoroughly with a transoesophageal echo to see if it’s damaged - it isn’t, it’s just small. It has been explained to me by another cardiac surgeon, not the one that did my surgery, that the place where the replacement valve is implanted cannot take a bigger valve than the actual space which is measured with a “sizer” during surgery in the operating theatre. A bigger valve can be implanted supra-annually (I’ve no idea why that wasn’t considered for me).
What are your symptoms Denise ?
Hi @Denise1I have a 17 mm St Jude valve and my surgeon also told me that was the only one he could fit. I think it's the smallest one they make. Do you know how common this issue is?
Hello, I now have a St Jude mechanical valve. I was told by my surgeon that because of all my prior surgeries there was alot of scar tissue which is why he had no choice but go with such a small valve. I will definitely research Dr. Pibarot, thanks for the info!!Hi @Denise1
I don’t know how common PPM is, there’s only ever been one other person apart from me, and now you, on forum with PPM as far as I know. There's a lot about it on the internet. I emailed one of the cardiologists who has written several papers on it: Dr Philippe Pibarot (do a search with Philippe Pibarot PPM and you will get lots of hits). Dr Pibarot very kindly replied to my email - he was able to tell just from my weight, height and replacement valve make and size that I have PPM. When I was formally diagnosed with PPM, I and the cardiac surgeon talked about Pibarot - cardiac surgeons refer to him a lot.
Is your St Judes a mechanical or tissue valve ? The surgeon I saw told me that mechanical valves give more valve area per size than tissue valves. Stentless valves give more valve area than stented valves too. Repeated surgeries mean more scar tissue and less room for the replacement valve. And doing root replacement to fit a bigger valve is quite a risky surgery.
I don’t know why I’ve got PPM as I’m absolutely average height and very slim. I think possibly it is that I have a small chest cavity as I have pectus excavatum so my heart is smaller than normal and therefore could only take a small replacement aortic valve which is too small for my body size. I was born with pectus excavatum and bicuspid aortic valve.