Quantcast

My Brother --- High Risk OHS!

Help Support ValveReplacement.org:

njean

Premium Level
VR.org Supporter
Joined
Jul 20, 2007
Messages
4,830
Location
New Mexico
A few months ago, I posted a thread concerning my older brother and how he might be facing OHS: http://www.valvereplacement.org/forums/showthread.php?39676-Now-my-brother-needs-OHS!&highlight=.

Well, the time has come and it's a lot more serious than we could have imagined! He met with the surgeon this morning, and, the surgeon told him that neither he nor any other surgeon in this area would be willing to tackle the surgery!

Apparently the infection he had this summer was indeed endocarditis; and it hid in his heart causing extensive damage. The doctors here just don't have the expertise to deal with it! And on top of that, he's got an artery that is 70% blocked, so that needs to be addressed too along with the valve issues. So he is being sent to the Mayo Clinic in Phoenix and his surgery will take place apparently this coming Thursday.

I had dreaded this scenario in my mind so many times when he had that infection and the fact that the doctors here could not find it and kept giving him massive doses of antibiotics and still could not arrest it! If only he had listened to me and gone to either Phoenix or Houston liked I had told him to!

A dear cousin of ours will be traveling with him to Phoenix so we have comfort in that, but it's going to be very stressful for the next few days. Please keep him in your prayers!

And when it rains it pours, my friends ..... my DH will have to undergo a heart cath on Monday of next week. The stress test that he had two weeks ago, showed that he may have some blockage on the left side of his heart! So I'm being torn apart right now! (My poor hubby didn't want me saying anything about his situation and I've tried to keep it within myself.....please, please keep him in your prayers too! Thank you~!)

One more note -- I just spoke to my brother again and he told me that the doctor (surgeon) told him that they were going to have to go with a cadaver tissue valve instead of the mechanical he had hoped for. And the reason for that is because the infection (endocarditis) had eaten away at the surrounding tissue where the aortic valve is. The first thing that came to my mind, although I didn't say it, was the possibility of rejection!
 
Last edited:

chaconne

Well-known member
Joined
Jun 30, 2011
Messages
411
Location
Southern California
N. Jean,

My heart goes out to you and your family. You all will be in my thoughts and prayers. I think many of us on this forum know the stress that goes along with these events.

God Bless,
-Steve
 

Eva

Miracle Believer
VR.org Supporter
Joined
Aug 8, 2008
Messages
4,232
Location
Redondo Beach, CA
Oh no! What a stressful time, my dear Norma. Will keep you all in my prayers, hoping all will go well.

((hugs)):angel:
 

kfay

Well-known member
Joined
Dec 5, 2007
Messages
1,906
Location
North Carolina
Norma, sorry to hear about your brother having to travel, but at least you know he is in good hands and will be well looked after. I'm glad that his local Dr's at least told him they were in over their heads instead of trying to sort him out. Too bad they didn't do it earlier before so much damage was done. I'm pretty sure that human cadaver valves are not subject to rejection, hence the no need for anti-rejection meds, so put that thought to rest.

I believe your husband will be good. On the bright side, know that if he was really severe or they were very concerned, he would have been cathed right then. So, here's hoping to a very good report on him, or at the very worst, a stent that can be put in and he won't miss a beat.

Don't worry so much that you make yourself sick. It sounds like they are both being well looked after.


K
 

njean

Premium Level
VR.org Supporter
Joined
Jul 20, 2007
Messages
4,830
Location
New Mexico
Norma, sorry to hear about your brother having to travel, but at least you know he is in good hands and will be well looked after. I'm glad that his local Dr's at least told him they were in over their heads instead of trying to sort him out. Too bad they didn't do it earlier before so much damage was done. I'm pretty sure that human cadaver valves are not subject to rejection, hence the no need for anti-rejection meds, so put that thought to rest.

I believe your husband will be good. On the bright side, know that if he was really severe or they were very concerned, he would have been cathed right then. So, here's hoping to a very good report on him, or at the very worst, a stent that can be put in and he won't miss a beat.

Don't worry so much that you make yourself sick. It sounds like they are both being well looked after.


K
Thank you Kimmie! Yes, that does comfort me to know about the cadaver valves. I was not aware of that!

And I am praying and hoping too that my husband's situation is not dire enough to require surgery.
 

njean

Premium Level
VR.org Supporter
Joined
Jul 20, 2007
Messages
4,830
Location
New Mexico
Prayers and positive thoughts for your brother, husband and you. Wish we could all do even more.
Thank you very much for the kind words and prayers! It's all in God's hands....all we can do is pray and think positive!
 

njean

Premium Level
VR.org Supporter
Joined
Jul 20, 2007
Messages
4,830
Location
New Mexico
Oh no! What a stressful time, my dear Norma. Will keep you all in my prayers, hoping all will go well.

((hugs)):angel:
Thank you for your prayers my dear Eva! God Bless you!
 

njean

Premium Level
VR.org Supporter
Joined
Jul 20, 2007
Messages
4,830
Location
New Mexico
N. Jean,

My heart goes out to you and your family. You all will be in my thoughts and prayers. I think many of us on this forum know the stress that goes along with these events.

God Bless,
-Steve
Thank you very much Steve!

Yes it's a stressful time...but we'll weather this storm together!
 

ottagal

VR.org Supporter
VR.org Supporter
Joined
Aug 8, 2008
Messages
2,521
Location
Can.
Norma,
Please count me in as keeping you, your hubby and brother in my thoughts and prayers.
What a stressful time for you. Hang in there ...
 

Jkm7

Well-known member
Joined
Oct 15, 2005
Messages
4,384
Location
Massachusetts
Norma,

Sending you and your family all good wishes for successful outcomes from the medical situations they are experiencing. It is good your brother's doctors were wise and professional enough to know he needed to seek more sophisticated, experienced surgeons.

Please let us know how both your dear brother and husband are doing. Remember to take care of yourself throughout.
 

Bina

Premium Level User
Joined
Feb 22, 2007
Messages
12,716
Location
East Ontario, Canada
I do know of someone in my town who had a cadaver valve for several years. Your brother should be fine with it, especially since he is
going to a great hospital. But I will push tons of good vibes anyway, and save some for your DH on Monday.
Big ((hugs)) to you NJ :)
 

Freddie

Well-known member
VR.org Supporter
Joined
Jul 19, 2007
Messages
5,940
Location
Canada
Mom, you, your brother and hubby are in my thoughts. Maybe your brother will listen to you the first time from now on - men.

With all of this going, make sure you take time to look after yourself.

Special ((((hugs)))) coming your way.
 

epstns

Premium User
VR.org Supporter
Joined
Dec 26, 2002
Messages
5,155
Location
Chicago area
Norma - I just "tuned in" and saw this. So much, all at once. Of course our prayers and thoughts are with you all.
 

njean

Premium Level
VR.org Supporter
Joined
Jul 20, 2007
Messages
4,830
Location
New Mexico
Norma,

Sending you and your family all good wishes for successful outcomes from the medical situations they are experiencing. It is good your brother's doctors were wise and professional enough to know he needed to seek more sophisticated, experienced surgeons.

Please let us know how both your dear brother and husband are doing. Remember to take care of yourself throughout.
Thank you and yes I'm very relieved he's going to a wonderful center with very experienced doctors!
 
Top