Wow! You were so small & young when you had your surgeries. That must have been terrifying for your folks and you, although at four, could you fully understand? Also, I would have thought that a valve that would fit on a small person’s valve wouldn’t fit an adult sized heart.Hi,
I had my mechanical valve (19mm St Jude) for 34 years (I was almost 4 when I had it done). I had a congenital defect-hole in heart that needed repairing and then once I was opened up they realised the valve had prolapsed. They were going to wait until I was 10 but it then very quickly became a ‘we must replace the valve now’ moment. This resulted in 3 surgeries in 10 days for a tiny almost 4 year old.
I’m currently waiting for the call to have it replaced-growing into an adult and a pregnancy has taken its toll. Could be any time now-once Covid allows!
Life on warfarin has not been an issue and I will be requesting another mechanical as it has always served me well. Warfarin has not stopped me doing anything I wanted. I was on tinzaparin injections twice daily whilst pregnant but apart from that, it’s been pretty straight forward.
Thank you for participating in the research. That will help so many folks in the future.