Finaly its going to happen friday the 23st

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sarashreen

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May 28, 2015
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PA, USA
Thank you for your reply, will let you know when i get my answhere from the surgeon aboit the technique.
Also the best of luck for you the comming period.
My three mounths of waiting where pretty hard and stressful, how is that with you..?
Yes. It is stressful for me and my husband. It is more stressful thinking about surgery every second when waiting for surgery. Hoping to pass the bridge successfully
 

Survived03

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Hi there, after 20 years the time finaly came. I am getting the Ross procedure done comming friday.
I found out 20 years ago that i have a bicuspid aortic valce thats hase caused an aneurysma.
For 20 years they monitored the aneurysma but it didnt expend.
Now it is my valve that is the biggest problem, because its suddelny calcified...
I thought my choise was between an biological en mechenical valve but the docters offered me the Ross procedure.
After a long time of thinking it over i made the decision for the Ross.
The hospital just let me know that it will happen comming friday the 23ste.
I am 45 years, overall in good condition and not aware of any other condition.
I am pretty stressed about it but also tired of the idear that it needs to be done, now i just want it be done.
So its going to be a special Christmas for me this year....
Its going to be done in the Netherlands, Leids Universitair Medisch Centrum, its one of the best known Hosspitals in the Netherlands.
So i trust that everything will be fine in the end....
Good luck Raol! I wish you a a safe procedure and quick recovery.
 

pellicle

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Nov 4, 2012
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Queensland, OzTrayLeeYa
this data published 2001(21 years agi)
so?

Do you think that we're doing it worse now? (but doing the Ross better?)

Look, don't get me wrong, I have no skin in your game. But let me put it this way.

In Japanese style things they call what we'd call Teacher as Sensei, it literaly means living before (you).

Accordingly I was living before you, so I've had 3 sugeries already and come to understand a few things you may not. No matter what I say the main point is I'm 58, I'll be dead by the time you are finding out what those other two posters found out.

The other thing I've learned in my "living longer" is that people have crummy sense of risk analysis ... frequently based on the view of "it won't happen to me" or "I'm feeling lucky"

Casino's make money on that and so do surgeons.
 

ValveAdmin

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Hi there, after 20 years the time finaly came. I am getting the Ross procedure done comming friday.
I found out 20 years ago that i have a bicuspid aortic valce thats hase caused an aneurysma.
Hey Raoul,

I wish you all the best in your surgery and recovery!

Welcome to the forum.
 

tommyboy14

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Mar 17, 2014
Messages
85
Location
London, United Kingdom

So the quality of any individual propensity matched study depends on the data available to match patients. National registers usually have less data on individual patients than hospitals.

If you look at those propensity score matched studies done by hospitals:

Their statistics imply no survival difference between Ross procedure and mechanical AVR.

Anyways, there is no clear answer on whether the Ross is a better operation or not. There is currently a randomised control trial on going to answer that question, but we will only know the answer in 20 years time, which of course will not help anyone today.
 

tom in MO

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Jan 17, 2012
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MO USA
That are some good questions, all i know is that the hospital is one off the best ones in the Netherlands and that the surgeon is the head of that hospital. He normaly does children (baby's and older), so he has got alot of experience with the Ross.
All those other questions about size and all are to difficult for me to understand.
I have faith in the hospital and faith in de surgeon. I also understand why rhis could be a good option for me. So i am happy that they gave me this option.
Reading this forum made me think less negative about warfine, so if during the operation he findsout that it is not as promising as the thought, they will give me a mechanical.
Still thinking and hoping it will go as planed and getting the Ross
Good decisions all around. Rest easy with your choice.

Some people think "due diligence" is micromanaging the process. That's not really possible unless you are both a cardiologist and a cardiac surgeon...oh and you need to be a statistician to judge the statistics :)
 

Raoul

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Joined
Nov 10, 2022
Messages
26
Location
Netherlands
Good decisions all around. Rest easy with your choice.

Some people think "due diligence" is micromanaging the process. That's not really possible unless you are both a cardiologist and a cardiac surgeon...oh and you need to be a statistician to judge the statistics :)
Thank you..
 

PAN

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Oct 17, 2019
Messages
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Location
UK
Hi there, after 20 years the time finaly came. I am getting the Ross procedure done comming friday.
I found out 20 years ago that i have a bicuspid aortic valce thats hase caused an aneurysma.
For 20 years they monitored the aneurysma but it didnt expend.
Now it is my valve that is the biggest problem, because its suddelny calcified...
I thought my choise was between an biological en mechenical valve but the docters offered me the Ross procedure.
After a long time of thinking it over i made the decision for the Ross.
The hospital just let me know that it will happen comming friday the 23ste.
I am 45 years, overall in good condition and not aware of any other condition.
I am pretty stressed about it but also tired of the idear that it needs to be done, now i just want it be done.
So its going to be a special Christmas for me this year....
Its going to be done in the Netherlands, Leids Universitair Medisch Centrum, its one of the best known Hosspitals in the Netherlands.
So i trust that everything will be fine in the end....
Best of luck for your surgery. Before you know it, you'll be home 😀
 

csigabiga

Active member
Joined
Jan 23, 2018
Messages
31
Location
Toronto & Tel Aviv
Hi Raoul,

I was in your shoes when I just turned 33. I had my first surgery with a bio valve back then. I just had my second heart surgery in May to get a mechanical valve (I couldnt have a Ross due to large aortic annulus). I found that the hardest thing is actually making a choice that is right for you and you are happy with.

I wish you the best of luck with your surgery ad will keep my fingers crossed for you that day. Having been through surgery twice, I can tell you it isnt fun at all, but modern hospitals and all of the cardiac nurses are amazing in helping you back on your feet. I suggest you take a good book (or your tablet with some fav netflix shows downloaded), some warm clothes (My room was really cold and despite asking a number of times, me catching a cold, it still wasnt possible to make it warmer), good external comms (I.e. phone etc) and finally, I took my own pillow - I found it reminded me of my home and my family when I was lying there sleepless at night.

Best of luck and please do let us know once you are on the other side.

Tommy
Hi Tommy. Can I ask how old you are today (how long before the bio balve failed)
 

Raoul

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Joined
Nov 10, 2022
Messages
26
Location
Netherlands
Wish you good luck and for speedy recovery. Which technique you are going to undergo in ROSS?

Here some info about ROSS techniques.

Which ROSS procedure technique ? Autograft rafting or sub coronary?


View attachment 888941


Reference:- Commentary: Bespoke Ross procedure: Best fit for patients with aortic regurgitation?
Hi, i am now in the hospital and just had my talk with the surgeon. He will perform the Dacron inclusion technique.
Damn the stress is gettting worse every hour now...
 
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