Hi Jill,Hello all,
Mathias' condition was deemed congenital (Ascending Aortic Aneurysm, BAV), and I am wondering if anyone has insight into family planning around these genetic issues or has gone through it all and their kids are just fine? I know it really scares us both to think of having a kiddo go through all of this crud, but we have always wanted a family. Is there anything we/I can do to help prevent this from happening to my future children? Should we plan to not have children at all and explore alternatives? Should I consult a genetic counselor? Any advice or experiences would be so helpful. Just talking with you all is so helpful. I'm so grateful to have found this platform.
With our marriage pending (probably less than a year!), I want to start the kids discussion with doctors now and make sure all of our ducks are in a row before we do start trying.
Thank you in advance!
I found out last year that I had a BAV and Ascending Aortic Aneurysm. Had repair and Bovine valve last May. I am 50 and have three children 12,15 and 17. I did not know I had a BAV and have lived a very active life. Many physicals and check ups through youth sports and never had an issue. Found out accidentally through a Calcium CT scoring.
All three kids have been checked and do not have BAV. I would say live your life with joy, faith and confidence that if you are blessed with children, they will be just fine.