- Oct 13, 2020
- Ponte Vedra, FL
This is the latest update: Yesterday, 2/11/21, I had a tele appointment with my cardiologist who went over my TEE results and showed me video of my valve. After reviewing she believes that I was born with Barlow's disease and that in the next 1-2 years I will need to replace my repaired valve. It is odd no one has mentioned Barlows, although many years ago when I was 18 and older Dr told me I had a click in my heart and it could turn into a murmur and worsen. I someday could have surgery!! I did at age 55!! I go back to Mayo Clinic in June for another ECHO and stress test to measure the pressure in my left atrium. The leak is approaching severe and my current pressure is 21, should it be higher I will have surgery sooner rather than later. I will also receive a tissue valve due to my age (71) and then in 10-15 years another which can be placed within the tissue valve through a catheter. I would be on coumadin for 3 months after the surgery rather than having a mechanical valve and coumadin for life. I will have to be evaluated by a surgeon to see if a minimally invasive procedure can be done. I had a mitral valve repair with the Davinci Robot in 2005. Has anyone had experience with a repair and then replacement valve due to Barlow's disease?