diastolic heart failure

[esvaja]

Well I had my 1st AVR in 2011, 2nd 2021. I just found out that I have Diastolic heart disease/failure. One of the causes may be AVR or any heart surgery or sleep apnea or a -fib or high blood pressure. Not much out there except some negative stuff. Have any of you know of it? I guess just basic heart failure might be a way to get info (of course I will see my reg cardio this week too) Totally stunned

 

[pellicle]

I guess just basic heart failure might be a way to get info (of course I will see my reg cardio this week too) Totally stunned

I got nothing more than

keep us posted

Best Wishes

 

[preciosa1974]

Well I had my 1st AVR in 2011, 2nd 2021. I just found out that I have Diastolic heart disease/failure. One of the causes may be AVR or any heart surgery or sleep apnea or a -fib or high blood pressure. Not much out there except some negative stuff. Have any of you know of it? I guess just basic heart failure might be a way to get info (of course I will see my reg cardio this week too) Totally stunned

I’m so sorry to hear this. Can I ask what your symptoms were? Do you have a mechanical valve?

 

[esvaja]

High blood pressure, heart palpitations, extreme exhaustion & I get short of breath, sometimes even when I drink a glass of water. Unfortunately this has been getting worse over 2.5 yrs. . I Even had 2 ultrasounds & 1 cath during that time. Ended up being treated for high blood pressure & had my 2nd AVR. It got so bad I finally went to the ER last weekend, actually got in this time,, Wow just wow.

 

[pellicle]

, actually got in this time

I had a similar thing last year ... went in and presented to triage. "Whats wrong" my heart rate is 140 and has been for 3 hours. "Ok, sit over there near that door" ...

 

[preciosa1974]

High blood pressure, heart palpitations, extreme exhaustion & I get short of breath, sometimes even when I drink a glass of water. Unfortunately this has been getting worse over 2.5 yrs. . I Even had 2 ultrasounds & 1 cath during that time. Ended up being treated for high blood pressure & had my 2nd AVR. It got so bad I finally went to the ER last weekend, actually got in this time,, Wow just wow.

Hopefully this is something that can be treated. You sound defeated and I just want to encourage you to hang in there! It’s good you have a diagnosis now so the dr can work on finding ways to treat it. Maybe you just need some different meds.

 

[Deepak khanka]

I suppose heart failure medication may be the solution. Wondering why ultrasound instead of echo’s. And why heart failure wasn’t caught earlier . What’s your EF?

 

[esvaja]

Hopefully this is something that can be treated. You sound defeated and I just want to encourage you to hang in there! It’s good you have a diagnosis now so the dr can work on finding ways to treat it. Maybe you just need some different meds.

Hell NO!!! I am stunned shocked. Pissed that I went through 2 AVRs & now this. But I will be seeing my cardiologist friday & hope fully he will be able to guide me as to some type of relief. I've also heard some mention of cardiologists that specialize in heart failure & I certainly will get a 2nd opinion at Cleveland Clinic where I had my 2 AVRs done

 

[esvaja]

I suppose heart failure medication may be the solution. Wondering why ultrasound instead of echo’s. And why heart failure wasn’t caught earlier . What’s your EF?

Pls don't get me going on why my cardio didn't catch it earlier. I have to move on & deal with the future. As far as my EF I haven't seen the report yet & compare it to the one I had last Feb

 

[ATHENS1964]

I suppose heart failure medication may be the solution. Wondering why ultrasound instead of echo’s. And why heart failure wasn’t caught earlier . What’s your EF?

There is heart failure and with preserved EF there is also with reduced.

 

[ATHENS1964]

From what I have read it may be due to myocardial fibrosis, many people with heart problems have fibrosis which can be detected with an MRI, I had asked my surgeon to do a myocardial biopsy because I was almost certain that I would have some degree of fibrosis.
They are either hereditary or from cardiomyopathies, they can also be caused by heart operations. Ask when you do the ultrasound if you have fibrosis and at which point of the heart, i.e. in the upper part or in the lower part. Surely the doctor will have a medicinal solution that will address the problem wherever it comes from. I know people with heart failure who have been stable for 20 years and active.
Please keep us informed and don't worry too much, find a good cardiologist specialized in this condition and a good hospital to do the MRI if and as long as needed.
Everything will be fine .

 

[Chuck C]

I'm really sorry to hear about this. Hang in there and please keep us posted.

 

[esvaja]

From what I have read it may be due to myocardial fibrosis, many people with heart problems have fibrosis which can be detected with an MRI, I had asked my surgeon to do a myocardial biopsy because I was almost certain that I would have some degree of fibrosis.
They are either hereditary or from cardiomyopathies, they can also be caused by heart operations. Ask when you do the ultrasound if you have fibrosis and at which point of the heart, i.e. in the upper part or in the lower part. Surely the doctor will have a medicinal solution that will address the problem wherever it comes from. I know people with heart failure who have been stable for 20 years and active.
Please keep us informed and don't worry too much, find a good cardiologist specialized in this condition and a good hospital to do the MRI if and as long as needed.
Everything will be fine .

Thanks for the input. It is left ventricular. I will ask about myocardial fibrosis, but if it is worse than diastolic I will be mad at you.

 

[Midpack]

I had a similar thing last year ... went in and presented to triage. "Whats wrong" my heart rate is 140 and has been for 3 hours. "Ok, sit over there near that door" ...

Hi Pellicle. What was the reason of that tachycardia? How did it resolve?

 

[Chuck C]

From what I have read it may be due to myocardial fibrosis, many people with heart problems have fibrosis which can be detected with an MRI,

They are either hereditary or from cardiomyopathies, they can also be caused by heart operations

Myocardial fibrosis is something that is good to have on our radar. In addition to possibly being hereditary, it also can develop due to left ventricular hypertrophy and ventricular decompensation, structural change that occurs in the heart as part of the remodelling that happens when aortic stenosis becomes severe. This is one of the reasons why it is of utmost importance to get surgery immediately once a person becomes symptomatic. See below.

Imaging and Impact of Myocardial Fibrosis in Aortic Stenosis - PubMed

Aortic stenosis is characterized both by progressive valve narrowing and the left ventricular remodeling response that ensues. The only effective treatment is aortic valve replacement, which is usually recommended in patients with severe stenosis and evidence of left ventricular decompensation...

pubmed.ncbi.nlm.nih.gov

https://www.ahajournals.org/doi/10.1161/CIRCIMAGING.117.007451

 

[Chuck C]

I will ask about myocardial fibrosis, but if it is worse than diastolic I will be mad at you

They are actually not completely separate things. The fibrosis can lead to diastolic dysfunction and eventyually diastolic heart failure.

Please see link below:

Diastolic Dysfunction: Causes, Symptoms and Treatment

Diastolic dysfunction is a problem with the first part of your heartbeat. It occurs when your lower heart chambers don’t relax and fill with blood properly.

my.clevelandclinic.org

 

[pellicle]

They are actually not completely separate things. The fibrosis can lead to diastolic dysfunction and eventyually diastolic heart failure.

Please see link below:

Diastolic Dysfunction: Causes, Symptoms and Treatment

Diastolic dysfunction is a problem with the first part of your heartbeat. It occurs when your lower heart chambers don’t relax and fill with blood properly.

my.clevelandclinic.org

personally I found this page helpful in keeping the important aspects of systole and diastole clearly in my mind

Diastole - Wikipedia

en.wikipedia.org

from that: