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Back on the merry-go-round, or just caffeine?

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dornole

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Jan 5, 2014
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Minnesota, US
I was going to ask the same as Mister James. If the shortness of breath gets worse when lying down perhaps that could be mitral stenosis causing pulmonary edema which is what I had. Did they do an echo? I am so sorry you are feeling short of breath. For what it’s worth I had NO edema in my legs but I sure had edema and pulmonary hypertension in my lungs. They took a ridiculous amount of fluid of me in the hospital under lasix.
 

Protimenow

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Aug 10, 2010
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California
Interesting.

I had an echocardiogram in April, before I started getting short of breath.

When I was in the hospital in late December, my heart was monitored 24/7. When I had the angiogram, they had me on even MORE leads.

I saw my electrocardiologist on 12/30, and the EKG didn't show much to worry about - but the pacemaker may have covered up most rhythm issues.

I don't know if I can have a relatively normal EKG if I was having Mitral valve problems. I expect to be seeing a pulmonologist some time in the next few weeks (if there's a cancellation and they can fit me in), and this specialist might try to rule out Mitral valve issues.

Thanks for the question - I hope to get an answer soon.
 

dornole

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Jan 5, 2014
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726
Location
Minnesota, US
My EKG was completely normal when I was in severe mitral stenosis and coughing up blood. I know because I was such an innocent at that time, that when the urgent care guy said go to the hospital and get an echocardiogram right away, I went there and said I’m supposed to get an EKG. Which they did and I went home but they called back in 20 mins after they got the order and told me to come back for an echo. Hey what did I know? Lol
 

dornole

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Jan 5, 2014
Messages
726
Location
Minnesota, US
I will say that the SoB while lying down was dramatically worse than seated and I have read that this is a common symptom of mitral stenosis. Good luck I hope they can get you sorted out. No fun.
 

Mister_James

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Aug 24, 2013
Messages
29
Location
NYC
Get an echo not EKG.
Echo looks at the heart, chambers, valves, wall thickness, blood flow.
EKG looks at electric signals.

You definitely need an echo.
 

Protimenow

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Aug 10, 2010
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3,691
Location
California
My SoB isn't worse when I'm laying down.

I saw a Pulmonologist on Monday. He took a history, he'll be reviewing the echo that I had in April. He'll review my other things in my history at the two hospitals I was admitted to in March, April, the end of May, and late last month.

My cardiologist didn't think this was a cardiac issue.
The pulmonologist thinks that it is.

Maybe when they stop fingerpointing, this will all be sorted out.

(The classic, recent, examples of fingerpointing happen when you install software or a peripheral, and things stop working. The software maker points fingers at the computer. The computer manufacturer points fingers at the software. Neither has a good answer. )
 

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