Hello,
I was born with aortic stenosis. I have been in "the waiting room all my life. I have been really bad about following up with a cardiologist. In hindsight, I've felt it for the past six months but recently I could tell things were changing. I got an email from my stepmom saying the only thing my dad wanted for fathers day was a cardiologist visit.
I decided to call Cleveland clinic Weston and made an appointment. I chose it because I work relatively close and would eliminate excuses for follow up. I went to see him on june 1st. He did an EKG and listened to my heart. He scheduled me for an echo the following Friday saying it would confirm what he was hearing. I went in for it and after the tech left quickly while I was dressing and in walked the doctor. Made my heart drop but he said he was going to work on this as a priority and get back to me.
The next day saturday I got a call from him. He first said that my stenosis was severe that I was definetly bicuspid or possibly single cuspid. He said there was calcification of the valve. He then told me of my aortic anyurism and that he wanted to order a ct with contrast. They would call me from his office Monday to schedule the ct and then on Friday a meeting with him and a surgeon. He told me no heavy lifting over ten pounds and no strenous exercise.
On Monday, the office called and scheduled the ct for Wednesday and the consult for Friday afternoon. I posted this on my facebook to update my friends. An old friend who I didn't know was a perfusionist messages me saying that she may not be in the area anymore that she would check things out for me on references on the surgeon and hospital. She called back that night and said let's find you another surgeon. My wife also knew an anstiesist and she check and confirmed my friends feelings.
Now that my wife was in a full tizzy she called a friend who got me into see the chief cardiovascular of the memorial group. I went for my ct and Cleveland. I was able to get my cd from the ct and my echo results. I dropped them off at the doctors office and was told that doctor was out till Wednesday. We wanted to get in before the Friday appointment. They got us in with another surgeon on thursday the 10th.
We met with dr perryman who happens to be the chief cardio services. One step above the other surgeon who was on vacation. He looked at the film and results. He agreed that surgery was needed. That he wanted a heart cath done first and that he was leaving for England for two weeks. He said to schedule it for anytime after the fourth of July. "whatever fits your schedule..".
So here I am looking for info and just found this group yesterday and it already had answered the majority of my curiosites. I'm joining in because I think this is great. There is so much cookie cutter info out there. As long as I understand everyone Is different I can still take averages in milestones and go with it.
So to sum it up. Heart cath tomorrow and penciled in for July 14th for surgery.
I was born with aortic stenosis. I have been in "the waiting room all my life. I have been really bad about following up with a cardiologist. In hindsight, I've felt it for the past six months but recently I could tell things were changing. I got an email from my stepmom saying the only thing my dad wanted for fathers day was a cardiologist visit.
I decided to call Cleveland clinic Weston and made an appointment. I chose it because I work relatively close and would eliminate excuses for follow up. I went to see him on june 1st. He did an EKG and listened to my heart. He scheduled me for an echo the following Friday saying it would confirm what he was hearing. I went in for it and after the tech left quickly while I was dressing and in walked the doctor. Made my heart drop but he said he was going to work on this as a priority and get back to me.
The next day saturday I got a call from him. He first said that my stenosis was severe that I was definetly bicuspid or possibly single cuspid. He said there was calcification of the valve. He then told me of my aortic anyurism and that he wanted to order a ct with contrast. They would call me from his office Monday to schedule the ct and then on Friday a meeting with him and a surgeon. He told me no heavy lifting over ten pounds and no strenous exercise.
On Monday, the office called and scheduled the ct for Wednesday and the consult for Friday afternoon. I posted this on my facebook to update my friends. An old friend who I didn't know was a perfusionist messages me saying that she may not be in the area anymore that she would check things out for me on references on the surgeon and hospital. She called back that night and said let's find you another surgeon. My wife also knew an anstiesist and she check and confirmed my friends feelings.
Now that my wife was in a full tizzy she called a friend who got me into see the chief cardiovascular of the memorial group. I went for my ct and Cleveland. I was able to get my cd from the ct and my echo results. I dropped them off at the doctors office and was told that doctor was out till Wednesday. We wanted to get in before the Friday appointment. They got us in with another surgeon on thursday the 10th.
We met with dr perryman who happens to be the chief cardio services. One step above the other surgeon who was on vacation. He looked at the film and results. He agreed that surgery was needed. That he wanted a heart cath done first and that he was leaving for England for two weeks. He said to schedule it for anytime after the fourth of July. "whatever fits your schedule..".
So here I am looking for info and just found this group yesterday and it already had answered the majority of my curiosites. I'm joining in because I think this is great. There is so much cookie cutter info out there. As long as I understand everyone Is different I can still take averages in milestones and go with it.
So to sum it up. Heart cath tomorrow and penciled in for July 14th for surgery.