49 with BAV replacement happening in 4 days (Mar 9 2022)

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djman

Active member
Joined
Mar 6, 2022
Messages
28
49 year old Canadian fortunate to live in Ottawa and to be able to have my surgery at the Ottawa Heart Institute.

Bicuspid valve.
Ascending aortic aneurysm. Aortic root aneurysm. (5cm).
Aortic stenosis, calcification, regurgitation. (moderate to severe).

Going for a mechanical valve.

Been reading some posts. Looks like a good community on here.
 

Superman

Well-known member
Joined
Oct 3, 2009
Messages
1,540
Location
Grand Rapids, MI, USA
Welcome aboard. Any questions or concerns, fire away! Are they repairing that aneurysm while they’re digging around?

49 as well. Ticking away since I was 17. Aneurysm repair at 36.
 

pellicle

Professional Dingbat
Joined
Nov 4, 2012
Messages
9,891
Location
Queensland, OzTrayLeeYa
Hi and welcome aboard

New valve + aneurysms cover by a synthetic graft.
that's great, an all in one. I guess you've seen that BAV is strongly associated with aneurysm, so the thing which may be likely to drive another surgery is also being fixed.

Fingers crossed for one and done.

Just to get in early, make sure you are conscientious with your INR management when you get out and get better. I recommend self testing (nobody wants blood draws all the time, it scars the veins for a starter) and reach out here if you want advice on self management (with a GP watching from the sidelines).

my long and detailed "all you need to know" reference post on INR management

and something you should know (just in case)

best wishes for an uneventful recovery

:)
 

Luckyguy17

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Joined
May 4, 2010
Messages
512
Location
Montreal, Canada
49 year old Canadian fortunate to live in Ottawa and to be able to have my surgery at the Ottawa Heart Institute.

Bicuspid valve.
Ascending aortic aneurysm. Aortic root aneurysm. (5cm).
Aortic stenosis, calcification, regurgitation. (moderate to severe).

Going for a mechanical valve.

Been reading some posts. Looks like a good community on here.
Welcome Djman and fellow Canuck. Yes, you are fortunate and I have heard great things about the Ottawa Heart Institute. There are VR members having been to OHI that should pipe up shortly in a welcome.

Wishing you the best in a smooth recovery. I feel as you do so fortunate to be living in Canada and close to a major city, where our medical care is really top notch.

You should be in great shape to welcome summer in June, all the best

Gil
 
Last edited:

Chuck C

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Joined
Dec 5, 2020
Messages
1,501
Welcome! This board was incredibly helpful to me in the lead up to my surgery and I hope that it is for you too.
11 months ago I had the same procedure that you are facing- Bentall with a mechanical valve. As Pellicle mentioned, it is probably a good thing that you are getting a Bentall, as aortic aneurysm is the biggest driver for reoperation for those with mechanical valves.

The long term outlook for the Bentall is very good. You may want to give a read to the study linked below:

" Discharged patients enjoyed survival equivalent to a normal age- and sex-matched population and superior to survival reported for a series of patients with aortic valve replacement alone. "


Please feel free to reach out with any questions that you may have.
 

pellicle

Professional Dingbat
Joined
Nov 4, 2012
Messages
9,891
Location
Queensland, OzTrayLeeYa
The long term outlook for the Bentall is very good. You may want to give a read to the study linked below:

" Discharged patients enjoyed survival equivalent to a normal age- and sex-matched population and superior to survival reported for a series of patients with aortic valve replacement alone. "
something wrong with my speed reading as I had to give that a second glance when I did a "what did that say"
 

djman

Active member
Joined
Mar 6, 2022
Messages
28
Hi and welcome aboard

. I recommend self testing (nobody wants blood draws all the time, it scars the veins for a starter) and reach out here if you want advice on self management (with a GP watching from the sidelines).

my long and detailed "all you need to know" reference post on INR management

and something you should know (just in case)

best wishes for an uneventful recovery

:)
Thanks very much. I bought myself a brand spanking new, as of yet unused, Coaguchek Inrange plus 12 strips. I also read the "all you need to know" post.
 
Last edited:

djman

Active member
Joined
Mar 6, 2022
Messages
28
" Discharged patients enjoyed survival equivalent to a normal age- and sex-matched population and superior to survival reported for a series of patients with aortic valve replacement alone. "
That is encouraging. Thanks
 

d333gs

Well-known member
Joined
Feb 20, 2018
Messages
162
Location
France
Hi and welcome aboard



that's great, an all in one. I guess you've seen that BAV is strongly associated with aneurysm, so the thing which may be likely to drive another surgery is also being fixed.

Fingers crossed for one and done.

Just to get in early, make sure you are conscientious with your INR management when you get out and get better. I recommend self testing (nobody wants blood draws all the time, it scars the veins for a starter) and reach out here if you want advice on self management (with a GP watching from the sidelines).

my long and detailed "all you need to know" reference post on INR management

and something you should know (just in case)

best wishes for an uneventful recovery

:)
“BAV is strongly associated with aneurysm, ….. maybe likely to drive another surgery “ sob, even after a new AV! ? What would cause that to develop?
 

Rich1975

Member
Joined
Apr 8, 2021
Messages
7
Hi, I’m a 46yrs old male and just received news today following most recent scan that valve now moderate/severe so surgery to be planned next 3mnts for mechanical valve and aortic aneurysm repair (5cms). Knew the day was coming but really scared. Live in UK and this forum has been brilliant to learn from - especially how brave many of you are that have found yourself in this position.
 

Superman

Well-known member
Joined
Oct 3, 2009
Messages
1,540
Location
Grand Rapids, MI, USA
“BAV is strongly associated with aneurysm, ….. maybe likely to drive another surgery “ sob, even after a new AV! ? What would cause that to develop?
It’s just a characteristic of the congenital heart defect that causes BAV. A connective tissue disorder that can result in an aneurysm. Replacing a valve doesn’t change the connective tissue that makes the aorta, so it can happen years after valve replacement. Mine was 19 years later. Wasn’t really known until we started being able to replace valves. Patients that would have died from valve failure started to live long enough to learn about other problems. Yay!
 

djman

Active member
Joined
Mar 6, 2022
Messages
28
BAV is strongly associated with aneurysm, ….. maybe likely to drive another surgery “ sob, even after a new AV! ? What would cause that to develop?
There are NIH and other studies on this. I do not think the science is totally settled. The correlation is undeniable. But the exact nature of this relationship including causality is still somewhat unclear.
 

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