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Just an update...It's been almost 3 months since my son's stroke due to infective endocarditis. He has finished 6 weeks of IV antibiotics and current blood cultures show no bacteria growing. But he'll do another blood culture next week. He has moved home and taken semester off of collegweek...

Our son just had his second surgery on Dec. 1,2016. Dr. Joseph Dearani at St. Marys Hospital, Rochester did his surgery. (A challenge, as he had infective endocarditis!) but the surgery went very well, thanks to Dr. Dearani!

One thing I learned....blood cultures are typically grown only 5 days. These rare type of bacterial will take longer to grow, so if you or a loved one even just suspect endocarditis, please insist that they keep and grow the blood culture for 2 weeks to be sure! What a simple thing could save...

Thank you all for your responses! On day 9 of the blood culture, he was diagnosed with p. Acnes bacteria endocarditis. They had him on a wide spectrum of antibiotics prior to know this, now he is on only the one anti biotic. He had surgery Dec. 1st and went with a mechnical valve this time...

Update: I knew something was wrong for over a month...but all tests were negative. Now, I'm so sad to say he had a major stroke this week! They think it's an infection on heart valve or body rejecting the valve. He's got a lot of Drs. Working on his care at mayo, Rochester. Once it's safe...

Our 20 year old son had his aortic valve replace with a tissue valve about 1 1/2 years ago. About 5 months ago, he had a blood clot that killed half of his spleen, now he is on Coumadin. This past week and a half he has severe leg calf pain for no apparent reason. He went to ER and had ultra...

Update: blood culture was negative. They did a TEE echo, 1 st one he ever had. It showed a "wad" on one of the leaflets. It does not effect the function of the leaflet and it does not move. Perhaps it's scar tissue, we were told and maybe a clot formed or fell of of that. Everything else...

Thank you all for your thoughts and concern. He has a tissue valve. It was his choice, he wanted to be able to play sports yet and not have to take blood thinners. So no, he is not on blood thinners. I'm assuming that may change now... He will have a TEE ultra sound on Monday and the blood...

Has anyone man had their valve and aorta replaced when @ 19 to early 20's? What choice of valve did you choose? And how do you feel now about that decision today?

(Our son, 19 has severe BAV. We have been told surgery is very close, but no set date. He will have stress test and evaluate this spring. We are preparing for surgery this summer.) BUT, his 14 yr. old brother had an echo a year ago and was told no BAV. But recently had an EKG since his...

Our son is complaining of night sweats the last 3 nights and not being able to sleep. He's not voicing any other symptoms. Can this be a symptom of his AVS? He is on the severe borderline. Just can't think of why else he's having night sweats.

Our son felt good today, and back to school. He said he's been noticing a metal taste in his mouth lately. He's got a slight cough with phlegm, so maybe it's allergies? They say allergies will be bad this spring. It will be interesting how he feels the day after his next game....if he is...

What advice can you give a loved one from your experience? What did your loved one do or say that helped you as the patient? what did they do or say that didn't help? I try not to talk about it unless my son brings it up first, but I don't want to seem like I'm ignoring it. Although lately...

I talked with his cardiologist. He feels it's a virus and highly unlikely to be an infection. Any sign of a temperature or any other changes, and we will take him to Dr. tho.

Thanks for all your responses! I felt to that it wouldn't be a symptom, yet it seems odd it's gone on this long. NOW....he's home in bed sick again today. last week the same thing happened after a game too. (Dad and I are taking turns checking on him today.) but it also seems odd that he had...

Our 18 year son is on the border of severe for BAV stenosis. He was just cleared to play baseball now his senior year, but with restrictions of no heavy weight lifting and no cardio. Workouts....so he basically gets to play only a little. Dr. Says to wait for symptoms. On and off for several...

He seen his original pediatric cardiologist in mayo last week. So glad we did that! He spent a solid hour with us! answering questions, showing us the actual pics. from tests, etc. Very helpful. Our son is borderline, but can play baseball now his senior year (although I'm worried this will...

Our son got a cardio. Second opinion. He said they will replace part of aorta too! 1st we heard that. He says no baseball and then describes in some graphic detail how they will do surgery! We were mad about that. Just freaks him out more. I feel no need to explain to the patient, when...

Hello everyone, His FP said it was anxiety. Since he was not " physically" active at the time and it did get better as the days went on. This Dr. Thinks he should have surgery this summer! He wants him to have it done while he's in good physical shape, and thus be stronger to heal. We agreed...

Thanks so much for your prayers and support Kelly and Again! Means sooo much and good timing. After having a few days of our son occasionally mentioning he has chest discomfort, we decided to get an appt with family dr. Tomorrow. I will bring all his cardio. Papers with, even tho he should...