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  1. river-wear

    Do you measure HRV with a health wearable (watch, Oura ring, Whoop, etc.)?

    Hi everyone, I haven't been on here in ages, but I've been wondering about something. Do any of you use a device that reports on your Heart Rate Variability? (Here's what it is: Resting Heart Rate and Heart Rate Variability (HRV): What’s the Difference? — Part 1) Counter-intuitively, a high HRV...
  2. river-wear

    9 months post-op and a little worried

    Yesterday I started feeling sick, like I have the flu (sore throat, shivers, fever) and I'm leaving for vacation on Tuesday (in Europe). I figured I have to do what I can to nip this in the bud so I went to the doctor this morning. I'm still running a low-grade fever and now my skin hurts. He...
  3. river-wear

    9 months post-op and a little worried

    Yesterday I started feeling sick, like I have the flu (sore throat, shivers, fever) and I'm leaving for vacation on Tuesday (in Europe). I figured I have to do what I can to nip this in the bud so I went to the doctor this morning. I'm still running a low-grade fever and now my skin hurts. He...
  4. river-wear

    Very sad news - surgeon in Boston

    Was anyone here treated by Dr. Michael Davidson at Brigham and Women's Hospital in Boston? Some nut shot and killed him yesterday. http://abcnews.go.com/Health/doctor-...ry?id=28348752 Sorry, this should have gone in the small talk forum. I'd delete it if I knew how.
  5. river-wear

    officially "over the mountain"

    Hopefully I am DONE with this heart stuff, but we all know there are no promises and no guarantees. However, today I had my 4-month post-op checkup and everything is going as well as can be hoped. Even though my surgeon shoots for a little stenosis during the repair, it apparently worked...
  6. river-wear

    TAVR results from Germany

    Here is some follow up info on TAVR procedures: http://www.dicardiology.com/article/tavr-80-percent-patients-samebetter-health-one-year-after-treatment The mortality rate looks rather high, but when they grouped patients with a similar risk profile together it was comparable with traditional...
  7. river-wear

    New 3D imaging technique - capturing motion

    This example is from a zebrafish, but this new method of "seeing" the heart is pretty cool. The article claims they can also see inside the beating heart -it's noninvasive. Click on the link to the press statement at the end if you want details...
  8. river-wear

    Thudding heartbeat?

    Hi everyone, I think I've read about this on here but I really need some reassurance (if warranted). My heartbeat has been steady around 75-80 bpm for days, but yesterday and today it seems like I can feel every beat against my chest. Once in awhile, I have a palpitation (for which I left a...
  9. river-wear

    AV repair - my full story

    Hi everyone, I had my aortic repair surgery on June 11 and finally feel like sharing my story. I flew across the country to Philadelphia from California too, so I didn't have my computer with me. Posting via phone was challenging due to the blurred close vision post-surgery. My surgery was...
  10. river-wear

    Day 3, doing all right

    Dr. Bavaria repaired my valve Wednesday. He's proud of it and says he may post a video. Description to follow when I'm up to more typing. Trying to walk and use spirometer as much as I can. Took a nap today too. Sucks to feel so weak, but I've been lucky so far! I appreciate all I've learned in...
  11. river-wear

    Question for those who traveled for surgery

    Hi everybody, I thought I was all set for my AVR until I got the great news that repair is possible for me. It's great, but it also adds to my stress because there are more unknowns. So now it appears that I'll be heading across the country to Philadelphia for my best chance at a repair; a...
  12. river-wear

    "Open Heart" - the movie, Academy Award nominee!

    I just discovered this short subject documentary today. It was nominated for an Academy Award this year and is still making the rounds of film festivals (so unfortunately I can't see it yet). I thought some of the folks here would be interested too: http://openheartfilm.com/ It's so sad to...
  13. river-wear

    double whammy - or, my valve is special

    Hi everybody, As some of you know, I had a TEE a few weeks ago so my surgeon could get a better look at my regurgitant aortic valve. I knew the follow-up was going to be interesting when Dr. Castro starts with "I've never seen a valve quite like yours before." Lucky, eh? Going in, I had...
  14. river-wear

    Tell me about your experience with TEE please

    Hi everyone, I'm back! I've been lurking the last three weeks after my cardiologist told me it's time. When I first saw him four years ago, my EF was a robust 67%. Last year it was down to 55% and now I'm at just 46%. I met with a surgeon on Tuesday, and he compared it to running on just 6...
  15. river-wear

    new implant for aortic aneurysm spares valve

    My husband just found this link and sent it to me because it was so interesting that a "regular guy" could make a real difference in how an aneurysm is treated. I'm sure it'll be awhile before it gets here from the UK, but figured I'd share it...
  16. river-wear

    Does ACT make travel difficult?

    What do you guys do when you travel for a couple of weeks? It seems that traveling can change your diet and wreak havoc on your INR. Do things stay stable long enough to get back home to get tested, or is it necessary to take a "home tester" along with you? I don't think I'd be concerned...
  17. river-wear

    Grow your own replacement valve

    I was just organizing what seems like 100 bookmarks relating to AVR, heart surgery, ACT, etc. and ran across this older link my husband sent me a couple of years ago. The article says they had experimentally grown replacement valves from stem cells and that the technology could be ready in 5-8...
  18. river-wear

    Question about choosing a cardiologist

    Maybe I'm over-thinking this, but I was wondering if the folks who didn't travel to have their surgery done could help me out. Does it matter (or is it important) if your cardiologist has hospital privileges where you intend to have your surgery? Thanks! Michele
  19. river-wear

    help me understand test results?

    Hi, I finally got some of my echo results from my former cardiologist. I asked for everything they had and got three years. Sigh. Probably doesn't matter anyway, huh? Funny how relatively little things can be so upsetting when your health is involved. Anyway, even though these are older...
  20. river-wear

    question about life-long Coumadin

    I've been reading a lot on this forum about how taking Coumadin isn't a big deal and that taking it versus not shouldn't be a major factor in choosing a valve. That sounds pretty good to me. But then I see the stats from the Cleveland Clinic that show the vast majority of their valve...
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