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Anyone else have cavernomas in their brain? Am I the only lucky one in this club? :( So about 3 months ago I started having issues with my vision - similar to a migraine aura but it never went away. Sparkly blind spots were persistent morning noon and night and would pop up randomly in just...

Please help me! I'm really struggling. I'm 3 and a half months post op and I just cannot get my INR under control. Everything was going really well until my doctor took me off amiodarone and I can't seem to get in range anymore. I have St. Jude valve in aortic position and my ideal range...

I've done it. I've graduated through all the levels at the hospital and got my discharge papers today. Go me! 🙌 Then I learn they're really transfer papers. I'm going to a rehabilitation center. Ok. Hmm. This is my 2nd operation and I didn't have to do this the first time. I'm young (36) but...

January 17 I checked myself into the ER with symptoms of early stages of heart failure - learned it was my failing cow valve (which I had gotten in my first AVR in 2009). It is now severely stenotic after years of great check-ups. It really snuck up on me, although I can't say I wasn't in a...

I'm currently living in Italy, and looking at AVR #2 sometime this month. I have a tissue valve now which will be replaced with a mechanical valve. I'm 36 so I expect to have a lot of life in front of me and my family and I tend to be quite nomadic. Since 2003 I've spent about equal time living...

Ciao a tutti! I was pretty active here surroundong my last OHS in 2009 (AVR) and I've been enjoying the revamped site! After 10+ years, it's time for OHS #2... I always thought I'd want the same surgeon. However, after consulting with him, and doing some research, I discovered he's now 72 years...

Hello all, It has been quite a while since I've posted!! Quick background: had AV replacement with carpentier edwards valve (bovine) and bentall procedure for dilated ascending aorta. Was 26 when I got surgery and the whole idea behind the bio valve was to have kids one day. Fast forward to...

got my bovine valve 1 year ago today!! will be running my first 5k post op this sunday!!! moo.

making a trip home for xmas and want to get some travel insurance.... can anyone suggest one that won't make me pay an arm and a leg for coverage on a pre-existing condition?? thanks ciao

helllooooo everyone! saw the doctor today for my first post op checkup (about 5 weeks post-op). i did chest x-rays (and they made me swallow the most AWFUL white cream to "illuminate" my heart on the films), ekg and consult with a heart surgeon (not mine :( was kind of disappointed about...

Four weeks ago today I had already been admitted to the hospital and I was "enjoying" my last pre-op meal of tasteless broth with little pasta stars in it and water. ...not that I was really that hungry. I was a little too preoccupied with the fact that the next morning I was going into...

ciao everyone, i'm at 12th day post-op and probably being a little lazier than i should be. i've been taking naps everyday and doing the minimum as far as walking and exercises.... but at least i'm doing them at all! so, besides having to get my butt in gear a little more, i'm generally...

well, i spent two dazed days being coddled in the ICU (i should have gone down to "semi-intensive" after the first day post surgery but there weren't any available beds). and they say that things are going just dandy. i'm in kind of a lot pain where my scar is, and my heart beat is quite high...

So, can someone please tell me why I've been scouring the web for the past 5 months obsessively searching for OHS scar pics when all I simply had to do was nose around in this thread?!? :rolleyes: I was too stuck around the Pre-surgery and Post-surgery posts to venture all the way down here...

yikes! i can talk pretty big game, but when i heard today that i'll be going under the knife in two weeks, i got the wind knocked out of me. a little shaken up, but still thinking positive!! i will be having AV replacement surgery + ascending aorta aneurysm repair with Doctor Roberto Di...

Hello all!! Me again, crazy BAV girl with asc. aortic anny at 5cm on the list to have surgery in Italy!! (hence the "crazy" part :p). Thought I'd check in and give an update because around here, no news is NOT always good news. :o So, back in May when my cardio said it was "time" for surgery...

Hey all, random post by yours truly. I was diagnosed with BAV at age 5, suffered a bit of mild SOB every once in a while from 2006-2008 and in 2009 it became almost a daily occurance. I was then told in early May 2009 by my cardio that I'd be needing OHS soon and SOB increased and I also...

Hi everyone!! It's me again: BAV girl with ascending aortic aneurysm, looking at an OHS in Italy this summer. So I'll get you up to speed on where I'm at: Had a TEE last Tuesday (oh holy crap, it was awful... how am I gonna cope with the surgery if I thought THAT was bad?) I don't mean to...

Hi all, I've been reading up on the different types of valves and their pros and cons. Even though it is somewhat discouraged in patients my age because of the short life expectancy of the valve, I'm leaning towards a tissue valve and considering the Ross procedure (granted I can get my hands on...

how long did you wait between cardio saying "it's time" and setting surgery date? Hi all, me again. I have a question for you guys who have already set a surgery date and I know it will vary, but I'm just curious: How much time went by between your cardiologist saying "it's time to operate"...