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Hi ALL. Haven't posted in a while. Things have been interesting to say the least. Last year I was dx with both Arnold Chiari Malformation (had brain and spinal surgery) and VEDS, Vascular Ehlers-Danlos Syndrome, a connective tissue disorder, and the worst for of EDS at that. VEDS has an average...

Hi All. I haven't been on here as of late but I could really use your help. Two years ago, I had my mitral valve repaired for severe mitral regurgitation. This July, I had my mitral valve replaced (mechanical) for severe mitral stenosis. The surgery went well, far better than the first, and I am...

Hi ALL. I had my mitral valve repaired almost two years ago now for bi-leaflet prolapse w/ severe regurgitation and am going to need the valve replaced because of "iatrogenic mitral stenosis" and haven't a clue as valve selection. Any suggestions/direction? I am 37 years old. All I know is that...

Can anyone explain for me, if you will, the difference of assessing the Mitral Valve Area in Mitral Stenosis via the planimetry vs. the pressure half-time method and why there is such a variance between these two values? It's my understanding that a normal MVA is between 4 -6cm2 and that when...

Recently went on Sildenafil "Viagra" for Pulmonary Hypertension. Anyone else on this or know anything about it? My head feels like it's having an erection :eek2: Do these side effects subside? Thanks, Dee

I'm 1.5 years post mitral valve repair w/ annuloplasty ring for mitral valve regurgitation and was told that my pulmonary hypertension, based on right heart cath, was/is secondary to mitral stenosis. PH Specialist, Dr. Mclaughlin at the Univertsity of Michigan, gave the impression that the...

Hi ALL. Sorry for my absense. Here is the skinny on me - I'm 1.6 years post mitral valve repair with annuloplasty ring for severe mitral regurgitation and have never recovered. Been experiencing extreme shortness of breath, lung congestion, cough, palpatations, chest discomfort prior to and...

I'm 6 mos post mitral valve repair and will be meeting with my surgeon this week regarding my sternum wires and having them removed. But I also have other concerns and wonder what I should be asking him. My latest echo (week ago) indicated moderate-severe tricuspid regurgitation (this was trace...

Hi all. I'm 6 months post op MVR and have been having a lot of pain from my sternum wires. This pain comes from simply reaching or turning...couldn't imagine if I was really active...and I have an appointment to meet with my surgeon to discuss removal. Anyone here have this done? What exactly...

Okay. So, I saw my cardiologist yesterday and was told the following things: I have cardiomyopathy, chf, pulmonary hypertension, severe tricuspid regurgitation and my blood pressure is back up AGAIN! WTH? My last echo (1 of 3 since MVR in March) is worse, not better and the "heart healing"...

Hi All! I have a follow up appointment with my local cardiologist tomorrow and want it to be a productive one as I've been having a lot (or so it seems) of issues post-op MVR. The last time I met with her...one and a half months ago...I left with more questions than answers. She is telling me...

Last night I completely lost all sight in my left eye for approximently 2-3 minutes before it slowing started to come back. I've been noticing more palpatations lately and my head feels kinda funky. WTH? Has anyone experienced this? Could this be a sign of a stroke? OMG! Just to refresh your...

I just wanted to let everyone know that Harry's surgery went very well. I heard from his friend Dan about 10:30 last night and he said that they were able to repair his valve (again) and that he was up and at em. Great news! Wishing Harry a smooth, speedy recovery. Dee

Ok, so I'm 2 and a half months post-op MVR and didn't have such a great post-op echo; which I've heard is not all that uncommon. Indicated moderate-to-severe TR, moderate PH and CHF. Both my cardiologist and surgeon expect this to improve by 6 months post-op and prescribed the following to help...

I just had my second echo since my mitral valve repair March 27 and it's terrible (or at least I think so)! :eek: Any thoughts? Should I be concerned??????? FINAL IMPRESSIONS: 1. Mild to moderately dilated atria. 2. Moderately depressed left and right ventricular systolic function. There is...

I'm 7-8 weeks post-op mitral valve repair and recently had two echos (one rountine, ordered by my local cardiologist; one repeated) and both indicated Moderate to moderately-severe TR with PAP's of 69mmHg on the first and 59mmHg on the second. LVEF was between 35% and 40% and the report...

I'm 6 weeks post-op MVR and had my first post-op echo, ordered by my Cardiologist just for routine and she called me first thing this morning with the results. I freaked when I heard her voice because the last time I had a Cardiologist call me regarding an echo it was to tell me I had severe MR...

I'm 6 weeks post-op tomorrow and I'm trying to decided wether to do cardiac rehab or not? I saw my Cardiologist yesterday and she said that it was up to me. Here's a little background: I'm a 35 year old female with a history of refractory hypertension, MVP with severe MR, sinus node dysfunction...

I'm one month post-op MVR...had my month check with my surgeon this past Monday and this is what he said: "If you can think it, you can do it! Bungi jump, sky dive, bench-press your toddler (42lbs), have sex 3-5 times per day...I don't care! You are cured. Have a nice life!" At first, I was just...

I'm 9 days post-op mitral valve repair w/ band and am STILL extremely limited as to what I can do. For the most part, my surgery was normal, despite surgeon being shocked by the size of my valve and the repair being more complex than anticipated. I was in the OR for 5-6 hours, wasn't weened off...