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    Mechanical Valve and recently dx w/ VEDS (Vascular Ehlers-Danlos Syndrome)

    I just sent a letter via email to one of the cardiac surgeons at CHOP. I will keep you posted. Thanks again, Lyn!
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    Mechanical Valve and recently dx w/ VEDS (Vascular Ehlers-Danlos Syndrome)

    Thank you SO much Lyn, Norma and ottagal. Thank you Lyn for a suggestion I never thought of. I'm so glad I came here. This place and you all are so great. I have seen a surgeon at Beaumont Hospital in Royal Oak but I didn't get the feeling he would operate; however, he hasn't said no. He needed...
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    Mechanical Valve and recently dx w/ VEDS (Vascular Ehlers-Danlos Syndrome)

    Hi ALL. Haven't posted in a while. Things have been interesting to say the least. Last year I was dx with both Arnold Chiari Malformation (had brain and spinal surgery) and VEDS, Vascular Ehlers-Danlos Syndrome, a connective tissue disorder, and the worst for of EDS at that. VEDS has an average...
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    NEED HELP: Body NOT responding to anti-coagulation?

    Thank you ALL for your thoughts, insight and advice.
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    NEED HELP: Body NOT responding to anti-coagulation?

    Thank you to each and every one of you for your input; it's most helpful as I move forward with this. I am hoping that I'm just a latent responder to the drug as both Amy and Jason mentioned they were. I will be 3 mos post-MVR on the 5th, so things should start leveling out for me IF they are...
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    NEED HELP: Body NOT responding to anti-coagulation?

    Eva, my doctor HAS just switched me from the generic warafin to brand coumadin...been on it for two days now so we'll see if this helps? Thanks a bunch! Interesting too about the calcium vita?
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    NEED HELP: Body NOT responding to anti-coagulation?

    Thanks, Protimenow. I DO have my own coagcheck machine and have been testing once a week with it and then sometimes, twice weekly at the lab as I had some question intially about the machines valitity but thus far it seems to be accurate. The question now is, do I want to live like this...fear...
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    NEED HELP: Body NOT responding to anti-coagulation?

    Wow! Thanks, Amy! Good to hear I'm NOT so rare. I will be 3 mos post-op in about a week. So...things could improve for me? I probably should mention that I have a history of not responding as a normal person does to medications. Prior to surgery, I was on 10 plus medications for blood pressure...
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    NEED HELP: Body NOT responding to anti-coagulation?

    Thank you for sharing this article. It does shed some light...as well as hope. My cardiologist has referred me to a hemotologist. Again, MANY thanks!
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    NEED HELP: Body NOT responding to anti-coagulation?

    Hi All. I haven't been on here as of late but I could really use your help. Two years ago, I had my mitral valve repaired for severe mitral regurgitation. This July, I had my mitral valve replaced (mechanical) for severe mitral stenosis. The surgery went well, far better than the first, and I am...
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    Ef?

    This makes sense...as now I have a stenotic mitral valve following mitral valve repair needing replacement. Thanks, Lyn
  12. D

    Ef?

    So 76% is not good? Especially for someone who hasn't been able to exercise in three years.
  13. D

    Need Mitral & Tricupid replacement

    Trace to mild TR are common findings in almost everyone and is considered insignificant and should not result in symptoms.
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    Mechanical Replacement after MitralValve Repair

    Thank you SO much ladies...you are BOTH awesome and inspire me as I move forward with this. Met with Dr. Gillinov at CC last week and it's up in the air as to whether this will completely help all my symptoms, as there is some question as to whether my PH is secondary to the MS or primary. The...
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    Mechanical Replacement after MitralValve Repair

    Hi ALL. I had my mitral valve repaired almost two years ago now for bi-leaflet prolapse w/ severe regurgitation and am going to need the valve replaced because of "iatrogenic mitral stenosis" and haven't a clue as valve selection. Any suggestions/direction? I am 37 years old. All I know is that...
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    Echo NOT good news --- 4th OHS Imminent

    I am thinking of you and praying for you, Norma. God Bless you and BIG HUGS, Dee
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    Assessing Mitral Valve Area: Planimetery vs. PHT (Pressure Half-Time) Methods

    Thanks so much! I'll check it out.
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    Assessing Mitral Valve Area: Planimetery vs. PHT (Pressure Half-Time) Methods

    Oh, I also should add that the RHC had the MVA at 1.3.
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    Assessing Mitral Valve Area: Planimetery vs. PHT (Pressure Half-Time) Methods

    Can anyone explain for me, if you will, the difference of assessing the Mitral Valve Area in Mitral Stenosis via the planimetry vs. the pressure half-time method and why there is such a variance between these two values? It's my understanding that a normal MVA is between 4 -6cm2 and that when...
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