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Good point... was just meaning that I am not bothered at all by the appearance of my scar, so that's not why I would be going - it's the weird feeling of this knot on mine that I don't like. Thanks for the head's up that the injection would hurt. Eeks!

The one I had in 97 they kept me on it a while. It was somewhat torture. :) This last time it wasn't as bad - the first surgery I had they were ready to take it out just as I was waking up, and thankfully the hubby remembered I wanted a pic with all the tubes in, and we waited a few minutes to...

Reading some of the other posts got me thinking more about mine - it's 2 years old... all my other scars have healed up nicely... but there's one area of this one that's a hard bump. I do not like it. It doesn't itch or hurt, but it's pink and just blech. I would never have my scar removed...

That would be super frustrating, sorry you're going through that. I do hope you get your home monitor - I agree that it will help a lot! One other thing I've learned is to keep your dosing more consistent... like I take 5.5 every day not an alternating 7.5 and 5 or anything like that. Like...

Glad things went well for you and that you're home and feeling better! That's great news!! My husband said his grandparents are buried in Rose Hill (we visited there on one of our trips out to see his mom, actually). He grew up in the area til his senior year in high school when he moved out...

Hi Julian! I know before my surgeries I kept myself very pre-occupied so I wouldn't think about the things yet to come. I think my current symptoms can sometimes make me very nervous and every chest pain frightens me. But by now you should have had your surgery and hopefully all went perfectly...

Just wanted to say I agree with everyone else... I'm the Queen of getting 2nd opinions and/or switching doctors altogether. My husband makes fun of me. But I'm very proactive in my health. If you have a bad feeling or are frustrated, it's in your own health's best interest to see someone else...

Wow, what a summer you've had!! Take care of yourself, and hope things start to settle down for you very soon!!

Thanks Duffey - that's interesting! :) I did go to a new primary physician this week (recommended by my cardiologist because she's Internal Medicine as well as Pediatrics, and sees a lot of their Congenital Heart patients, so she has a good background in it... they took some blood and ordered...

Hi Mark! I'm 37, and have had 5 surgeries (3 by the time I was 5, another at 24 and my last one just a couple years ago). I remember posting something about how many is too many (surgeries) before my last one. :) I think the main concern with re-ops is the scar tissue, and it takes them longer...

Hello all! It's been a while since I've posted, I hop on and read occasionally to see what's going on in here, tho... My valversary was just a couple weeks ago - 2 years on the current On-X mitral valve that I had put in. Things are going well for the most part, though I do have some things...

Sorry to hear the clicking is so annoying for you... I've had mine for about 13 years (just switched from a St Jude to an ON-X a couple years ago)... the ON-X is supposed to be quieter, but it really isn't. :) To be honest, sometimes it's loud and sometimes I don't even notice it... so I'm sure...

Thanks guys! I appreciate the input... I used to be on a beta blocker and don't remember it happening with that (atenolol)... I may see if they can try something else to see if it will help. I can ignore it sometimes, and others I just can't! Thanks again! Kerri :)

Hello all! I was curious if: a) - any of you have been on Enalapril (ace inhibitor) and b) - if you ever experienced ear ringing with it?? I've noticed the ear ringing for a few months now, but I'll be honest, I thought it was the new sound system in my car lol. :) However... it's just plain...

Hi Alex! Hang in there as you move forward with these upcoming decisions, and rely on your doctors and do your own research on everything as well... I'm in your boat in that mine was congenital also... and I can't say that I don't think occasionally about life expectancy or how I might die...

Hi Judy! I have to agree with the other posters. There are pros and cons to both, and you have to go with your gut and what you think is the best for you. I am 36 and have been on coumadin since I was 24 with no problems whatsoever. I still had to have a second valve surgery 12 years after the...

I know I had the extra breath thing too - it was such a weird feeling. It did go away over time, however...

Bob did you figure out what causes yours? My carelink report came back clear. My initial check by my GP was fine (nothing in my ears, my sinuses were congested, though - but I don't feel anything there). She ran some blood tests and took a urine sample, and I'll have results of those tomorrow...

So here's my report for today... My dr had me send in a carelink (pacemaker report) to see if they can see anything on there. I'm waiting - no "events" were recorded so they know it's not tachycardia... she is having problems getting into the details though to see if anything else is going on...

Agreed. Who knows how the info was conveyed to him and what was actually said. I don't see him being one to blow symptoms off - my normal nurse I usually email and she just forwards it onto him, so I know it's shared in the manner I actually gave it. Which is nice. :) I'll definitely be in...