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  1. L

    37 yr old with BAV and Severe AR

    David's procedure requires more experience, comparing to Bentall's. I'd look at the most experienced surgeon I could find.
  2. L

    Foldax Continues

    Sure, longevity is essential, but let's not forget that the valve is pretty innovative, and even the basic things need to be tested, like basic structural integrity in vivo, abscence of allergic or immune reaction, and everything that science doesn't know about but what can happen.
  3. L

    Surgery now not recommended after TOE/TEE

    SwansCity1912 Yeah, I agree with pellicle that AR is more complicated than AS, due to more difficult quantification, due to more equivocal opinion on when the damage to the heart is really significant. Also with Timmay, that if the surgery is imminent you gotta have it fast. I heard that MRI...
  4. L

    Surgery this Wednesday

    Jeff Congratulations on your successful surgery, also a very nice picture of a heart. One question: did you have pure stenosis, or there was some regurgitation too?
  5. L

    Hello again...

    It's BAV with mild AR and borderline dilation (40 mm), which is small for my height. I learned about it more than 2 years ago. Funnily, for the first year I was calm about it, but then it suddenly grew into a strong depression, first in my life, and then a really bleak year passed. Before that I...
  6. L

    Hello again...

    I am quite alright. The initial shock from knowing my condition was harsh, but now it has receded. Also I'm almost starting to believe that I will evade warfarin in the end thanks to the Foldax valve or other options. And the possible future surgery itself seems to me more like a space flight...
  7. L

    Hello again...

    Thanks so much for your update. I'm glad that you're stable and it seems that you are feeling aright. Do you take any medications? Looks like people with regurgitation are prone to systolic hypertension, but then some have normal BP even on severe stage.
  8. L

    28 yrs old with BAV & Severe AR

    Could you please tell what are those pills? Your profile info says only losartan.
  9. L

    28 yrs old with BAV & Severe AR

    Hello and welcome. Your disregarding of Ross procedure seems to me quite prudent, considering your height, gender and young age, that may presuppose some variation of systemic connective tissue disorder or even Marfan. I am tall and have AR too, and talked to a geneticist who thought I have some...
  10. L

    How long have you had your aneurysm?

    My aortic root is at 40mm, stayed like that for 3 years that I am watching it, and I am 39 YO with BAV. The growth speed really differs a lot between people, some never develop threatening aneurism throughout their whole life, despite having a large aorta and BAV. The genetics and other factors...
  11. L

    Facing a 2nd operation

    Nik B You have a lot to deal with, and it's hard, I know. All I can say that a man has inner sthrength that helped to endure countless dangers throughout man's evolution and history. You are not alone. Here's a video of a classic Marfan case. The guy is about your age. He is blind, he has a...
  12. L

    Bicuspid Aortic Valve and possible future aortic dilatation

    It almost never shrinks, but a lesser occasional measurment speaks for a probable stability, which is great.
  13. L

    Bicuspid Aortic Valve and possible future aortic dilatation

    This "high" means a lot higher than with a tricuspid valve, but still less than 50%.
  14. L

    Newly Diagnosed- Bodybuilding and Exertion

    I think the idea is to do what you can to delay the indications for surgery as far as possible, but when the surgery is close and imminent, to have it soon.
  15. L

    Pre-surgery exercise recommendations (strength training)

    They really don't know, because everyones progression rate is very different and is hard or impossible to establish in a concrete person, even having a history of measurements. They only know that probably high blood pressure accelerates dilation of the aorta.
  16. L

    Bicuspid Aortic Valve and possible future aortic dilatation

    That's true, Debakey himself had a dissecting aneurysm at 90+ and he most certainly hadn't BAV. But again, the dimensions now look reassuring.
  17. L

    Bicuspid Aortic Valve and possible future aortic dilatation

    Hello, thanks for your kind words. The statistics are all over the place, but with these dimensions at 60+ YO the aneurysm is rather unlikely, AFAIK.
  18. L

    Newly Diagnosed- Bodybuilding and Exertion

    Hello. I also have BAV with regurgitation, which is still mild at my 39 years old. In your place, I would watch the aorta size, besides the regurgitation. The studies are not very conclusive, but still there's opinion, that high blood pressure accelerates the aorta dilation (and regurgitation...
  19. L

    Foldax Continues

    The Indian testing group is definitely smaller than US (I remember that, though can't find the pricise number now), but that compensates with shorter term of the trial, after which everyone is welcome to the surgery, as I understand. India alone has 1,4 bn population, and count the medical...
  20. L

    Facing a 2nd operation

    Maybe not anymore. Maybe the new polymeric valve will provide a much more definitive treatment than before, and the only major menace for valvular patients will be aortic aneurysm.
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