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  1. Wiles Darkwinter

    Genetic testing mystery

    I tend to agree. When my cardiologist asked me why I didn't want to do genetic testing, I asked him "will anything in the results change the way you're managing me?" He said - no not really. So I decided I don't have the emotional bandwidth to start looking that closely at it. Yeah I hear you...
  2. Wiles Darkwinter

    Genetic testing mystery

    Hi all, Some might find this interesting. I did elude to this situation in my original post when I first joined the forum, but summary: - My father diagnosed at age 62 with severe aortic regurgitation and 45mm aortic root - underwent surgery and received a tissue valve. Annoyingly, his surgeon...
  3. Wiles Darkwinter

    Pre Surgery and Work

    I try to stay out these, but the gravitational pull of this thread has taken me. I'm not sure what happens psychologically to most readers when they see a post that they don't agree with, but the process for me is pretty simple. I read a thread, engage with what I feel like I need to engage...
  4. Wiles Darkwinter

    Not doing surgery

    If you’re not afraid of passing away then you might be in a better position than most of us to actually have the surgery. I was shitting myself personally. If you’re inviting and welcoming death, and you’re hoping that not having surgery will help this invitation along, as stated by others, it...
  5. Wiles Darkwinter

    Weight lifting with valve and aneurysm replacement

    Awesome man, looks like you’re hitting all the best movements! I think OHP is overlooked by many, but it’s basically the definition of strength in my eyes, being able to lift something up over head!
  6. Wiles Darkwinter

    Weight lifting with valve and aneurysm replacement

    But again, this is based off feels not evidence
  7. Wiles Darkwinter

    Weight lifting with valve and aneurysm replacement

    I think’s power cleans and deadlifts are probably the ones that are gonna jack your BP pretty high
  8. Wiles Darkwinter

    Weight lifting with valve and aneurysm replacement

    So full upper body twice a week: bench, overhead press, pull ups, push ups, fly’s, lat pulls, bent over rows. I used to do a lot of cleans (I used to love them) but have let those go. And I don’t dead lift anymore. Lower body once a week: Back squats, front squats, leg press. Maybe some...
  9. Wiles Darkwinter

    Weight lifting with valve and aneurysm replacement

    Yep, sounds a lot like how I am going about it too. It’s the only way!
  10. Wiles Darkwinter

    Weight lifting with valve and aneurysm replacement

    Man it’s just so hard to know or give advice as everyone’s “easy” or “hard” is so subjective. I can bench and do pull ups pretty easily - decent weight and reps, that’s considered “max exertion” for some. For me, I keep coming back to the basketball dudes. I reckon if the NBA blokes who have...
  11. Wiles Darkwinter

    Greetings ! Getting close to my SAVR.

    Good on you mate. Good luck!
  12. Wiles Darkwinter

    Starting gym

    Ahh I see I am quite late to the party! Haha
  13. Wiles Darkwinter

    Starting gym

    This is my favourite subject. They key is finding a cardiologist/surgeon or doc who’s gonna support your goals despite your surgery. I’ve had countless conversations with GP’s or family docs who clearly don’t know the current advice on training post aortic surgery, especially in someone young...
  14. Wiles Darkwinter

    The story and concerns surrounding my AVR in 2014

    Another good one I’ve heard about this - “if you can’t do 5 minutes of yoga, you need to do 10”
  15. Wiles Darkwinter

    Aortic aneurism with bicuspid valve - options in 51 year old

    Good read mate. I think a consideration should be that we want to appear united and supportive of each other. especially for new members (such as the owner of this thread - we have currently hijacked his first post) Everyone here has either gone under the knife or is about to, and if you’re...
  16. Wiles Darkwinter

    Aortic aneurism with bicuspid valve - options in 51 year old

    1. I’d go with medical advice from doctors/surgeons and use forums such as this one for stories, motivation, and advice about how to deal with the process, and gain insight into the particular disease/cancer. 2. Depending on the prognosis. If I was about to die and was told conventional methods...
  17. Wiles Darkwinter

    Aortic aneurism with bicuspid valve - options in 51 year old

    A few thoughts this morning from me, If we all waited 25+ years for data, where is this data coming from? All the best valves were either chosen (or chosen for) patients. Therefore I wouldn’t suggest you to be a fool for choosing the resilia. The question id be asking myself is not about the...
  18. Wiles Darkwinter

    Aortic aneurism with bicuspid valve - options in 51 year old

    G’day, Tough situation, it’s hard when it’s not cut and dry. I think what @pellicle said about not barracking for your TeamValve is very useful to remember here, you'll hear/read a lot of anecdotal stories for each. I had a valve sparing procedure with aortic root aneurysm repaired. From my...
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