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I went to the cardiologist on Friday. My old cardiologist retired and I was wanting to make a switch anyway, so it worked out. I had seen this doctor in 2019 so I was not "brand new" to him and he has experience with Ehlers Danlos Syndrome. It was just to re-establish myself as a patient this...

Hi everyone, It's been a while since I have posted on here. My initial posts were of shock when I was initially diagnosed with a slightly enlarged aortic root along with my Ehlers Danlos. (Just hypermobility primarily) I'm extremely high-functioning compared to some I've met with Ehlers Danlos...

Hi everyone. I've been a member on this forum for years and my first post was after I was diagnosed with an aortic root aneurysm along with the diagnosis of Ehlers Danlos Syndrome (hypermobility and the aneurysm are the only 'major' symptoms presently). I've had several years worth of...

Hi everyone, Quite some time ago, a topic caught my interest and I've read up on it from time to time. That topic is those who claim (or their loved ones) Alzheimer's was triggered due to surgery involving general anesthetics. I have to warn in advance, I am a bit of a worry wort but this...

It's that time of the year again (summer). I was diagnosed with Ehlers Danlos in 2012 but it didn't really matter that much until the summer of 2015. I had been the person to bring the issues up to my doctor, which was basically only hypermobility, which led to a diagnosis with two different...

Hi everyone. It's about 4 AM here and I can't sleep. I have a question on my mind that's been pending for quite some time but it's one that's not easy to ask. I have an enlarged aortic root which was approximately 3.9 last year and in July was around 4.1. The cardiologist stated he felt it...

Hi everyone. I’m brand new here. I discovered the group after countless searches online to try to find information and people who are going through what I am. I found myself reading posts from this forum quite often. I will try to make my story as short as possible. Basically, I’ve always...