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    34 Year old man awaiting Aortic valve replacement / repair

    Hi, Your questions and concerns sound almost exactly the same as mine were before my first surgery which was a Ross Procedure performed 21 years ago now. I've since had 2 further operations - first one to repair the aortic valve (13 years after the Ross) and sort out an aneurysm (see Pellicle's...
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    Breathing Tube Fear

    After my first surgery I woke up with it in and remember it clearly. I even asked for a pad of paper and pen (using the internationally recognised wiggle of fingers to mimic writing) so I could ask if the surgery had gone well, what valve I had and when the tube was coming out. It really wasn’t...
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    My Experience with the Ross Procedure

    Hi! Of course. I’ve had two confirmed cases of endocarditis and a third suspected case. One doctor told me that once you’ve had it once you’re more likely to get it again. I’ve never been certain of the cause - I’ve suspected dental work and also minor open wounds so it’s right to be sensible...
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    My Experience with the Ross Procedure

    Hi Tteale! I’m still lurking but not very frequently (as you can see!). I’m up to 3 ops now after having a RP when I was in my late 20s, nearly 20 years ago now, but still feeling good. Last two ops were linked to endocarditis. I’m still exercising lots although not as intensively as before (I...
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    Ross procedure or mechanical aortic valve for reoperation

    Hi, looks like you've probably made your mind up to focus on the mechanical route but thought I'd chip in briefly as a previous Ross recipient. For me, a big driver behind having the Ross was to aim to minimise the day to day requirements I'd have to pay attention to as much as possible. I...
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    Going in for #3

    Hi Bradley White. I wish you all the best with your upcoming surgery. Sounds like on the face of it you and I have a similar history heart-wise. I had a Ross in op #1, dacron graft and valve repair in op #2, bovine aortic valve replacement in op #3. All in the UK. Although I know the risks...
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    Swimming with aortic aneurysm / heart issues - Safe water temperature?

    Hi Gordo60, I live in the UK and swim regularly in lakes and the North Sea - with a 3-4 mm wetsuit normally. Water temperatures at the start of the triathlon season are normally around 10C. Anything above about 16/17C would be a treat and would normally mean no wetsuit. I typically swim 1-2...
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    Chest pain AFTER exercise?

    Thanks Paleowoman - I love the ‘klonking’ description! Useful info there thanks - I agree that a lot of unusual chest discomfort can be explained by the disruption during surgery - not necessarily directly cardiac related. Leadville - I only very rarely get pain on inhalation and bending...
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    Chest pain AFTER exercise?

    Hi All, Google (and the doctors!) have failed to help with this query and so I thought I'd put it to the wisdom of this forum. Since 2002 I've had 3 OH surgeries - Ross procedure in 2002, then an attempted valve repair and aortic root replacement 11 years after the Ross, then a straightforward...
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    For Those That Had a Ross...

    My RP lasted about 11 years. I've just (about 3 months ago) had my aortic root replaced with a dacron graft. The aortic and pulmonary valves that were "installed" during my RP are both doing okay and so were left in place. When my aortic valve needs replacing again (I don't think anyone could...
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    Life after AVR?

    I had a Ross Procedure 11 years ago when I was 26. Since then I've competed in triathlons, cycle races, a marathon, masters swim races and a parents egg and spoon race at my sons Sports Day (which was the most competitive of the lot!). AVR really didn't have much impact on my lifestyle. I...
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    1 week post op and doing well!

    Re: 1 week post op and doing well! Congratulations on the successful op! I'm just over 7 weeks out now and my resting heart rate is still a bit higher than it was pre surgery, but it's heading in the right direction. I think an elevated HR is pretty normal for a while after surgery
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    My Experience with the Ross Procedure

    Re: My Experience with the Ross Procedure Hi. I'm pretty inexperienced with posting on this forum also, so probably not the best person to be helping, but for what its worth.... I use an app called Tapatalk on an Android tablet. It makes viewing the posts a little easier but is sometimes...
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    Strugglng with my decision

    In the second op the surgeon only replaced the root - both valves were left in place. The most likely scenario is that my aortic valve will need replacing sometime in the future. Exactly how long seems to be impossible to predict - I'd be happy with 15 years but will aim for 50! I believe...
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    Strugglng with my decision

    I was 26 when I had my first surgery. As to why the Ross, I've tried to explain my reasons best I can in recent posts - see wwwphp?41998-My-Experience-with-the-Ross-Procedure.valvereplacement.org/forums/showthread. and...
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    Strugglng with my decision

    Re: Strugglng with my decision Hi Erik. I was pretty much in your position just over 11 years ago and opted for the Ross. Unfortunately, it only lasted until recently when I needed surgery to correct an enlarged aortic root. However, both my aortic and pulmonary valves are apparently still...
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    How long did you take off work (desk job) after OHS?

    Re: How long did you take off work (desk job) after OHS? Hi Chaidell, I'm at 5 weeks after after OHS and have been working part time for a week now (three days a week) and planning to start back full time in another week. I have a desk job too. I felt like I could have gone back earlier, but...
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    ROSS Procedure Talk

    I've not given too much thought to that part of my decision to have a Ross before, but thinking now, it was never a case of pretending I didn't have a heart condition, more a case of trying to put it as far down my list of concerns / thoughts as sensibly possible. My heart condition affected my...
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    ROSS Procedure Talk

    Re: ROSS Procedure Talk Hi Pete, You'll have seen my recent post on my thoughts on the Ross Procedure. Even though mine failed after 11 years, I still don't regret my decision. Also, the reason it failed is now better understood and so in theory the number of such failures should be reduced in...
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    Getting a little nervous. Any athletes out there after OHS????

    Re: Getting a little nervous. Any athletes out there after OHS???? Hope the op went well KNX-, just don't try running around the ward - I'm sure the nurses would love that! I had competed in rowing and cycling races up to my first surgery (Ross procedure) and went into it in good shape. My...
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