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How long does it take to get an appointment in the Aorta Center at the Mayo Clinic? My son is due for his yearly check and an MRI of his bicuspid valve and dilated ascending aorta at the of August, and he will need a new provider near his new location, St Paul, MN. The Mayo Clinic seems like the...

I was so grateful to this forum 20 yrs ago when my 11 yr old son was diagnosed with a BAV and dilated asc aorta. Now my son is 31 yrs old (!!), and I’m back. It is nice to see the forums going strong and to recognize some familiar names who are now out of the ‘waiting room’ but still here...

Has anyone here been diagnosed with both?

Just checking in to see other's experience with hypertension, along with their valve and aorta issues. My question is if hypertension commonly goes along with diagnoses like moderate aortic regurgitation, BAV and dilated asc aorta. My son was 11 yrs when he was diagnosed and I started on this...

I have been a member here since my son was 11, but have been offline for years because his situation has been, happily, stable. He is 22 now, and we have just come from the yearly echo, with an appointment in a week to see the new Adult Congenital Cardiologist. I wanted to check in here in the...

It has actually been three years since I've posted. I can't believe how fast the time has flown by! After this post I will visit around the forums to see how all are doing. Hope it has been a good three years for everyone. I am happy to report that my boy Matt, about to be 21 now (11 when...

Matt is in his first year of college and loving it. We haven't thought much about his heart in the last year other than around his yearly cardio appoint, which showed things to be pretty much stable--a little increase in LVdd, but not much. For those that do not know us, he has a BAV with...

Hello everyone! An update and a question following Matt's yearly cardio appointment and echo. Basically things are still looking fairly stable even though there was a slight increase in the LVdd measure this year. All the AO measures stayed the same (yay!), and still no real symptoms other...

Hello all-- I just wanted to share the good news of our yearly cardio visit today. For the first time ever none of the heart dimensions has increased--even though Matt has grown two inches and gained twenty pounds! If his LV and aorta dimensions had continued to rise at the rate they had been...

Hi-- The previous thread about body size and MVP encouraged me to ask a question that I've been wondering about for a long time. Do people with BAV tend to have a certain body-type? My son is very "Marfany" looking with some, though probably not all, Marfan characteristics (he is being...

Hello all-- I don't post much but I check in alot, so thanks for all the advice and words of wisdom you give me every day without even knowing it!:) Some of you may be familiar with my story from the Heart Talk forum, but in a nutshell... Because of my older son Matt's BAV and aorta issues...

Hi everyone, Nervous Mom here... Matt's yearly echo was last week and the results were a mixed bag. The good news--his heart dimensions, including asc. aorta, have remained relatively stable from the last echo. Excellent. The cardio credits Lisinopril. The not-so-good news--the aortic...

Just wanted to share great news with all my vr.com friends! The report from Matt's MRA has come back and... the dilated portion of the asc. aorta tapers back to normal size before it reaches the arch and...the rest of the aorta shows no visible signs of bulging or weakness! What a relief...

A friend recommended this, and I am ordering it today. It's written by two physicians--one the famous heart surgeon, Mehmet Oz. It's called, You: The Smart Patient: An Insider's Handbook for Getting the Best Treatment, by Michael F. Roizen and Mehmet C. Oz. Has anyone read it?

Hi, everyone-- We just had a call from the Pediatric Genetics office to give some information prior to Matt's upcoming MRA on Aug 8th. They wanted to catch up with how he has been doing over the last year and request us to have echo results sent, etc. Interestingly, one of the reasons for...

Hi, Friends! We've just had our yearly echo and cardiologist visit. This is our fourth in the year and a half since Matt was diagnosed with BAV, regurgitation, and dilated asc. aorta. Some reassurance and some concern--no surgery needed right now, asc. aorta size stable since last echo, but...

A quick question for anatomy experts out there...Try as I might, googling every possible way, I can't find a definition or diagram that will tell me exactly what the supra-aortic ridge is. Apparantly, Matt's dilation extends beyond the supra-aortic ridge into an area where it can't be easily...

Hi, everyone! Even though I don't post myself too often, I check in almost every day and almost always learn something new. You may not know me too well, but in the last year I've come to know all of you regulars and I think of you as treasured friends! You've been with me through diagnosis...

I just read with interest the thread on Beta Blockers. I would be interested in any similar info on ACE Inhibitors and other's experience with them, side-effects, etc. Matt is just starting on Lisinopril, 5 mg to start and going up 5 mg every two weeks until he reaches 20 mg. The benefits of...

Hi, everyone, from Jane and son, Matt! This poll is prompted by the widely differing opinions amoung cardiologists and surgeons about when to go to surgery for a regurgitating (or stenotic) aortic valve--as indicated by left ventricle dimensions. I've heard everything from 7.5 cm (our cardio.)...