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  1. maisiejane

    Hi Everyone

    Hi Everyone, Not been available for a while, hope all is well. I am now nearly six months post AVR and I have days when I feel fantastic, still experiencing visual issues (migraines) but have been given the all clear from my optician regarding anything sinister following being on H/L machine so...
  2. maisiejane

    Thoracic Outlet Syndrome

    Hi all, I haven't felt too good the past couple of days with exaggerated symptoms that I have previously discussed - Neck pain, tingling in lip, face and extremities which I can only describe as a warm blood rush! also occasional heavy feeling in my arm, intermittent chills with normal...
  3. maisiejane

    post op reveiw

    Hi all, I attended my post op review Today with my Surgeon, it was originally arranged for 6 weeks after my AVR but for reasons not explained to me, it is nearly 11 weeks. may I ask a question to all those who have gone before me! what did you expect from the review and what did you actually...
  4. maisiejane

    1st session

    Well, I attended my first session of rehab this morning and I must say that I was quite impressed, not just with the group and the set up, but with myself ☺ I highly recommend all to attend their local group if referred as it starts to familiarise you with your new body and personal...
  5. maisiejane

    Bump in the road

    I wasn't feeling too well yesterday, my heart was flip flopping more than usual and the face tingling was pretty constant, as the day went on the flip flopping continued to get worse and I was feeling pretty anxious made worse by exploring the internet! By early evening my hubby felt enough was...
  6. maisiejane

    weird symptoms

    Hi everyone, I hope you are all keeping well! I am now 3 weeks post surgery and I am definitely getting stronger, I am getting out each day walking and a little bit of retail therapy of course 😁 my after care with the NHS has been poor from discharge, I had a district nurse who was meant to...
  7. maisiejane

    9 days post op

    Hi All, Prior to my surgery I found it very comforting and informative to read other peoples experience of surgery so here is mine. AVR - 17th February 2014 - 19 mm Bovine Tissue valve Surgery time 4hrs 30 mins Never once saw my named surgeon just a member of his team. All went very well until...
  8. maisiejane

    day 3 post op

    This won't make much sense so I apologise I am day 3 and they say I am doing really well, but I have lost a lot of my cognitive skills, also m vision is playing tricks on me, thank goodness for predicted text. Probably a little unfair for me to pass judgement so at the this stage I will just say...
  9. maisiejane

    well let's try again!

    Just a quick note to let you know that I am going in again today for my AVR, 4th time lucky. So will see you all soon. Deb xxx
  10. maisiejane

    update on surgery

    Hi all, just a quick update as you know I originally went in for my AVR on 5th Jan and unfortunately developed an abscess, so went in again on Tuesday for my op to be performed on Wednesday and sadly it was cancelled again as some poor soul had to have a heart transplant, they kept me in...
  11. maisiejane

    surgery day

    Hi all, well here it is I am going in hospital tomorrow for my AVR, the actual surgery is on Wednesday, at the moment I am fit and well, no tooth ache no infections a bit of a cold threatened me on Saturday but I saw that sneaky little devil off so wish me luck and I will see you all soon :D Deb xxx
  12. maisiejane

    New Date

    Hi all, Just to let you know following my cancellation due to a tooth abscess, I have now got my new date I am going in on 4th February and having my op on the 5th Fingers Crossed ;) Deb x
  13. maisiejane

    The Roller coaster continues

    Hi Guys, Sorry to say but I am still on this side of the mountain. The Teeth clenching / grinding that my dentist diagnosed was in fact a full blown abscess this was only diagnosed 2 hours before my surgery after 24 hours of pulse throbbing pain, copious amounts of Tramadol, all the pre op test...
  14. maisiejane

    D-Day

    I am on my last evening before going in for my AVR it is all a little surreal, I just want to thank everyone for their great moral support and wisdom, you have made this part of my journey a lot easier and humerous see you on the other side ;) Deb xxx
  15. maisiejane

    rollercoaster ride

    Hi all, I am all prepared for my AVR on Monday 6th, then I receive a phone call today from my surgeons secretary to say that an emergency has come in and my surgeon needs to use my slot as the other patient is urgent, I am now going in on the 7th January and having my surgery on the 8th. This...
  16. maisiejane

    oh no !

    I am due to go in for my surgery on the 5th January, and can you believe it I am having dental problems, I have had toothache all day which isn't relieved by pain killers. I will go to see my dentist in the morning, but I have a feeling it may be an abscess. I am devastated as I know they will...
  17. maisiejane

    Date set

    Hi all, Just wanted to keep you informed, I got the call today and I am having my surgery on 6th Jan 2014, I go for my Pre op on Friday so should find out details. What is comforting is my fellow forum buddy Paleogirl is having hers on the same day, different Hospitals, but it feels reassuring...
  18. maisiejane

    cancellation list

    Hi all, just a quick update - I saw my surgeon in August and was placed onto the waiting list for my AVR, I agreed to go onto the cancellation list as the current wait list in this area of the UK is 6 months, as a lot have advised on this forum I have managed to put the thoughts of my surgery a...
  19. maisiejane

    symptoms

    Hi everyone, I hope life is being kind. Can I ask if anyone else is experiencing reoccurring neck discomfort, it is like pressure at the base of my head and into my neck, I tend to put all aches and pains down to my leaking valve as this symptom has been reoccurring over many years too Deb xxx
  20. maisiejane

    Asprin, why?

    I am on the waiting list for AVR, this morning I received a letter from my GP , they had received notification from my cardiologist to start me on aspirin, is this usual practice prior to heart surgery? I would have preferred an explanation as to why I need to take this, Any thoughts? Deb x
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