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  1. M

    Managing warfarin on chemo

    Hi I am on long term treatment for metastatic breast cancer and have recently switched treatment to Kadcyla, a new chemo. It is known for lowering platelets. I noticed my urine had blood in it. My INR was 4.5 and platelets were 41. My INR is now 2.6 with dropping a day and a dose reduction...
  2. M

    Z scores

    Can anyone tell me about z scores for aortic root size? My daughter's paediatric cardiologist focuses in on these a lot. I know that they relate to how far her root measurement deviates from the average for her height and weight (body surface area). Two years ago, her sinus measurement was 28...
  3. M

    What is a TOE/TEE like?

    I have managed to avoid this test so far, but it seems that I may be scheduled for one in a few weeks, probably with contrast, to test for an ASD. I'm quite worried that I will struggle to swallow the probe, because I'm quite rubbish at taking tablets. Does it hurt, or make you sick or gag?
  4. M

    Why is it bad to be in flutter?

    I know this must seem like a really daft question to most people. I'm 4.5 months post op, and for the past 4 months I have been in flutter, non-stop. My surgeon referred me to an EP, who has recommended ablation as the best way to permanently take me out of flutter. The combination of...
  5. M

    Contraception choices for mechanical valves with heavy periods

    Since having my mechanical valve put in, I have been suffering heavy and frequent periods, and am now a little anaemic (Hb is 9.8). I also have migraine with aura, a PFO and am in flutter. Most first line treatments for heavy periods are hormonal. I think Mirena is often suggested (IUS with...
  6. M

    Eye problems and patent foramen ovale

    When I mentioned to my surgeon on Monday that I had some temporary loss of vision in one eye, he was very concerned and fast tracked me for a neck scan and got a neurologist to see me. The neurologist saw no reason for my symptoms, but I had an echo booked for today. My echo was done by a...
  7. M

    How long did it take your warfarin dose to stabilise post OHS?

    My surgery was almost three months ago, but my INR is still quite unstable. I seem to need an increasing dose of warfarin to maintain the same INR. For example, at the end of December, my INR was 2.2 on 6 mg/day, but in mid February it was 2.0 on 8.5 mg/ day. I know that warfarin dosing can...
  8. M

    Ladies - Any fashion tips for scar

    I'm just over 3 weeks post op, and am finding it difficult to sort out what to wear. My scar comes quite high, so most of my tops show some of it. I have a few blouses that work, and some zippy jackets. I cannot get pullovers on yet because I have arm restrictions due to pacemaker bedding...
  9. M

    Permanent pacemaker needed after surgery

    Hi, This is my first post. I had my aortic root and valve replaced 3 weeks ago, and my surgeon was delighted with my progress. For the first 2-3 days after surgery my heart was beating independently and only sometimes needing the temporary pacemaker. As time passed I became more reliant on my...
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