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  1. M

    Managing warfarin on chemo

    Exactly i have previously emailed my clinic and said my INR was 4.5 over the weekend so I dropped a dose, and now it’s 2.8 but I think I need my dosage tweaked. They have replied in range INR 2.8, carry on with maintenance dose.
  2. M

    Managing warfarin on chemo

    I self test, and am dosed by the anticoagulant clinic at a different hospital to my cancer hospital. They aren’t always great at giving sensible advice though so I’m considering changing clinic.
  3. M

    Managing warfarin on chemo

    Hi I am on long term treatment for metastatic breast cancer and have recently switched treatment to Kadcyla, a new chemo. It is known for lowering platelets. I noticed my urine had blood in it. My INR was 4.5 and platelets were 41. My INR is now 2.6 with dropping a day and a dose reduction...
  4. M

    Coumadin and Anemia

    I get anaemia and need to take iron tablets, but I am a premenopausal woman. Lots of women need their iron topping up, and being on warfarin doesn't help. I don't think I would be anaemic if I was male or post menopausal, but possibly would be even if I was not on warfarin. I also don't think...
  5. M

    Heart surgery suggestion for women...

    When you go for your surgery, you may well want to schedule it for when you do not have your period. However, your body may have other ideas. My surgery was scheduled for mid cycle, but in ICU my period arrived. My nurse told me this was very common.
  6. M

    Waiting

    I also live in an area with a poor local hospital, so for routine appointments I avoid it. On the NHS, you do not have to be referred to your local hospital. Your local health authority may prefer it, but you have the right to choose a hospital. However, if your appointment is soon, probably...
  7. M

    I've been offered a job, what shall I do.....

    You will probably have to fill in a medical questionnaire before you get offered your contract. You will need to disclose your heart condition, but only as it is today. If I remember correctly, you are being checked annually, but are not actually scheduled for surgery. So disclose this. You...
  8. M

    INR Ranges

    I was told 3-4 for my aortic valve replacement by the hospital when I was discharged. My local anticoag clinic were unhappy with the range, so lowered it to 2.5-3.5. Personally I have found that going to the top of my range makes me bruise like crazy, but I will not go below 2.5.
  9. M

    You're on Warfarin, a disaster hits, You can no longer obtain it, What can you do?

    If we cannot get warfarin, then probably we cannot get food and clean water, power or sanitation. Lack of availability of medication will affect a huge proportion of the population, many much harder than us. We can go without warfarin a lot longer than type 1 diabetics can go without insulin...
  10. M

    INR levels

    I have an aortic ATS valve, and my hospital asked for an INR of between 3-4. My anticoagulation clinic changed this to 2.5-3.5. When I went back to see the surgeon, I queried this, and he said he was fine with the new levels :confused: I take 10 mg daily to keep my INR in this range.
  11. M

    Ablation to treat arrhythmias

    My ablation was venous, accessed through the femoral vein. The cardiologist I see specialises in ablation, and the hospital I had it done at is known for its electrophysiology. Success rates for flutter are about 97%, but for a-fib it tends to be in the 80-85% region even for experienced...
  12. M

    Ablation to treat arrhythmias

    I had an ablation for typical flutter, which has been fully successful. My cardiologist had already put a pacemaker in my heart, so he was confident that the procedure would be quick and easy because he had already treated me. My ablation was done under local anaesthetic, and was over from...
  13. M

    Ticking Time Bomb

    My 9 year old hears the ticking, but I don't.
  14. M

    Pregnant and Scared! With BAV! (Newbie)

    Good luck with your pregnancy. It sounds like you are being monitored very carefully, so I think you should be fine. I had two pregnancies with BAV plus an aneurysm that was 4 cm at the end of my first pregnancy and 4.4 cm at the end of my second pregnancy (was told that section would be needed...
  15. M

    Uk nhs - choosing a mechanical valve

    I had an ATS valve put in at St George's. I didn't ask the brand before my op, the discussion was more about tissue vrs mechanical. However, I think that most valves are very similar in their efficiency. Personally I think going with a valve that a surgeon feels comfortable about working with...
  16. M

    Sensitive subject.....

    I think that all of us sometimes consider what would happen if we couldn't access our meds. My husband has a supply of tinned food in the house, and has bought a small oil powered generator (although I'm not sure that he has ever actually tested that it works :) ). Maybe if society did break...
  17. M

    All set for #6!!

    Sarah, good luck for next Tuesday. Hopefully, with such a short hospital stay you will be back on your feet quickly. With luck this surgery will not interrupt school, college, exams etc too much as well :)
  18. M

    Tissue Valve vs. Mechanical Valve?

    I had my valve and aortic root replaced nine months ago, and my choice was mechanical. I was 39, so a little younger than your dad, and I did need a pacemaker after my surgery. Only a small percentage of people end up needing a pacemaker, but it is good that your dad's surgeon has warned him...
  19. M

    Sitting in the E.R.

    Marc - I hope you are feeling better soon. As an aside, I was told to aim for an INR of 3-4 when I was discharged from hospital. My anticoag clinic disagreed and changed it to 2.5-3.5.
  20. M

    Blood pressure question

    Keeping bp low is a priority for people with aneurisms. It's thought that betablockers slow the growth of an aneurism, so many patients are prescribed meds to lower bp, even if their normal bp is not high.
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