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  1. L

    Heading for a new aortic valve.

    I find having a bad cold, or being on antibiotics, significantly affects my INR. It can quickly drop by 0.5 or more in a few days, but because I test weekly I spot it quickly and adjust my dose to suit. Many labs only test once a month or so, and here in the UK it can be 6 to 8 weeks if you...
  2. L

    Getting ready for an cardiac angiogram.

    Yes, i had one and i suspect most people do, as it gives the surgeon a good idea of what to expect. This may sound weird, but I enjoyed mine! I was awake, and they inserted the probe into my groin as I lay on the trolley thing beside a huge plasma tv. A robotic arm moved around to different...
  3. L

    INR

    Apologies - I put my range in the the "Heading for a new aortic valve" thread, but relevant here too: 2.5 to 3.5. I think that you have commented in the past that this is higher than in the US for a St Jude, but my surgeon (who at the time was the only non-US guy to receive some prestigious...
  4. L

    INR

    What are the risks. I don’t understand INR . Why would a low INR cause a stroke? I’m trying to learn and really appreciate all of your advice. This is happening so fast and I’m trying to make the right decisions and be as informed as I can be. This analysis by the UK's "National Institute of...
  5. L

    Heading for a new aortic valve.

    This may not be directly helpful, as I have a St Jude valve. My range is 2.5 to 3.5. I test my INR weekly and am in range over 95% of the time. I eat and drink what I like, alcohol mostly in moderation, and self-manage my dose of Warfarin when i need to make little adjustments to stay in...
  6. L

    INR

    As others have already said, managing INR is pretty easy for most of us. I have 5 years experience now, and have a hand held meter at home to do weekly tests. Every 4 to 6 weeks I send that week's result to my anticoagulation clinic, and if I got out of range they would advise dosing if needed...
  7. L

    Anybody using the Beta Blocker Nebivolol (Bystolic)

    Yes, I switched from Metoprolol to Nebivolol about 4 years ago. Apart from the tiredness, I also found pain in my legs when walking 200 to 300 yards with Metoprolol. I am diabetic, and the suspicion was that my arteries are somewhat restricted, and the Metoprolol was adversely affecting blood...
  8. L

    Plain old AVR

    I didn't do much research before needing my aortic valve replaced - although I had symptoms, I was going through a series of tests, sometimes months apart which was frustrating, and ended up having a "cardiac event" (ie I thought it was a heart attack but turned out not to be) which took me in...
  9. L

    Importance of self-management

    Having used it for 5 years now I generally accept that my XS often gives a reading usually up to 0.2 higher than a lab test, but I am fine with that. This is an acceptable level of accuracy to me, and besides, knowing about it I tend to bias my doses to achieve 2.7 to 3.5 rather than my...
  10. L

    Importance of self-management

    They definitely supply the strips on prescription, but the meter varies depending on what your local commissioning group's policy is. I had to buy my meter 5 years ago but given it has become NHS recommended management many areas now do provide them. But for me the £300 cost of a meter was worth...
  11. L

    Why I am here

    I am not new to the forum, but am glad it is here and think it worth saying why I visit and make the occasional contribution. Despite a complication requiring a pacemaker to be inserted, I generally feel my aortic valve surgery 5 years ago (in September 2014 when I was age 48 and a lot) went...
  12. L

    Anaesthesia

    I have had anaesthesia only for my OHS I think, though had something when they did the pacemaker a week later but it was something different apparently. I don't remember being given it, and a nurse said that there is an element of retrospective memory loss, for want of a better way of putting...
  13. L

    Reinforcing the need for weekly testing

    I'm no proctologist, but I completely agree about best practice for INR testing being weekly. I have seen significant changes in my INR when ill, often before other signs of the illness, or on antibiotics within a matter of days.
  14. L

    Reinforcing the need for weekly testing

    I need my AC clinic's ongoing approval too, but like you continue to test weekly, and adjust my own dose. 97% in range for the last year, and when I was out of range it was slightly high, so did not worry me.
  15. L

    One day at a time

    No, the cause of my infection was clearly some sort of insect bite. There was a dark red spot just above my ankle that appeared to the doctor to be the point of origin.
  16. L

    Reinforcing the need for weekly testing

    I have taken fish oil since before starting warfarin. Having read that there was an argument against taking this, and that the capsules are no substitute for actually eating fish (which i don't like), i stopp3d for a month and have just resumed in the last week. I have not noticed any change...
  17. L

    Need an MRI

    I have had 2 MRIs since my valve was inserted. Valve not an issue but having a pacemaker makes it a bit more complicated but ok
  18. L

    Pacemaker Poll

    I had a St Jude aortic valve fitted, and a pacemaker 7 days later due to surgical complication.
  19. L

    Reinforcing the need for weekly testing

    Thanks for the update - I am impressed with your management of the situation, returning to being in range so quickly with what seemed to me too small a booster. I realise that people react to Warfarin differently but even so I think I would take a more cautious approach to correcting a problem...
  20. L

    Reinforcing the need for weekly testing

    I am interested in your thinking here, to increase the dose by 2mg. To my mind, based on how my body reacts to Warfarin, that would be an insufficient increase for me after 3 days of missing 5mg per day (if i remember correctly has happened here), and I would have taken a loading dose of an...


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