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  1. J

    TEE on May 2

    I had a TEE and it sounds like my experience was worse than some of the ones above. I don't want to scare you but ask for lots of drugs. I felt far too awake and aware of what was going on the entire time. I'll spare you the details of the experience unless you would like them. For me, I think...
  2. J

    TEE on May 2

    I had a TEE and it sounds like my experience was worse than some of the ones above. I don't want to scare you but ask for lots of drugs. I felt far too awake and aware of what was going on the entire time. I'll spare you the details of the experience unless you would like them. For me, I think...
  3. J

    aortic aneurysm repair and stroke prevention?

    I actually had a stroke 4 months after my surgery- while they believe it was most likely related to my surgery they have have no real evidence relating it. I got a tissue valve so was not on blood thinners other than aspirin, although now of course I'm on warfarin. By the grace of God, I have...
  4. J

    Option for AVR

    I had no symptoms prior to my surgery (had it last year at age 27). I actually requested that my surgeon take a picture of the old valve, and it was much worse than they had anticipated! The surgery took longer than anticipated as well due to how bad my valve actually was!
  5. J

    Heartbeat visible under skin

    Aetos, I do mean pulse, yes! I had to get up at 3:45am this morning so not so my brain was not fully functioning when I typed this! Ha! yeah I can just see the pulse in time to my heart beating. Skin basically rising and falling but not from breathing. Anyway, I'm not particularly worried about...
  6. J

    Heartbeat visible under skin

    So this is a weird question, but just thought I'd throw it out there. I had my AVR surgery 11 months ago. One of the weird things I notice from time to time (but not always) is that my heartbeat will be visible under my skin. When I'm laying on the couch sometimes my husband will see it in my...
  7. J

    Two missed doses. PLease ehlp!

    I can't really speak to what you should do, but I have a daily alarm on my phone that pops up every day at 9pm and tells me "TAKE WARFARIN NOW!" I wouldn't remember without my alarm!
  8. J

    INR 5.8 after one week

    When I was first put on warfarin, my INR was all over the place until they figured out the dose that worked for me. It bounced around (got as high as 5.9) for about 2 months before it settled down. Now I've taken the same dose and been stable (INR always measures between 2.0-2.2) for the past 5...
  9. J

    mini stern/groin incision/AVR

    I had a minimally invasive AVR, although not a mini sternotomy. My incisions were through my upper right chest (about 3 in long) and my left hip/groin (also about 2-3 in). My surgeon specializes in minimally invasive and I think it really improved my recovery time since I wasn't also recovering...
  10. J

    Lbbb

    I do! (I'm assuming you're talking about left branch bundle block).
  11. J

    My Life on Warfarin

    Thanks for sharing this, it is important! I was initially nervous about being on warfarin, but honestly I wouldn't know I was on it except for taking my pill at 8 pm every evening and checking my INR levels. I eat what I want and do what I want and it has stayed pretty stable in the 2.2-2.4...
  12. J

    Know your stuff!!

    Hi all! I'm sure this has been said many a time on here, but we are our own best advocates! It surprises me how many medical professionals don't know about interactions with warfarin. I recently went to a dermatologist and they wanted to prescribe a couple different antibiotics to clear up some...
  13. J

    AVR surgery scheduled in 3 days! ANY AND ALL ADVICE WELCOME!!!!

    Best of luck with your surgery and decision! I'm 28 (27 when I got my surgery) and went with a tissue valve because I didn't want the complications of being on anticoagulants (ie warfarin) during pregnancy. That being said, I had a stroke several months after surgery due to a blood clot so I...
  14. J

    Progression Time

    I was born with a bicuspid aortic valve and moderate aortic stenosis in 1988. I went for check ups every year until I was 15 during which time it stayed about the same and when I was 15 was told I only needed a check up around every 3-5 years. Went for a check up when I was 21, and was told I...
  15. J

    Average age of death in "In Loving Memory" section

    Well there may be no "in memory of" the older folks because they could still be alive... just a thought!
  16. J

    Running after AVR

    "As a great trade against none at all"... I completely agree, I am so grateful and blessed with that truth every single day!
  17. J

    Running after AVR

    Hi all! I had my AVR about 7 months ago and a stroke 3 months ago. Overall I feel fine when working out, but my speed and endurance is GONE! I have trouble running without some walk breaks and my pace is about 2-3 min/mile slower than before surgery (I have never been a fast runner though). It...
  18. J

    Types of Exercise with moderate/severe aortic stenosis

    Hi there! I was in the same boat for about 6 months prior to my AVR. Had previously run and worked out a lot at the gym and cardiologist said to not do anything to get my HR up. I did a lot of walking and did some weights with 5 lb dumbells at home. I wasn't happy about it, but it was not worth...
  19. J

    Introduction

    Sure thing! Ultimately the stenosis was growing worse, and my valve was leaking quite a bit. Additionally, my cardiologist wanted me to get surgery before the dysfunction in my valve caused other issues with my heart. Prior to my surgery, I'd asked my surgeon to take a picture of the valve...
  20. J

    Introduction

    Hi there! I'm 27 years old and had aortic valve replacement 6 months ago. I had some complications, but nothing I can't live with! Prior to my surgery I also had no symptoms, but when my cardiologist saw my ECHO last October he said I needed to have surgery. I was pretty anxious leading up to my...


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