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  1. R

    Staying the Course -- 10/14/19

    I'm a little over 3 weeks out from TAVR. A lot more ups and downs than I expected. I think I may have caused the 1st problem when I bent over to test the 7-pin connector on the back of my van. Evidently when I bent over, I caused blood to start leaking from where the catheter had entered my...
  2. R

    Anaesthesia

    You can ask for the minimum anesthetic. They should be able to increase the amount if you start feeling more pain than you can/want to handle.
  3. R

    2nd AVR on my horizon : (

    Just wanted to add I asked my interventional cardiologist who performed my TAVR about TAVR in TAVR. He said it is the preferred method, but at some point you might have to go with a smaller valve.
  4. R

    Home from TAVR

    Update: Problem with pain in groin, fatigue, and heartburn are resolved. Evidently there was some leaking of the femoral artery and the blood put pressure on the femoral nerve. Once the leaking stopped and the blood was absorbed, no more pressure on nerve and now I feel fine.
  5. R

    2nd AVR on my horizon : (

    You should at least discuss TAVR.
  6. R

    Doc reversed the diagnosis

    Yearly.
  7. R

    Home from TAVR

    Methyl B12 and methyl folate. I have a methylation problem so need the methyl forms.
  8. R

    Doc reversed the diagnosis

    I went from mild to moderate in 1 year and then to severe in 1 more year.
  9. R

    Home from TAVR

    I'm thinking in my case it is caused by B12 and Folate, rather than iron.
  10. R

    2nd AVR on my horizon : (

    Nothing wrong with getting upset or even mad about it. I think for many of us, we need to go through that stage before we can get to acceptance. It's hard to figure out what is the best way to keep our new valves functioning. I think much of the information cardiologists give us is to keep us...
  11. R

    Home from TAVR

    My doc has been monitoring my red blood cells, etc for the last year because they were low. That's what got me to key on anemia. It also appeared to me that the article suggests that TAVR may induce anemia. I also have methylation problems which result in low B12 and folate, which can cause a...
  12. R

    Home from TAVR

    I just spoke with local cardiologist's office. Ultrasound showed no problem with femoral artery, so that's a big plus. The person I spoke to was relaying my current symptoms to the nurse and while I was waiting I wrote down "Femoral artery may be pinching the femoral nerve" causing the...
  13. R

    Inconsistent BP. Med changes?

    You are probably on the right track looking at the drugs he is taking, but also look at diet. Has he increased salt or red meat in his diet? Does he snack now and didn't before? Look at the drugs but don't forget the big picture. All these things are really taxing his liver. Longer term...
  14. R

    Home from TAVR

    2 Week Update: I felt great the first few days and then things went downhill. I had a lot of purple bruising that started about day 3. From what I understand, the problem is that sometimes the femoral artery leaks and blood pools in the nearby areas. It should resolve over a couple of weeks...
  15. R

    Doc reversed the diagnosis

    What would a surgeon do if when he got to your aortic valve, he determined maybe it didn't need to be replaced?
  16. R

    gut flora in hospitals

    What kind of gum do you think he was chewing?
  17. R

    gut flora in hospitals

    I just finished reading a series of blog posts that fully answers that question. I spent the last 4 years researching what caused my high BP, high cholesterol, obesity, fatigue, aortic stenosis, blocked arteries, etc. Eventually, I came to many of the same conclusions the author of these posts...
  18. R

    gut flora in hospitals

    I think they are already looking at that with some of the existing primitive tribes.
  19. R

    gut flora in hospitals

    There appears to be a link between gut flora (microbiome) and heart disease. My guess is it is a major factor in some cases of heart disease. Combine it with a leaky gut and there is real damage happening. My best guess is it played a large role in my blocked arteries and calcified aortic...
  20. R

    Home from TAVR

    Update 3: Went to see a local cardiologist today because I am having so much pain in my groin. The incision has healed fine, but the area below it is painful, especially when lying down. He didn't think it was anything serious, but scheduled me for an ultrasound tomorrow to be sure. He gave me...
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