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  1. pellicle

    Foldax Continues

    its a laudable goal ... but we're a long way from knowing it lasts. We know the durability of the mechanical valve, very well actually. I'll trade taking a pill and paying a little attention to my dose in exchange for not having multiple (more) surgeries. The reality is the only people that are...
  2. pellicle

    Confused about advice

    being aware of it is half the battle. Don't get me wrong, I love my mum and am very grateful for all she sacrificed in her life for me. I recognise that but this does not mean we didn't have any conflict. None of us are perfect and we make mistakes ... so I guess I'm saying "focus on the good bits"
  3. pellicle

    Confused about advice

    Hi Emma I suspect that you are not interpreting this message from the nurse as she intended She's saying people do what they want. Just look at how many people don't keep up their medication (a far more stupid action IMO) I second these views risks are not certainties ... I notice that some...
  4. pellicle

    3 months post surgery, Doc wants to medicate me more than I'm comfortable with.

    I fixed your typing errors Best Wishes
  5. pellicle

    New Member - Valve repair/upcoming replacement

    ahh, well now that I see this I see my above is superfluous ... recovery: just follow the directions, don't lift things (as per directions to not do so). Steps and walking ... do it. after about 5 weeks of course you can act more normally but still no lifting things more than a couple of Kg...
  6. pellicle

    New Member - Valve repair/upcoming replacement

    Aside from managing my INR, no change, didn't give up anything. Frankly I don't know where the doctors get their doom and gloom advice from. https://www.newsweek.com/my-turn-climbing-everest-bionic-heart-99749?amp=1 We've got at least one member here doing jiu-jitsu. Eat anything you...
  7. pellicle

    Are my expectations too high...?

    dunno, but you may be as healthy as you'll be. While I'm not discouraging exersize and pushing limits, its important to find out what the reasonable limits may be (and the echo studies normally also contain doppler studies which may inform that). I believe that we are not all average, but are...
  8. pellicle

    How do we get the word out about accuracy:

    I think roche are pretty good and generally speaking the vast majority of people I discuss this with get within 0.2 INR units from labs. Further discussions usually (not always) reveals a user error (there are many possible) but there are definitely cases where blood types. For instance...
  9. pellicle

    How do we get the word out about accuracy:

    sadly I simply can't argue with this (and yet I'm writing a book on INR management 🤷‍♂️ )
  10. pellicle

    33 Year Old Male, Recent Aortic Valve Replacement (Dec 2022)

    Hi you're welcome this is a bit "driving outside my lane" but I believe that the long end of the scale may be derived from people who are elderly (who make up the majority of the stats). When I was 28 I was back at Uni (had my surgery in very late 1992 near Christmas {which is summer in Oz}...
  11. pellicle

    Aspirin in conjunction with Warfarin

    you wouldn't be the first I've heard have a stroke on that INR
  12. pellicle

    33 Year Old Male, Recent Aortic Valve Replacement (Dec 2022)

    oh and @Cormac_1989 and @ckeogh just a brief wave from sortof an Irish Australian colonial boy http://cjeastwd.blogspot.com/2014/05/the-great-delvin.html I travelled there from Finland, which should also let you know "is travel ok" and can I take my coaguchek with me. I live a normal active...
  13. pellicle

    33 Year Old Male, Recent Aortic Valve Replacement (Dec 2022)

    and a welcome to you too (as I see only one post)
  14. pellicle

    33 Year Old Male, Recent Aortic Valve Replacement (Dec 2022)

    Hi and welcome glad you're finding things here helpful sorry you had a rough ride on the start and happy to hear that the pericarditis subsided. Was it bacterial? ok, so I'll work with this from the perspective of you're asking us to give input into what you'll ask the surgeon -> and provide...
  15. pellicle

    3 months post surgery, Doc wants to medicate me more than I'm comfortable with.

    Hey there, I'm not really able to comment on why you're on what but if there isnt' any justification for whatever medicine then you should question it (if not for just the sake of hearing the justification). I've always had good results from asking them and seeking justifications as to why...
  16. pellicle

    Aortic valve replacement with thoracic aortic aneurysm

    this could be way off base, but my personal experience is (when I get to drill down) that the people who are the most stressed have typically never had any surgery, never had any injury (other than a skinned knee as a kid), never been in a car accident or been exposed to any trauma (other than...
  17. pellicle

    I'm a little worried! Valve leakage!!

    been there, done that, totally agree.
  18. pellicle

    K2 and Calcium

    Agreed. A bit outdated in the advice about macular degeneration, some speculation, but for a. org newsletter it was pretty good. Even had citations
  19. pellicle

    K2 and Calcium

    just to suggest that while you might need to, the evidence is that the vast majority of us don't. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4998867/ In conclusion, the available evidence does not support current advice to modify dietary habits when starting therapy with VKAs. Restriction of...
  20. pellicle

    Mechanical Valvers! Tell me about your travel experiences

    I often wonder how Julien Du is going
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