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    New Here - Are Beta Blockers necessary?

    Yes it's been the same since the increase in 2018. The increase in 2018 was likely caused by a BP spike I had off and on that year (which we think was due to thyroid issues)...but my BP was not well controlled all year and that was one of the reasons the beta blocker was added (in addition to...
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    New Here - Are Beta Blockers necessary?

    Hi there! I just noticed your post and I would agree with your thoughts in the last post. I go to KU Cardiology and while I've been on a beta blocker, they said I could stop it as I was "stable". Like you, I was right at 3.9-4.0 but I was in my early 30's when it was detected. I'm 38 now...
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    Now It's Bicuspid + Ehlers Danlos

    True.. It could be things that went unnoticed. I guess I just wish I had a crystal ball.. :P I'm expecting to hear back from the doctor this week to go over the results. I'm not sure if I'll have any limitations other than heavy weight lifting of course, but this whole experience has...
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    Now It's Bicuspid + Ehlers Danlos

    Hi there. I remember we chatted on my prior post as well. :) I am going to be 39 in a month...so currently 38. I guess the whole situation presents a perfect combination of all of my biggest fears mixed into a bottle of one. Before any of this was diagnosed, I developed a fear of...
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    Now It's Bicuspid + Ehlers Danlos

    Hi everyone. I've been a member on this forum for years and my first post was after I was diagnosed with an aortic root aneurysm along with the diagnosis of Ehlers Danlos Syndrome (hypermobility and the aneurysm are the only 'major' symptoms presently). I've had several years worth of...
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    New Member Early 30s BAV, Aortic Root Dilation, Wondering about Woodworking

    You definitely have to be your own advocate when it comes to health care...and the cause of my aneurysm (connective tissue disorder, Ehlers Danlos) is sort of rare... the doctor could pronounce it..he knew some of the basic symptoms of it and even diagnosed me with it but obviously didn't know...
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    New Member Early 30s BAV, Aortic Root Dilation, Wondering about Woodworking

    Oh my... Hi Dan. You sound like me. My new year's goal for 2016 was to start Crossfit. I too, have had to become my own advocate and would have never even learned of my aortic root dilation/size/aneurysm had I not bugged my doctor about it to the point he insisted I see a psychiatrist. I...
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    Heart Surgery: Alzheimer's Trigger?

    Carolinemc - I'm from KC also!
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    Heart Surgery: Alzheimer's Trigger?

    Interesting never heard of pump head syndrome
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    Heart Surgery: Alzheimer's Trigger?

    I hope they discover more about this or find out how to better avoid this issue..
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    Heart Surgery: Alzheimer's Trigger?

    Hi everyone, Quite some time ago, a topic caught my interest and I've read up on it from time to time. That topic is those who claim (or their loved ones) Alzheimer's was triggered due to surgery involving general anesthetics. I have to warn in advance, I am a bit of a worry wort but this...
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    That Time Again

    DDwheeler: That's a shame you have not yet found a cardiologist you can trust. It does help to have a good primary though. It's too bad they can't recommend one. Are you by chance a Braves fan? (I am).
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    That Time Again

    Thank you for the responses. Yes, thankfully he is no longer my doctor (that recommended the psychiatrist). I feel I have a pretty good group of doctors right now. I have been going to KU Cardiology for a couple of years though I'll be getting the CT scan at St Luke's, which I don't really...
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    That Time Again

    Thank you. Actually, even though it was proven that I had a reason to be concerned, he held to his word... I had to see a psychiatrist afterwards. I will say he eventually left where I was going, and then I did thereafter...so I have a new, better doctor now (whew).
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    That Time Again

    It's that time of the year again (summer). I was diagnosed with Ehlers Danlos in 2012 but it didn't really matter that much until the summer of 2015. I had been the person to bring the issues up to my doctor, which was basically only hypermobility, which led to a diagnosis with two different...
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    ExoVasc® Personalised External Aortic Root Support (PEARS) - Question

    I remember reading about this, but it's not available in the US. It sounds great, but I'm wondering why the United States hasn't jumped on board yet?
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    Aortic Root Diameter based on my body size?

    Agree with the above. Keep an eye on it but it doesn't look like something to worry about right now!
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    Aortic Root Aneurysm and Sex

    lol you make it sound like such a mild operation. ;)
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    Aortic Root Aneurysm and Sex

    Hi Agian. I wonder what would cause an aneurysm is the tissue was normal? Perhaps that's where genetics come in? So it was less large when they chose to operate??
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