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    Aortic Valve Surgery on the Road Ahead

    just wanted to update everyone.. recovery has been so much smoother after my Ross procedure than expected. a couple skipped beats here and there occasionally but they've become fewer in frequency over time. I was able to stop all pain meds (oxy & tylenol) just 2 days after coming home (Day 7...
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    Aortic Valve Surgery on the Road Ahead

    just wanted to let you guys know everything went smooth with the surgery.. valve was too damaged to be repaired so I had the ROSS procedure. I'm already off pain meds and basically doing most everything I was before the operation, just with a bit more fatigue. At 25 it's a lot to hope for but I...
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    Aortic Valve Surgery on the Road Ahead

    had a heart catheterization in preparation for my operation early next week, good news is no blockages or evidence of CAD after decade of high blood pressure due to severe AR. repair will be attempted if possible, if not ROSS is the backup excited! It will be done at Mount Sinai by Dr...
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    Aortic Valve Surgery on the Road Ahead

    well after calls with several surgeons it looks like what I'll be having is an aortic valve repair attempt if the surgeon determines he can repair the valve without pericardium and there will be no root replacement just an annuloplasty but if he determines he cannot repair it without using...
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    Does Biological/Tissue AVR b/c of Aortic Stenosis calcification carry higher risk of subsequent Tissue Valve calcification?

    As the question states I am curious if anyone knows of any data to suggest any correlation on the structural valve degeneration of biological/tissue valves happening at a higher rate or increased risk for people who had aortic valve replacements due to aortic stenosis rather than valve...
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    Aortic Valve Surgery on the Road Ahead

    Thank you Deepak for sharing, if you don't mind who was your surgeon? If you don't want to post publicly but are willing to share over PM or not at all that's fine too
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    Aortic Valve Surgery on the Road Ahead

    I think at my age I've kind of baked in to the fact that I'm probably going to need multiple operations with a replacement whether that's tissue or mechanical though I agree it's probably much less for mechanical but I don't want to be on Warfarin this young. WIth the repair I've been told...
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    Aortic Valve Surgery on the Road Ahead

    I had a consultation with the surgeon, as you all have been saying the real only way to know if it's repairable is after he opens me up. The echo looks ok, severe AI with possible RCC prolapse, he thinks there may be some calcium on the leading edge of the right leaflet but the overall gradient...
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    Aortic Valve Surgery on the Road Ahead

    I got back from consulting with my first surgeon. So good news is they think from the echocardiograms and the images they can see there is minimal calcification , pressure gradients across valve are low teens so there’s probably not too much damage and they think the way it’s opening and closing...
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    Hard to trust many doctors

    why not consider the resilia tissue valve? It might last you out. or TAVR and a future valve in valve might do it as well
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    Aortic Valve Surgery on the Road Ahead

    Tom that is very encouraging, curious how bad was your regurgitation when you had the operation? And it sounds like you had a three leaflet valve and one of the leaflets was prolapsed or something like that? My valve is three leaflet and has a right coronary cusp prolapse, but with severe AR...
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    Aortic Valve Surgery on the Road Ahead

    Thank you all for the encouragement and advice, yes I am seeking places that specialize in repair and have experience with replacement in case it's not possible. Not sure what I want to do if it's a replacement, I wish Foldax was more tested/readily available but thinking if tissue then probably...
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    Aortic Valve Surgery on the Road Ahead

    Hello everyone, I found this forum a few months ago and it has been extremely helpful in being able to read all the stories of people here who have gone through similar valve related issues. I'm currently in my mid 20s and was diagnosed over a decade ago with aortic valve regurgitation that was...
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